The Primary Immunodeficiency
Association of Ireland is a voluntary support group representing
Irish people with a range of immune deficiency disorders consisting
of parents and people with an immune deficiency disorder. It
was founded in January 1997 at St James's Hospital under the
direction of Prof Con Feighery, clinical immunologist with whom
the organisation keeps in close contact.
Aims and Objectives
To represent the needs of people suffering from Primary Immunodeficiency and promote awareness of the condition.
To make sure that State support is available to all.
To seek improved information, both in terms of timing and content, from the Irish Medicines Board, when approved medication is changed.
Home treatment support.
Consistency of approach in relation to the VHI.
Circulating information to GPs on Primary Immunodeficiency.
Safety of blood products.
Providing support and information for people with immunodeficiencies
and their families
Working alongside the medical profession to improve the rate of diagnosis
of primary Immunodeficiency and to ensure that people get the best possible
care from their doctors
Funding Research into safe and effective treatments and ultimately a
cure for these conditions