Immunodeficiency Back to Patient Support Group list
primary immunodeficiency association of ireland
Description
The Primary Immunodeficiency Association of Ireland is a voluntary support group representing Irish people with a range of immune deficiency disorders consisting of parents and people with an immune deficiency disorder. It was founded in January 1997 at St James's Hospital under the direction of Prof Con Feighery, clinical immunologist with whom the organisation keeps in close contact.

Aims and Objectives
  • To represent the needs of people suffering from Primary Immunodeficiency and promote awareness of the condition.
  • To make sure that State support is available to all.
  • To seek improved information, both in terms of timing and content, from the Irish Medicines Board, when approved medication is changed.
  • Home treatment support.
  • Consistency of approach in relation to the VHI.
  • Circulating information to GPs on Primary Immunodeficiency.
  • Safety of blood products.
Services
  • Providing support and information for people with immunodeficiencies and their families
  • Working alongside the medical profession to improve the rate of diagnosis of primary Immunodeficiency and to ensure that people get the best possible care from their doctors
  • Funding Research into safe and effective treatments and ultimately a cure for these conditions
Contact
  Maria Nolan,
Primary Immunodeficiency Association of Ireland,
'Croneview',
Cronelea,
Shillelagh,
Co. Wicklow.
Tel: Tel: 055-29133.
Fax: 055-29450
Email: info@piai.ie
  www.piai.ie
 
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