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(Saturday, 20th Dec, 2014)

Rosacea

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11 Posts

Surfer808  ·  14 Jun 2014

@ rosy red - Hope the IPL goes well for you, apparently it takes a few sessions before you see any difference, best of luck!

Has anyone tried Rossoseq yet?

 

14 Posts

rosy red  ·  09 Jun 2014

@Surfer 808

I haven't tried either yet. I'm booked in for an IPL in less than a few weeks and I will let you know how it goes.I have had two test patches done and have noticed no negative reaction but at the same time I have seen no improvement on those areas.

 

11 Posts

Surfer808  ·  07 Jun 2014

Hi rosy red, did you decide to try the Mirvaso cream? I'm thinking about getting it and doing a trial run to see if it's any good. Did you go for the ipl laser treatment?

 

4 Posts

lmcc  ·  05 Jun 2014

Hi mmh

I am going to continue to takeit as its an excellent health benefit and it too expensive. I take 7.5 ml in 250mls of water twice a day. It makes your body become alkaline and I believe my rosacea was caused because my body was too acidic.. cant believe de diff in my skin in a month.

 

4 Posts

Whoopie  ·  04 Jun 2014

@rosy red, not much progress as of yet. Think it'll be a few weeks before hopefully some change, still didn't have that swim, it's penciled in for tomorrowSmile

This is some very promising news I found about Ivermetin Cream, It's had sucess in clearing 30/40% of people with acne rosacea, I'm just hoping i'm in that 40%. It's used a lot on animlas at the moment and supports the theroy that acne roasacea is mite based in some people.

http://www.galderma.com/News/articleType/ArticleView/articleId/58/Galderma-Announces-Positive-Results-of-Phase-3-Trials-of-Investigational-Ivermectin-1-Targeting-Papulopustular-Rosacea 

I don't think there is any such cream available in ireland at the moment but it may be possible for your doctor to prescribe something similar and for the pharmacist to make it up. Would anyone know? 

I see online pople have requested their vet to make it up with a cream base and it's worked or just bough it straight off the shelf, has anyone tried it?  

 

1 Posts

mmh  ·  04 Jun 2014

Hi Imcc

i have just purchased phytolife, how often and how much did u take it and are you going to continue to take it?

 

1 Posts

PharmacistPaul  ·  03 Jun 2014

Hi Guys,

I am pharmacist based in Donegal. Just to let you know that there is a new drug free treatment for Rosacea called ROSSOSEQ being launched in Ireland next week. It can  be used for a range of inflammatory skin disorders but I have seen evidence of trials using Rossoseq (spray version) for Rosacea that are very promising indeed. 

I think it is a very exciting product for rosacea, which as you all know affects a huge number of irish women and men.

The product will come in a gel and a spray version and can also be used for eczema, psoriasis and acne. 

 

4 Posts

lmcc  ·  03 Jun 2014

Hey there everyone try phytolife I have found excellent. My skin is back to normal in a month. Work out at bout a euro a day.

 

14 Posts

rosy red  ·  03 Jun 2014

@whoopie , are you making any progress?I have read before about the positive effect chlorine can have.

@surfers808 , I have not used Mirvaso cream yet but there are very mixed reviews on the internet , my dermatologist told me you have to use it continuously and not just on occasions.

 

11 Posts

Surfer808  ·  30 May 2014

Has anyone tried Mirvaso cream? I've read a lot of mixed reports on it, some say their skin loses all redness while others complain of deep flushing after it wears off. Would be great if it worked but seems a bit of a gamble since it's a pretty new product.

 

4 Posts

Whoopie  ·  29 May 2014

In the same boat as the rest of you, got diagnosed with Acne Roascea 9mts ago, Since the initial diagnosis, i've been to the dermatoligitst once since and i'm due back again this month but may hold off a while to try some alternrtives.

I'm currently on, Tetralysal 300mg (1 tablet per day), A Zineryt mix in the morning and rozex in the night.  

It's keeping it at bay but not exaclty making it disappear but without the Tetralysal my face erupts with the acne side of it, and i've never had a acne problem until about 18mts ago with the start of the problem.  

There's 2 things I want to try before going back to the dermatoligist, one is to try and kill off Demodex mites and see can I get any improvement, I don't even know if I have them but i'm going to try if my current plan doesn't work. My eyes have got a little itchy in this weather so it may be suggesting I have. Seemingly if you get releif from going for a swin in a pool with chlorine you could possibly have them, i'll try this a few times over the next week and report back.

What i've started work on is my diet and mainy the fiber/gut side, from doing a lot of reading up i'm starting to think that maybe a mix of a leaky gut and mild candida might be at the root cause of my condition, basically what some schools of though suggest is that it may be caused by the gut becoming porus and candida growing through it given toxins a water slide if you will into the blood stream which is where the badness is coming from, my mission is to retreat the candida back inside the gut and get a right mix of fiber to to seal back up the gut to trap all the toxins. (I'm aiming for 30/40mg of fiber a day and going to start taking probiotics from tomorrow to rebalance the flora)

I'm looking for a cure, the thoughs of antibiotics for the rest of my life is making me feel bad as i'm only 37. I'm a guy so can't really hide it with make up, and at the moment it just looks like i've been in the sun but as I get old I presume it's goign to get worse unless I get to the root of the problem asap. 

I'm sure there is a cure out there somewhere but as one of my friends in the pharamcy business put it, he won't be looking for it as there's no money in the cure. 

I anyone has any suggestions on keeping demodex mites at bay i'd love to hear from them as to what they've used and had they any success. 

 

14 Posts

rosy red  ·  28 May 2014

@Klancy , thanks for replying I'm very sorry to hear that :-( :-( I signed up to rosacea-support.org and they send me updates via email on New products as they become available which might be worth a look. Have you heard of Mirvaso ? Its a new cream used to treat the redness and has become available here now. My derm will prescribe it to me but suggested I try a round of the IPL first . I'm terrified of having the IPL though , I know its rare but you can be left scarred , burned etc. I'm going in for a second patch test tomorrow as I have yet to decide whether the initial test made even the slightest difference or just left me even more red at times sigh .......Look up that website though there are more products to become available by the end of the year:-)

 

4 Posts

Klancy  ·  26 May 2014

How apt you messages today Rosy Red! It definitely took longer for the lower dose of ab to kick in, but I've had no tummy pain and there has been a gradual improvement... Until today :( I've got a fine breakout today, but hormones are playing up at the moment so I'm putting it down to that. I'm going on hols to the sunshine in a few weeks and I've already accepted that my face is going to be bad then. Even though I use la Roche high factor sun cream, a hat and try my best to keep my face out of the sun, my face just doesn't like the heat. It's worth trying the laser, otherwise u'll always be wondering if it would work or not. 

 

14 Posts

rosy red  ·  26 May 2014

@Klancy ...How are you getting on with the new antibiotic ? I have a month to go before my IPL which I'm very anxious about :-/ and I'm undecided which is the best option

 

26 Posts

wissendas  ·  01 May 2014

I lived in Germany where my local GP used Homeopathic medicine as 1st choice and then western medicine.

The results were great for my son at the time and since then i have gone on to use it as 1st choice for my family. I am a registrered nurse also , so i am not anti western medicine but am a firm believer that alternative medicine has a place in health care provision. I have also lived in China where TCM is the 1st medicine of choice for chinese people and where it is used alongside western medicnie with great results.

Many health issues are diet related and the body's system is often imbalanced due to poor diet or intolerances that people are unaware of, therefore i believe more information on diet should be available to patients , doctors in the west are not educated on nutrition therefore they do not give dietary advice for the most part.

I feel for children and their parents being prescribed pill after pill when a dietary change would make a massive difference to thier well being. Thousands of Irish people have Asthma and skin disorders, many could be better handled with dietary advice. Dairy products should be avoided by Asthmatics but nobody tells them this. Their are other alternatives out their to ensure enough calcium intake, another point calcium intake is irrelevant if your Vit D levels are low. Vit D is needed to ensure calcium uptake from food ingested, how many of us are taking Vit D supplements to ensure our levels are maintained.

 

3 Posts

Nan Rehill  ·  30 Apr 2014

Hi 

I forgot to say that im not selling this product or promoting it in any way. It was recommended to me and in desperation I tried it, also on googling it I found out it had no side effects it is supposed to give you the same benefit as eating 4lb of brockley which contains cholorphyl, which in turn cuts down on acid in your system which is supposed to make rosacea worse.

 

3 Posts

Nan Rehill  ·  30 Apr 2014

Hi Phytolife is a synergy product, if you google synergy you will see it in their range.  I think it costs around 25 euro and lasts approx 40 days, after taking the first bottle twice a day I found great relief. I hope it works for you as I tried everything lots of different tips like washing my face with head and shoulders classic and it did improve the itch on my face, and putting a dab of tee tree oil on a cotton bud and it also helped spots, but I really think the synergy drink worked for me.   

 

14 Posts

rosy red  ·  30 Apr 2014

Thanks Wissendas , I will try that :-)!you mentioned trying a homeopathic before?have you had any experience with one yourself?

 

26 Posts

wissendas  ·  30 Apr 2014

together with your diet and exercise, take Raw apple cider vinegar  daily. You can buy it from the health store. it lasts for ages, just 2 teaspoons with a mouthful of water and away you go.

Best health to you all.

 

14 Posts

rosy red  ·  29 Apr 2014

Hi Klancy , to sum up that last point if you have poor digestion or digestive problems it most likely is related to your rosacea and by resolving those issues through your diet you will see an improvement ... hope all of this is of some help to you :-)

 

14 Posts

rosy red  ·  29 Apr 2014

Hi Klancy , I forgot to mention that the naturopath is doing up a diet plan for me to follow for a period of 6 to 8 weeks.I really do believe that your diet has an awful lot to do with how severe it is. I was shocked when I kept a food diary for a few days at just how bad my diet currently is. She took an in depth look at my lifestyle , well being and my general health.I have to say I was very pleased with this approach taken , to find out the source or sources of my rosacea and my entire well being as a whole rather than the GP sending you packing with antibiotics and a cream without even addressing or giving advice on what to avoid etc. , giving that this is mainly an INTERNAL condition all be maybe hereditary as in my case.Apparently ppl with rosacea have low stomach acid , low pancreatic enzymes and this leads to the presence of unfriendly micro organisms , essentially we have abnormal gut flora. The problem supposedly with the antibiotics and cream aside from them only working when in use is that the antibiotics kill both the bad and good flora in the gut .You also cannot take tetralysal if you are trying to get pregnant , which also sets alarm bells ringing for me .I just don't understand how these antibiotics can do you no harm but yet I was told that if I became pregnant my baby could end up deformed!!BTW... She had treated another patient with rosacea that was worse and the pustules they had have now disappeared and the redness has improved. I'm not expecting a miracle but this sounds encouraging.

I have started to do a lot of exercise in recent times and I'm just wondering has anyone noticed their rosacea worsening as a result of this? I definitely think when I flush now it has spread to other areas!

 

14 Posts

rosy red  ·  29 Apr 2014

Hi Marey , thanks for the info , it gives me great hope when I hear of success stories :-). I like yourself have been wearing stage make up daily for years up until 6 weeks ago when I decided enough is enought and have not worn any since.I'm slowly coming to terms with my appearance but I'm even more self conscious now that my face is fully exposed to the world.I really hope this IPL works for me , I swear if one more person comments on my face I'll cry ....ppl are like 'oh you got all Sun burned' or 'you have the cold' aka you look crapFrown!! I would really appreciate if you could keep us updated on this forum after your next treatment/treatments on how you reacted to the IPL and if you have signs of further improvement , I understand that these sessions have to be spaced 3 to 4 weeks apart. Most importantly DID YOU NOTICE ANY REDUCTION IN FLUSHING ? , that is if you suffered from this also . They say that it only improves existing facial redness but it will not reduce or rid you of flushing.Do you mind me asking you what type of rosacea you have?

Hi klancy , I'm sorry to hear that :( . Did the lower dose of tetralysal not work for you ? I went to see a naturopath yesterday . Did you ever try tackling it by changing your diet? That is the approach I am going to take for the moment and see how I get on.

 

4 Posts

Klancy  ·  29 Apr 2014

Hi Rosy Red, I had it done in Therapie, Cork. I found the staff excellent and v informative. It HURT, but it is over quick! I was red after for an hour or so but nothing too bad. 

I have got a new prescription for Efracea. I haven't started them yet, but will tomorrow. I can see another few outbreaks starting on my face :(

 

1 Posts

Marey  ·  28 Apr 2014

Last Week I had my first treatment of IPL laser treatment in Anne mc devitt on Wicklow street. I wasn't expecting a drastic improvement in the first session but I definitely have noticed a difference. My nose and cheeks were really red the last ten years and I can see a difference alteDy. I know since the 1st treatment I will need at least 2 more but I have to be honest, it's well work it. They charge about €125 a session or 3 for €300. It seems like a lot of money but if like me you have lived with wearing stage makeup everyday even in the height of the summer, I would recommend it!

 

26 Posts

wissendas  ·  25 Apr 2014

Naturopath encompasses several forms of therapy, dietary, herbal, massage,iridology, whereas Homeopathy is focused on finding one natural medicinal remedy to suits the clients care.

 

14 Posts

rosy red  ·  25 Apr 2014

@Surfer 808, I'm going to Dr.Wendy Lynch Rooms for the IPL. My GP referred me to her , however I don't know of anyone myself who has had experience with that dermatologist or the clinic itself.She prescribed me what my GP already had and recommended laser for the thread veins.It's a 180 per session , not cheap I know but I would try anything at this stage. I have booked it in the summer who I'm on hols and in the meantime I'm going to try the natural route before taking tetralysal etc.@Wissendas I have booked an appointment with a naturopath for Monday ,please forgive my ignorance but what is the difference between a naturopath and a homeopath?thanks in advance

 

26 Posts

wissendas  ·  24 Apr 2014

to all those suffering Rosecea, try changing your diet, excessive intake of tea,coffee, alcohol, spices as wll as stress are contribuiting factors.

Would you consider instead of taking drugs, going to see a homeopath and getting natural remedies to treat the symptoms?

 

11 Posts

Surfer808  ·  24 Apr 2014

@ rosy red, Where are you getting your IPL done and how much is it costing? Very interested to see how it goes for you as I'm seriously considering going for it too, thanks.

 

14 Posts

rosy red  ·  24 Apr 2014

No problem Klancy , I am too well aware of the effect this can have on your confidence. I have to say that is really disappointing to hear the IPL did not work , I was pinning all my hopes on it :( , at the same time maybe its no harm for me to be aware of this now. I have the tetralysal and all but I just can't bring myself to take them.I also suffer from acne rosacea:( , do you mind me asking you where you had the session/s?how many did you have?did it damage your skin in anyway?was there much downtime needed?

 

4 Posts

Klancy  ·  23 Apr 2014

Thanks Rosy Red! I was on to the doc and she's going to give me a lower dose of the drug. So I'll try that for a week.

Ive already done laser and didn't notice any improvement. Maybe though that's because I've acne rosacea? I hope u get better results!

 

14 Posts

rosy red  ·  22 Apr 2014

@ klancy , I would go to your doctor ASAP if you have not already, maybe its an unwanted side effect of the medication that some ppl get when they start taking it but I would contact your doc to be on the safe side.Unfortunately I have no experience with tetralysal but I'm going to go to a naturopath very soon and I'll keep anyone interested updated on my progress.I also had an IPL test patch today and aside from a small bit of redness which has nearly disappeared already my face looks fine.I'm going to go ahead with this treatment in the next couple of months and will let you know how it goes.If you continue to use tetralysal or use a different medication I would be interested to hear what the results were like for you.

 

4 Posts

Klancy  ·  19 Apr 2014

Hi, I started tetralysal 1 week ago and I can already see it working on my face for acne rosacea. Only problem now though, is that I've started getting awful tummy cramps and nausea, so much so that I've had to stop taking them. I took them in the morning after a big breakfast. Has anybody else experienced this? Is there anything I can do to help this, or do I need to go back to my doctor and ask for something else. 

 

4 Posts

lmcc  ·  19 Apr 2014

Nan rehill I would be very interested in phytolife im the same as you open fire cause my skin to itch and burn.. I think that would make sense that my ph balance is off. Would like to no more about this product.

 

4 Posts

living in hope  ·  15 Apr 2014

I got rosacea about two years ago. I was devastated and paranoid about it. I did a lot of research and tried so many things . I used antibiotics but no good. Used a gel prescribed by doctor to no avail. It made it worse. I now have it under control most of the time. I use all oil free products by Avene! In particular their anti redness range. I use Estée Lauder double wear foundation which is great. I avoid bananas which drive my skin crazy and tomatoes to a lesser degree. I also have discovered that swimming is great, it must be the chlorine. I have also started more exercise , walking and running. I still get occasional flare ups but I even venture out make up free now sometimes. I do believe every case of rosacea is different but it can be managed. It may take some months and playing around with diet and products but it will be worth it.

 

11 Posts

Surfer808  ·  15 Apr 2014

Does anyone know of any good places that do IPL for rosacea? I've heard that beauty salons are to be avoided. Thanks.

 

14 Posts

rosy red  ·  11 Apr 2014

 have Acne Rosacea and my GP prescribed me rozex as a topical antibiotic aswell as tetracycline.I have broken capillaries on my cheeks along with general redness.I flush often after exercise , changes in temp , and often for no apparent reason,this is the most embarrassing for me.I also have RAYNAUDS when both combined they are not a good look.I was referred to a dermatologist who wanted to prescribe me tetracycline also and suggested laser for the broken capillaries.I'm not keen on taking either of the antibiotics as who knows what they will do to your body long term?! That being said I would be interested to hear from any of you who have used these products,what were the results if any during and after use?Now back to the laser , well my dermatologist recommended 6 to 8 sessions with one possibly needed each year there after.I'm quite interested in this approach as I can avoid taking the antibiotics but also quite anxious about the procedure given some horror stories of peoples reactions to it.I'm unsure yet what method will be used I understand IPL is the most effective.Have any of you out there had this treatment?how many sessions did you need?what was the down time after treatment?did you notice any negative effects from it months or years later?did old or new veins re emerge?did it help with general flushing?Finally and most importantly where did you have it done and what was the doctors name?Lastly but not least I would skip all of the above if anyone knows or has treated there acne rosacea using the NATURAL approach?Please reply I would be so grateful for any advice:-)I'm booked in for a consultation for the laser in the coming weeks and I presume they will patch test me then so should I go ahead with this or not?Thank you all so much in advance :-):-)

 

3 Posts

Nan Rehill  ·  16 Mar 2014

I got Rosacea last year and went on antibotics for six months and they didnt work. Two months ago a friend told me about sinergy phytolife and I am on it a month now and my skin is 90% better, even when out in the cold weather I have no burning or itching anymore.  Phytolife contains choraphyll which regulates the PH balance in your body. I have researched the problem and found if you blood is acidy Rosacea can be a symptom.  I take two cap fulls in a glass of water each morning and my skin is so soft and clear, it also clenses your liver and is great for overall health.  I hope this may help people suffering with rosacea, as my life changed completly when I developed this condition. I couldnt go walking as the Heat or the cold set it off and even heat from the oven or steam from the iron really annoyed my face.  I couldnt sit in a room with an open fire as my face would burn and itch. I could only use simple cream I also had facial swelling and lines on my face.  Now i can use regular face cream, makeup and soap.

 

14 Posts

rosy red  ·  14 Mar 2014

@rosy cheeks , how did you get on with the natural approach?did you come off the antibiotics?did you find any relief or cure from it after all this time?I am suffering with the same condition I have the red veins, red cheeks, frequent flushing and itchy skin.I would really appreciate if any other fellow rosacea's could offer me some advice on what is working for them?I went to th GP and was prescribed rozex and tetralysal, now with both purchased I can't face the thought of putting these poisons in my body and all for a short term cure.Have any of you used these products and are they effective?my preference would be to treat my condition naturally, if any of you have had any success using this approach I would be very interested to hear.Im really considering IPL or some form of laser therapy as an overall solution to this problem , so I could avoid taking any medication.have any of you tried either or could you educate me on other therapies?did it work and did it last?I would be really grateful for any advice you can give.I have suffered with Rosacea since childhood but I always used high coverage make up from teenage years until quite recently so in effect I was hiding behind a mask all those years.I decided that I was fed up having to wear loads of make up to hide it and felt that this might be contributing to my acne so I started wearing a very light coverage,only then did years of self loathing my appearance emerge to the surface.I never realised how much this had affected my confidence all these years.I also have raynauds aswell which dosent help matters,but I still remain hopeful there is a solution or at least a way to greatly reduce the appearance of it. Im quite down about it and very conscious of my appearance thus leading to my low self esteem please reply any advice would really be appreciated...in the meantime im waiting on an appointment with a derm

 

33 Posts

Chrisita  ·  22 Oct 2013

Mine seems to be linked to anxiety also,as well as digestion. My Dr recommended Betaine Hcl and I seem to have high requirements, 4000mg with every meal. My brother who has the same problem does well on 10% of that, but unlike me he is not a very stressy person.

 

1 Posts

Redondo  ·  11 Oct 2013

Hi All

Been searching the web for information on Rosacea. Can't believe there's so much inconclusive info about a problem that's so common. I believe I'm at the early stages of development but because I'm a guy and only 31 I'm worried that in five to ten years it could be quite bad.

Although I drink and excercise a bit I believe stress is my main trigger because the early signs started two years ago when I went back to college part time while working full time. My facial redness has also accelerated in recent weeks and for the first time I have felt a warmth/slight itching on my cheeks. This co-incided with the submission of my final paper which I found quite stressful.

So happy to have found this blog because you guys have shared so much practical exerience. My GP and chemist both told me it was dry skin but the moisturisers have done nothing. I think I will start on the Zinc with immediate effect and combined with the hopefully reduced stress levels I can start to see a regression. Any other advice would be much appreciiated. Will Report Back.

 
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