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(Tuesday, 23rd May, 2017)
Haemophilia Back to Patient Support Group list
Irish Haemophilia Society  
 

Description
The Irish Haemophilia Society offers services to all members of the family, not just to the person with haemophilia.

The Society was founded in 1968 by members of the medical profession, people with haemophilia, their families and friends who felt the need to provide support and advice for members and to improve the quality of life for people with haemophilia.

Within the past three decades the Irish Haemophilia Society has been at the forefront of the quiet - and sometimes not so quiet - revolution, allowing members to stake their claim in society and be given a fair chance in life.

It has also widened its remit to represent men and women who have the inherited blood coagulation disorder, von Willebrand's disease and other rare bleeding disorders.

During a period of change and uncertainty, the Society has taken on successive governments to secure rights and services for its members. It has also educated the public about the rare hereditary disorder and supported members in times of need.

The Society has grown from an informal and voluntary group of parents of people with haemophilia who wanted a better deal for their children to a confident and professional charity with a staff of 7 to deal with the challenges of a new millennium.

Aims and Objectives
Create awareness of haemophilia.

Ensure the optimum treatment for people with haemophilia.

Be an advocate for people with haemophilia in relation to problems with education, employment, psychological adjustment, housing and finance.

Negotiate with public authorities and service providers in relation to all aspects of the care of people with haemophilia.

Raise funds and distribute information.

Co-operate and be represented on other voluntary bodies.


Services
  • Information Meetings
  • Haemophilia Support Days
  • Family activities
  • Counselling / Support Prrogrammes

Contact
  Irish Haemophilia Society,
Block C, Iceland House,
Arran Court,
Arran Quay,
Dublin 7.
Tel: 01 - 872 4466
Fax: 01 - 872 4494
Email info@haemophilia-society.ie
  www.haemophilia-society.ie
 

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