The Association was
originally known as P.H.O.N.E., which stands for Patients and
Helpers of Neurofibromatosis. The association was subsequently
renamed The Neurofibromatosis Association of Ireland. It is
a mutual support group with the primary aim of informing suffers
and their families of the disorder and letting them know they
are not alone with their problem.
Since it's foundation the range of services provided by the
association has expanded considerably. In the early years particular
focus was placed in publicising the condition and getting the
association established. This involved providing information
on the condition, creating an awareness of (NF) among the medical
profession and giving guidance and support to people with Nf.
Gradually Doctors and Consultants became aware of the work
of the group and referred suffers to the association.