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(Monday, 22nd Dec, 2014)

Psoriasis

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4 Posts

russellie  ·  26 Sep 2012

Hi All

A bit of an oldie I am afraid. just getting over a heart attack and put on PLAVIX unfortunately this has re activated my psoriasis that was dormant for 12 years. 

looking for a support group that can help as side effects from medication seem to  be making it unbearable

Russell ( russellie)

 

2 Posts

KC!!  ·  04 May 2012

Hi I am 21 years old n was diagnosed with gutate P bout 4 weeks ago. It started out on my back and now I have it on my back, stomach, chest, thighs and some on my arms the first doctor i went to misdiagnosed it as an allergic reaction and prescribed me prednisolone when it wasnt getting any better i then went bk 2 a different doctor n he said it was psoriasis which was kind of a relief at the time because i finally new what it was anyways i finally had my dermatologists appointment Tuesday n was prescribed Dovobet cream so was just wondering is this cream any good and when will i start 2 see some results??  

Thanks!! :)

 

6 Posts

emmababy  ·  07 Mar 2011

Hi Pete, did you try that link for the drink and cream?

 

11 Posts

Pete  ·  07 Mar 2011

I have been using Aveeno for the past 2 months, it's expensive and did nothing for my Psoriasis so I stopped using it.

 

3 Posts

hellina  ·  05 Mar 2011

I am using AVEENO intesive moisturiser and the difference is unbelieveable. Its the best so far and very cheap. you can by it in any chemist.

 

6 Posts

emmababy  ·  03 Mar 2011

Hey all, don't suffer from this myself but my sister did for years, as did my Mam and Grandad. My mam brought her to skin specialists and nothing seemed to work long term at all, she seemed to grow out of the worst of it but could never use any make up etc on herself. About a year ago I got some information on products as I was hoping to set up a business based around them. I asked if I could try a range of them and if they worked over a period of time I'd get involved. I tried one of the creams on my sister along with a drink, after about a month there was a huge difference she was down to tiny patches behind her knee and elbow, she didn't bleed or flake anymore, I did start up recommending and selling these products as a business almost a year ago and it's still working for her. Also my neighbours had a son who suffered from an extreme form of Epidermolysis bullosa which he sadly passed away from aged 15 and while I was chatting to his Mother I mentioned the business I'd set up and she informed me the cream I used on my sister was the only one she could use on her son to give him any relief. It's also endorsed by Great Ormond St Childrens Hospital. The cream is aloe vera based with a natural antibiotic I can't speak highly enough of it.

Anyone I can help you can email me on emmakevinbutler@eircom.net and I'd be delighted to give you as much info as I can

 

1 Posts

gizmogirl  ·  17 Oct 2010

My doctor has decided to put me on a course of enbrel injections. Has anyone else taken them?How long do they take to work are they dangerous? I'm nearly 18 and I have tried every cream possible, all light treatments and chinese medicine including acupuncture! P is such a horrible condition but I guess we could have worse, doesn't make it any easier though. Haven't played sports in years, never go out with the girls on a night out as I am covered head to toe! Help!! =D

 

3 Posts

hellina  ·  25 May 2009

Hi have psoriasis for 20 years. Got small spots on elbow 3 months after my daughter was born. Have tried different treatments but no improvement on my skin. I must be very brave i wear short sleeves t-shirts, sleeveless dresses and skirts yes i do get stares. family members also has the condition and my uncle is on a new cream but hasn't seen any improvement. Stress will flare mine up. I gave up smoking because was told was a main factor (no it wasn't). I will be trying the nettles and the egyptian magic hopefully one of them will help

 

3 Posts

unclerodge  ·  22 Mar 2009

hi! a few years ago i read about a banana skin used to free this dreaded skin condition. just rub the banana skin on the area.

 

1 Posts

swizzle  ·  09 Mar 2009

RE: Anonymous Posted: 08/08/2001 on 100mgs Zinc per day - isn't there a very real threat of intoxication? I'm interested in trying zinc, but would be extremely concerned about overdosing on it.

I've been recently diagnosed, but suffering from, Nail P for 5 years. It's really, really distressing. I think I'm going to lose one of my thumbnails and it's so awful to have no control over it.

Has anyone any advice at all?

 

1,374 Posts

kissey  ·  29 Jan 2009

hi all

i went to my gp today. i asked him to look at my scalp. i havent got this condition. i was mortified, he found eggs in the back of my head, i have headlice, which i got on satruday night. i was out and a person touched off my hair. i am really mortified over this. i got stuff off him and its in my hair now. thanks

 

1,374 Posts

kissey  ·  26 Jan 2009

hi

i think that i have this condition. i have red blotches on the back on my neck, itchy scalp. can anyone please explain how you get this. this itch is driving me mad, thanks.

 

4 Posts

Ann_  ·  06 Jan 2009

hi,

My friend has psoriasis for over 20 years and she told me that’s the best for her was dr fish treatment which she did in turkey few years ago. I heard that in last year they open skin therapy clinic in limerick where they use dr fish treatment as well. Its worth to try.

www.skintherapyireland.com

 

2 Posts

claud  ·  19 Nov 2008

I just turned 15 and i got guttamate P when i was 13 for about 3 months, it cleared up after using Betnovate cream. Thinking back now, i would say it was due to extreme stress i was under (let's not get into that..). Now i've had it for 3 months but it's far worse and not due to stress, i have tonsillitis (my doctor tells me) and i've been on penicillin for 2 weeks, with no effect, and then i was prescribed stronger penicillin for a couple of weeks with the cream and scalp oil also. But it's had little effect so i've finished that subscription. Now my doctor tells me that i will have to get a tonsillectimy (sp?!) and i have a meeting for Dec 8th...i'll let you know if my P goes away with getting rid of my tonsills....

Claudia

 

7 Posts

smurf  ·  21 May 2008
Hi Gerry
been on methotrexate 3 months. get my bloods check every week and my arms are clear. just got a few red patches on my legs. this is the first time i have been able to wear short sleeve tops in nearly 20 years. first time living you might as well say. bit scared though of what you just said. please god i don't get any problems ... cause creams just do not work for me. i am 40 this year and i'm hoping to wear a dress for it. so please god it keeps working with no liver damage. please do keep in touch and if there is any other stuff that will keep it away. i would be very interested. thanks gerry.
 

3 Posts

Gerry  ·  15 May 2008
Hi Smurf, Methotrexate done nothing for me at all just made the lesions real sore. was on it for around six months having blood checked every month. I didnt think any side effects had occured, until I was involved in a serious car accident!!!! had to have a body scan, (was unconsious) when I came too , I heard the doctors discussing serious liver damage and putting it down to heavy drinking of alcohol. when I said to them "I DONT DRINK" they seemed astounded, when I told them of Methotrexate , they blamed that ................so watch what your doing Smurff, its heavy stuff , and you dont know its side effects until its too late!!!!!!!!, I am sticking with my topical treatments and the latest one is working fine , dermacinz...hope that helps ...Gerry
 

7 Posts

smurf  ·  13 May 2008
hi Gerry,, could you tell me how you got on with using the Methotrexate please ? I am on that the last 3 months and finding it slowly working for me, just need to get rid of the redness now. did you have any side effects to using Methotrexate....never heard of thistle cream. some one said nettle cream. any advice welcomed.. Smurf
 

- Posts

Anonymous  ·  12 May 2008
Hi Smurf , cant tell you where to get the Thistle Cream, but I would certainly recommend the company in my last post, like you I was sceptical about most, but its worked for me and I had it bad ,..... Gerry
 

7 Posts

smurf  ·  10 May 2008
Where can you get nettle cream? would be really interested in trying it
 

3 Posts

Gerry  ·  09 May 2008
Hi I have Psoriasis for 30 years ,and have undergone serious tratment such as methotrexate, I recently hear of product Dermacinz, on the Gerry Ryan show on 2 FM , i have now been using them for 18 months , particularly on my scalp , found them really good for keeping the scaling and redness away , although it hasnt cleared up totally I can now feel comfortable going out in short sleeves this week with the glorious weather we have had ......hope it helps www.dermacinz.co.uk
 

- Posts

Anonymous  ·  24 Nov 2007
Hi
I suffer from allergies and severe psoriasis and have been having kenolag injections which not only reduced my allergy systoms but cleared my psoriasis. My question is has anyone used kenolog injections three or four times a year or knows of any side-effects of taking kenolog.
ann
 

2 Posts

pixiebean20  ·  19 Nov 2007
I have had eczema since i was born and have dealt with it all over my body, on my hands, head, breasts, feet, neck and all over the rest of my body. In particular i get it in very cold weather, on my mouth and all over my neck, it looks like i have a scaly scarf on when it's drying out. On my feet it is quite irritating as you can imagine. Under my arms is very painful. I have tried everything, herbal teas, light treatment, ointments, everything imaginable and nothing has worked 100%. I have used betnovate and dermovate from birth and emulsifier. i have tried all the shower and moisturisers offered and none of those have ever worked. Currently my eczema is in very bad condition, weeping and the like, i currently am using sanex on my body which has produced no adverse effects and clinique as my facial products and this has worked quite well. my skin is very dry at the moment, the weather is quite cold where i am so i am finding it hard to keep my skin moisturised. does anybody have any tips of anything new on the market for eczema?
 

11 Posts

Pete (AYS30672)  ·  11 Sep 2007
Hi Smurf. I just read your message. Sorry to say that the Doctor has found himself several other people with Psoriasis as no one on here seemed to be interested in trying the Nettle Cream, it's a real shame as Psoriasis has completely disappeared. The Doctor could not wait any longer as he needed to get results so he could market the Cream, I will keep you posted as and when he starts producing it. Cheers. Pete.
 

7 Posts

smurf  ·  07 Sep 2007
hi . just reading the mess ,,and i would be interested in trying the nettle cream..

looking for magic cream.
 

- Posts

Anonymous  ·  08 Jul 2007
This is a good Psoriasis website I found with someone's story: http://www.mypsoriasistreatment.com
 

2 Posts

ken (kennet)  ·  28 Jun 2007
The Psoriasis Association of Ireland can be contacted at www.psoriasisireland.ie
The site contains details of public information meetings around the country, background details on the different types of the condition, contact numbers of committee members and a discussion board.
The Association is holding its annual convention in Cork on Saturday October 20th.
Psoriasis Information Week took place in May.
People can join the Association for a nominal fee. Or they can contact Caroline Irwin, Chairperson on 086-3395308.
One way to educate the general public about the condition is for people with psoriasis to tell their story through the media.
It was through this method that the 'Association was formed.
If anybody wants to tell their story they can contact Caroline or Ken Curran on 087-2975135.
 

- Posts

Anonymous  ·  05 Jun 2007
Hi, My girlfriend's dad has a serious psoriasis condition, If it keeps going like this he won't be able to walk at all!!, he saw a dermatologist a couple of weeks ago (it's not the first time), he was given a different cream to use and has another appoinment for the end of July, it's not working and he is in real pain, we are trying to get some help but none seams to be able to help us. he cannot wait til the end of july and the only appoinment we could get was by going private which is going to be more than expensive. Is there anyone that can help, or give advice
 

11 Posts

Pete (AYS30672)  ·  01 Jun 2007
Hi all. I have a Doctor friend who makes creams from Herbs and Natural Ingredients. I was telling him about the Nettles that I was using and how well they were working, now he is interested in trying to make a Cream using Nettles and has asked me to ask anyone on here would they be interested in trying the Cream. He is sending me a sample next week for me to try but he wants more than just me to try it. Anyone who is interested please let me know and I will forward the details. I think the samples might be free but I am not sure about the P+P as I am waiting on him getting back to me with more details. His last message to me was "Together we will beat Psoriasis".
 

11 Posts

Pete (AYS30672)  ·  31 May 2007
To Anonymous posted on 01/05/07. I am sure if we all had to ask ourselves the questions that you asked, we would have to admit that we have all felt like you. Psoriasis is one of the most depressing Skin Complaints anyone can have and I fully understand and agree with everything you said. It's the same old same old,"I tried this" "I tried that" If I added up all the money that I have spent on trying to find something to help my Psoriasis it would be into the 1,000s. Try not to give up, there is always something out there that might suit you. And just for an update about the Nettles. My Psoriasis is still getting better, if it continues like this I reckon it is going to be all gone by the end of June, now I just have to worry about the Staining that it has left me with on my Legs but I know from experience that it quickly goes, time to look out my Shorts !!! Good luck to you all. Pete.
 

30 Posts

susan (Penny2)  ·  27 May 2007
re above message-thats great,I had a similar experience. Having struggled with dermatologists,alternatives and lots of expensive options,I eventually went to a different Dermatologist and she just changed my prescription.It worked within 3 weeks and has never come back to the same extent(3 years ago) slightly on scalp due to stress but manageable.I think sometimes its just a change of meds and if its ready to go it will react accordingly.you have to keep trying everything and questioning Drs. G'luckxx
 

11 Posts

Pete (AYS30672)  ·  27 May 2007
I think I have found something that is really helping my Psoriasis. Now that Summer is almost here the abundance of Nettles are everywhere. My Sister came to stay with me and was shocked to see how my Psoriasis had got worse over the years. She suggested Nettles !!! and had said she had heard of people using them for Psoriasis. I grabbed a bag and Rubber Gloves and we headed to the River. I gathered as much Nettles as I could and went back home. There I washed them in cold water several times (as there were some Bugs on them) I then put them in a Blender with some water and blended them until they looked like a semi thick paste. My sister suggested to use some of the nettle paste to make a Tea with. Strain it through a Tea Strainer (add some Honey to it as it tastes foul) I strained the rest of the paste into the bath and soaked for 30 mins. I have been having this bath every other day but drinking 1 cup of Nettle Tea everyday. The difference after just 2 weeks is amazing, my Psoriasis is clearing up and there are no itchy scales falling off me. I would be interested in hearing if any one else has done this, I am not sure if it works just as well with Dried Nettle Tea Bags as I know you can buy them. I hope this helps someone else, if you want to get rid of your Psoriasis you will try anything. Good luck. Pete.
 

- Posts

Anonymous  ·  24 May 2007
To the previous poster - I agree, you shouldnt have to "just live with it!". I've had psoriasis for over ten years. Like most people, I had tried all the standard treatments - coal tar, steroids, various herbal treatments, homeopathic remedies etc. Nothing helped. I had heard about UV treatment many times but was reluctant to try it due to concerns about skin cancer. But I was at my wits end so I went to talk to a few dermatologists. The consensus was that when used correctly, it is safe. So I decided to give it a go. While I was on the waiting list, my dermatologist prescribed a number of steroid (and non streoid) creams to get me started. I thought, great, here we go again with the useless creams! To my amazment, I began to see significant improvements after about a week. On my body, I used Dermol (steroid). On my hairline and privates, I used Elidel (non steroid). On my scalp, I used Dermol Scalp (steroid) and in my ears, I used Betnovate (steroid). By the time my first appointment for UVB (Narrow Band) came round, I was already about 70% improved. The UV treatemnt cleared up the rest in about three months. It was three visits a week for three months. You start on very low doses (I think my first was only 17 seconds), and get progressivly higher (the last was about 3 minutes). I have no doubt that without the UV, the P would have returned to its former nasty state, but the steroids certainly sped up the process. The UV sunbed was not useful for the scalp however so I purchased a home use UV device from Daavlin in the US (the same company who manufacture the UV sunbed my dermatologist has). This can be used for the scalp and to control localised outbreaks (of which I havent had any yet). See http://www.daavlin.com/dermapal.shtml. It cost US$520 which is quite alot but hopefully worth it. My insurance covered all the dermatologist consullts and the UV treatment. I currently have a claim in to them for the home device - hopefully they'll cover that too! I still have P under my nails which I havent had much sucess with, so if anyone has any tips for this, please share them. I'm not so concerned about the nails (although I'd obviously love to get it cleared up to), it was the scalp and body that was causing the most distress.
 

- Posts

Anonymous  ·  01 May 2007
this has taken me ages to write, i usually jus read everythin but never reply. i have had P since i was a toddler and im now 22, i have tried everything and anythin as im sure many others have but to no avail. im utterly sick of it and have noticed that alot of these msg's are upbeat and happy. i just cant understand how to remain upbeat when i've been told to learn to live with it, i have been living with it for nearly twenty years and in all honesty it is not a normal life. i understand that stress an stuff makes it worse but in my head i keep thinkin i wouldn't be strssed if i didn't have it in the first place, in my understanding i can see many other hypocrisies such as drinking and smoking make it worse. i obviously didn't drink or smoke when i was a child and now that i do i dont see any difference. also when people tell me its to do with my diet i think to myself im goin get stressed out about what im eating and in essence make my P worse anyway. when i read in these msg's "i tried such an such and now my P is cleared" do you actually mean gone? i have never once in my life been cleared of it, i have had the odd occasion when it may appear to b abit better but it never lasts.
im sure many people reading and writing these msg's have experienced bad times to do with their P and when im told to live life as normal i feel such anger, why would i want to subject myself to all of that again it just doesn't make sense. i know im puttin a downer on this whole thing but i cant help it.
i like to go out for a drink with my friends, its probably the one proper stress reliever i have, why should i stop. it seems to me to b a doomed if u do doomed if u dont situation. by living my life normal im doing it damage but also if i change my life i'll still b doin my P damage.
has anyone noticed that no matter how you try avoid them you get loads of colds an flu's, when i go to my doctor he say's im just run down but in all honesty im a 22 year old young lad that occasionally shows up in college and really other than the P has no stresses in his life. how could i be run down?
is no one else sick of the endless lists of creams, lotions, spray's, injections, diet stuff, and much more. if i lived forever i wouldn't have time to try them all and after tryin what u think of as your fair share and not ever seeing any positive results it is very hard not to just give up. i no that treatments work on some and not on others so im not even gona ask for suggestions, jst by writing this i feel a weight lifted so i apologise for the depressing side of the msg but i needed to write it somewhere.
 

1 Posts

sinead (MQN27210)  ·  14 Apr 2007
I have had psoriasis as long as I can remember. I am 32 now and have tried all types of treatments - creams, diets, acupuncture & chinese medicine, cyclosporine, UV treatments... Cyclosporine was by far the most successful, I took that for 4 years whilsh living in the States, very expensive, but worth it as I was completely clear for that time, but the long term side effects are quite serious, I was taken off it eventually because the Doc was unhappy with what was happening with my liver etc. He had mentioned the new treatment (some sort of weekly injection) . I've used Diprosalic (no difference) Dovonex (no difference), Dovobet (quite ood for the first few weeks), at the moment I'm using Decloban (in combination with Dovobet) & finding it V. good. The chinese therapys were great but expensive in the long term - he did acupuncture and then burned my lesions with a burning cotton string (!!!!) soaked in herbs (V. painful), apparently heat is the most effective way to get the medicine where it is needed, their approach was totally different, dealing with thickness/redness of the skin in effected areas, and redirecting the flow of energy through my body, it was definetly effective and I will resume treatment again soon. I do believe if I took total control of my diet (total detox in the long term) & maintained a totally stress free existance, exercised more frequently, I would be free of psoriasis but I am just not willing to give up all of my vices!!
 

1 Posts

Deb  ·  30 Oct 2006
Hi bon, Thank you for sharing your experience with Egyptian Magic. My husband has had psoriasis for 2 yrs and I have been looking for something with natural ingredients to give him some relief. I am going to Whole Foods Grocery (in the US) to buy him a jar. I will let you know if it works.
Thank you again !
 

- Posts

Anonymous  ·  25 Oct 2006
i discovered this amazing healing skin balm which originates from egypt..it is simply called" egyptian magic".i hav had bad psoriasias of the hands for years and after a week of using this product it cleared up..u tend to try anything when ur desperate and i am a physio as well so u can imagine how it bothered me..u can get it on ebay or just goggle it..they hav a homepage as well..madonna swears by this stuff and apparently it is used in hospitals for bad burns..i would be interested in any feedback from ppl who have tryed it also..the ingredients r all natural..olive oil,bees wax,bee pollen,royal jelly,bee propolis.
best wishes
 

- Posts

Anonymous  ·  24 Oct 2006
To anonymous 15/10: Is this dermacinz a product that was recently on Nationwide about a company based in Donegal? If it is the same one, I have heard (a couple weeks after programme was aired) that this product is not medically licenced and that it does not contain any medical products that could cure psorasis....
 

2 Posts

Ned  ·  04 Sep 2006
Hi Noel, thank you for your advice, i am going to enquire about Enbrel injections, i'll try anything, i never realised the nightshades affected diet, ive heard alcohol, dairy and gluten can affect the condition but i am going to cut the nightshades out of my diet and see how that goes. thanks again
 

- Posts

Anonymous  ·  01 Sep 2006
Hello Ned.

I am 45 years of age and have had psoriasis for over 25 years. I too have tried every treatment under the sun. They all work but only for a short period and then the psoriasis returns. Because of the intractable nature and extent of my psoriasis my dermatologist has put me a course of Enbrel (Entanercept) injections. Such systemic treatments are a last resort and, frankly, I don't know what the long term benefits are. It has worked so far. The important point is that such treatments show that new work is being done all the time on the condition and that you should consult your dermatologist. Insofar as your pains are concerned I don't know if you have psoriaitic arthritis. I had that in the past but I found that cutting out 'nightshades' hugely improved the condition, nightshades being tomatoes, potatoes, peppers and paprika.

Hope this helps.
 

2 Posts

Ned  ·  01 Sep 2006
Hi im 25 yrs old and have been suffering from psoriasis for the past 20 years. the main trigger of psorasis for me is stress, i was bullied at school at a young age which intially triggered the condition. Ive suffered from both gutate and plaque psorasis, have been in and out of the Mater hospital for treatment, tried all the steroid creams on the market, UV treatment, faith healers and natural creams made from urea. Ive even had my tonsils removed to improve my condition. i still suffer from the condition and am currently controlling it with diprosalic ointment (steroid) on the skin, pragmatar, diprosalic scalp application and olive oil on the scalp and modersone ointment and silcocks base on the face. It controls the condition but it always comes back once i cease using the steroid creams, Im getting really sick of using these steroid creams and am beginning to see the side effects of them. Im so depressed and its gone to the stage i have to plan when im going out socialising 3 weeks in advance so i can get my psorasis under control for 1 night of socialising. Currently i cant get modersone ointment for past 3 months in any chemists, they say its currently out of stock for past 6 mts. can anyone tell me if there is any new treatments available preferably natural creams as i have left my dermalogist as was with him for 5 years with no great results. Also i have started experiencing pain in my arm and knee for past year and was wondering if anyone knows could this be psoriatic arthritis> ive heard about zinc tablets also, has anyone tried them.
 
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