The Post Polio Support Group (PPSG) originated from a meeting of three Polio survivors in 1993. The object from the outset was to assist people who were experiencing the Late Effects of Polio including Post Polio Syndrome. A significant problem for these people was the lack of information available to them about their condition.
Since our establishment the PPSG has provided information to polio survivors, the medical professions, the media and other interested parties. We have worked to improve the general situation of survivors in Ireland. We also aim to raise awareness among polio survivors themselves, and the broad medical profession about the problems that some survivors now face.
Services
PPSG provides information, support and advocacy services for Polio survivors.
Provides information on the Late Effects of Polio to survivors, the
medical profession, the media and other interested parties, and Monitors
internationally for advances in the Post Polio field.
Organises Conferences on Post Polio topics and holds area information
meetings, co-ordinated through the voluntary regional representatives.
Participates in Umbrella Organisations on behalf of polio survivors,
e.g. Disability Federation of Ireland, Neurological Alliance of Ireland
and the Carmichael Centre for Voluntary Groups.
Manages the allocation and distribution of Aids & Appliances, Respite
Care and I.T. funding, when available, from Health Boards.
Publishes a quarterly newsletter and maintains a Website
Contributes submissions to both Governmental and Non-Governmental organisations on request.
At its AGM, PPSG includes a lecture or exhibition of interest or concern to members.
