Mirena Coil

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2 Posts

elizabeth123  ·  13 Dec 2010

Hi Everyone

The past two weeks haven't been too bad re heavy bleeding. I'm taking Primolut, which helped stop the bleeding up until Saturday. It's back again, despite the pills, but not as heavy. My moods though would make Mr Hyde seem like a saint. Whatever is in the hormones is making me feel like I could jump out of my skin and I have to bite my tongue all the time and force myself to stop crying. It's just three days to go before my Balloon Ablation and I'm praying it works.

 

12,083 Posts

Anonymous  ·  29 Nov 2010

Hi snuffy, just so as you're not alarmed. There is no documented scientifically proven link between the mirena and hypothyroidism - the majority of which is medically proven as being auto-immune.

I am so sorry to hear of your sister, Liz and really everything possible is being done for her and that she recovers. It may well be worth your while being gene tested for breast cancer as this is medically recommended in many European countries where a female relative has had breast cancer. 

However, I believe it has already been pointed out to you that there is absoltuely no proven sceintific corelation between mirea and vitamin D deficiency. In fact 95% of all Canadians (and a percentagfe of Irish too) have vitamin D deficiency. Arthritis is a result of one of two things - broadly speaking It is either auto-immune - definitely worth checking out consodering your thyroid problem. Or with older women, it is as a result of wear and tear.  

Did you have ablation done. Because that is definitely an option, without which you cannot consider to have exhausted all.

 

223 Posts

Canadian Liz  ·  27 Nov 2010

Hi Snuffy - I had a hysto recently due to the damage Mirena has done to my body.  My team of specialists exhausted all options before we reached the conclusion that it was best.  What you are going through is a mirror of what I endured all because of Mirena. 

I am relieved beyond words that I don't have breast cancer as my sister is very ill with stage 4 and she has bone cancer too.  So my breast cancer specialist/surgeon will be monitoring me very closely from now on due to the swollen lymph nodes and lipomas in my body.  Surgery soon!  All the medical problems I'm having now including arthritis in my legs and vitamin D defiency I never had prior to Mirena but it's all related to that.

Keeping you in prayer :)

 

223 Posts

Canadian Liz  ·  27 Nov 2010

@ Anon - I'm very aware that she contacted her gyne.  I'm just informing her that NO ONE on here has a medical background or qualifications and thus she should always consult her gyne.

And I'm not feeling well and I never will be again due to Mirena.  I'm disabled!

As for Synthyroid many take it (I know some people on it) and a majority have no issues.

So as usual we agree to disagree.  I'll continue to following the advice of my gyne and endo who are terrific women!

 

1 Posts

snuffy  ·  26 Nov 2010

Hi Canadian Liz

Thank you for your comments. I'm stunned to hear about the Mirena and its effect on the thyroid. I have had an underactive thyroid for the last eight years and like you, am taking medication for it. It never dawned on me that the Mirena could have anything to do with it. I've had so many niggly things wrong with me that now, in hindsight could have been caused by the coil.

I am having the balloon ablation in the middle of December as my gyne wants to exhaust all avenues before submitting me to a hysto as it's a major operation. I have been on the Cyklokapron for weeks now and found that I got a build up of huge clots that came away all at once and cause a massive bleed afterwards. I ended up in A&E again two nights ago and met a wonderful young gyne who prescribed hornones. I stopped taking the cyklokapron and while I'm still bleeding, like a heavy period, the clots are much smaller and easier to cope with. I'm praying it stays like this until my operation. Sadly, I'm afraid to leave the house in case the massive clots return, but I'm counting the days until the operation, 20 to go.

Delighted to hear your results on the breast cancer. It must be a load off your mind.

 

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Anonymous  ·  26 Nov 2010

Hi Liz, I think Elzabeth had already consulted her gyne, who had suggested the ablation.

Glad to hear that you were looked after and feeling well and of course that you got the all clear as regard breast cancer.

One point tho, one reason I had the mirena was that I am hypothyroid, in fact I have spent the last 9 years researching the condtion via medical and scientific resources and I and was medcally advised by my gyne as well as an Endo that the mirena was recommended as it had NO clinical association with hypothyroidism, whereas with the combined pill can result can increased need for thyroud hormone. . Hopefully the synthroid will work for you as so many people have problems with it. The about . com wenbsite has an absotuely astounding guide to all things thyroid. It is most helpful and contains excellent accurate medical advice. But of course as is clinically proven, the vast majority of hypothyroidism in in fact autoimmune. It is however more common in women and especially common approaching menopause.

 

223 Posts

Canadian Liz  ·  25 Nov 2010

Elizabeth123....I too have suffered how you describe because of Mirena and unfortunately we are not alone. My recommendation is to consult your gyne about the matter as he or she can advise you medically. No one on here is medically qualified. 

Mirena can cause heavy bleeding and is associated with hypothryoidism. I learned a week ago that I'm hypothryoid and I'm now on Synthryoid and trying to adjust. My endo advised me that many women who have Mirena or who have had it become either hypo or hyperthryoid. Cyklokapron worked well for me prior to my hysto when I had heavy awful periods following Mirena. 

So hysto is done and so glad it's over with. No more periods from hell. Ha ha Mirena I won!

Saw my breast cancer specialist today/surgeon who informed me that thankfully I don't have breast cancer but I do have swollen lymph nodes and lipomas.  Having a 5 cm node removed from my breast shortly surgically and a breast lipoma surgically removed from my underarm and my breast. I will be closely monitored from now on.

Now on permanent disability.

 

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Anonymous  ·  25 Nov 2010

Hi Elizabeth, sorry to her your having such problems. Perhaps a third mirena isn't for you. This can happen with any contraceptive method as a womans body ages - at any age, that certain methods for certain things are no longer as suitable as they once were. When the antibiotoics clear up the infection and I presume that you are no longer interested in havig a baby, I would say go for the ablation. It has a proven safety record and is highly effective for reducing bleeding. Altho it is recommended that women use a contraceptive afterwards.

 

2 Posts

elizabeth123  ·  24 Nov 2010

Hi Everyone

 I have used the Mirena coil for the past ten years to control heavy bleeding. I had my third one put in Nov 1998 and everything was fine until three months ago when I started to bleed with heavy clots, so bad I couldn't chance leaving the house. After the usual scans etc my gyne found the Mirena had come out with the clots. I bled for 10 weeks and had a new Mirena fitted Nov 2010. I am 52 and thought the Mirena falling out was just a fluke and having another one fitted would solve all my problems. Over the past decade I put on about four stone in weight and found it impossible to shift, I also have thinning hair which I put down to my genes. Since the first Mirena fell out I lost 8lb in weight without trying, though I was worn out from the bleeding. As I said I had another coil fitted two weeks ago and to my horror this fell out two days ago. I was admitted to hospital with an infection and given intravenous antibiotics. I was in hospital overnight and sent home yesterday with two antibiotics and cyklokapron. During my hospital stay the bleed became very light, but once I got home it started again with large clots. I have three more days of the antibiotic, but if the bleeding doesn't stop after that I don't know what I will do. My gyne has been great and offered to do an endometrial ablation with the balloon method, but it can't be done while I have the infection.

I sitting writing this with three towels in my knickers and I know that once I move I'll have to run for the toilet to allow myself to bleed. I really an at my wits end and just don't know who to turn too.

 

17 Posts

becs  ·  22 Oct 2010

I'm sorry but seriously ladies can we not just stop, act our age and agree to disagree. Liz i hope and pray you get the correct result, you have been thru so much and yes i do think the mirena is horrible but unfortunely this country(IRELAND)does not support such findings but i will never ever touch mirena again its done horrible things to me personally but that is not saying it does the same to other woman. IT'S AN AGREE TO DISAGREE ISSUE. But seriously girls just stop, this is something i'd expect out of my 9 year old and her friends. We need to support each other in what we go thru. NO 2 PEOPLE ARE THE SAME.THAT IS WHAT MAKES MEDICINE INTERESTING.

 

223 Posts

Canadian Liz  ·  22 Oct 2010

Well it pays to have a doctor who is the hospital's chief of surgery and a breast cancer specialist.  Had my ultrasound today on a rush basis.  Lump is actually nearly 3 cm in size and the other 2 remain, all have grown and there are more tiny lumps that are new.  The large lump is near my lung and chest wall.  So now have to wait for the surgeon's office to reschedule a follow up appointment and go from there.  It is believe all the lumps are swollen lymph nodes, but will have to hope they are for now and wait and see.

 

223 Posts

Canadian Liz  ·  19 Oct 2010

Well saw my new specialist today who is the chief of surgery and a breast cancer specialist regarding my 3 breast lumps.  The one lump can now be felt and is growing and is estimated at 4 cm.  She said an updated ultrasound is the first step to see how much it has grown and the others too.  Then we'll go from there.  She did say it might be a swollen lymph node.  She said either way it needs to be removed.  Never had these problems until Mirena.  I curse that thing every day and what it's done to me.

 

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Anonymous  ·  14 Oct 2010

No assumptions made, but I do know nknwo for a fact that a far wider range of options are offered here and in much of Europe. The website which you won't look at bears this out. But good luck to you.

 

223 Posts

Canadian Liz  ·  14 Oct 2010

That's right I don't need to listen to others. I have friends who have had hystos, my sister has, and I have friends who have suffered becuase of Mirena so they of course I do listen to and value their advice. Anyway, I know what my medical experiences are and my situations, you both don't so thus have no right to make false assumptions about my doctors or my medical care.  

 

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Anonymous  ·  13 Oct 2010

"I don't need to listen to others" Ah yes, a classic comment coming usually from people about whom exactly the opposite could be said Well given that you have not been able to avail of options., offered automatically to womenin Irland, Britain, France and even the U.S. with great success, then I'm sorry but you haven't already exhausted all options available. Have you even looked at the medical website I provided in my last post? It has helped countless women who were told my gynes that a hyst was their only option left, to sucessfully avoid it in favour of far less invasive procedures. But then sadly people who declare 'I don't need to listen to anyone' rarely find out their mistake til it's too late.

If the lunps are benign or low risk then of course they would just need furhter monitoring as you're doing and and lumpectomy is not neccessaty, I didn't mean to alarm anyone. But where they do need removal I understand that with referral to the right sufficiently skillful experienced .surgeon lumpectomy can be  performed as close as a coiuple of mmm to the chest wall without cuttinG into muscle tissue. Might be worth considering should the need ever arise.

 

223 Posts

Canadian Liz  ·  13 Oct 2010

Never had a lumpectomy and it's not necessary and can't be done anyway as all 3 lumps are deep in and close to my chest wall.  Had a mammo, breast MRI, breast ultrasound, and a core biopsy on one lump (the other 2 are in too deep so a biopsy is not possible).  Just have to repeat the MRI, ultrasound, and mammo in January as scheduled.  Never had these issues until voila I got Mirena.

 

223 Posts

Canadian Liz  ·  13 Oct 2010

Anon, well I have plenty of experience from a medical perspective so I don't need to listen to others.  I'm in great hands with my gyne and we've already exhausted all options available to me.  Gynecologists in Canada always and only do hystos as a last resort, so it's the right choice for myself and something I've wanted done for quite some time.  It's being done with no regrets.

 

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Anonymous  ·  11 Oct 2010

Hi Liz, glad you got yourself a good specialist. Hopefully you'll have the lumpectomy soon and they will turn out to be benign. Given your family history, it may be a good idea to be gene tested also as a certain percentage of breast cancers have been scientifically proven to be genetic but this can ony be established in individual cases, by gene testing.

If you are wise, please listen to the excellent advice from someone as experienced as Barbie regarding such major surgery, the reason why doctors may push patients towars it, the effects, the real alternatives and possible reasons why less experienced doctors may be unwilling to try them .  

I'm sure there must a discussion on hysterectomy on this site too but if not, do yourself a huge favour and take a look at hersfoundation.org. It's a non-profit medical website all about hysterectomy, its effects and the alternatives.

 

223 Posts

Canadian Liz  ·  10 Oct 2010

Linnie, all of the above yes!  Many women experience such horrible side effects.  Tell your doctor to stick it!  Mine also told me to keep Mirena and I found a new gyne who removed it last Feb. Scroll back and read my personal Mirena story and what it's done to me.

You don't deserve to suffer.  It's your body and no doctor has the right to tell you to keep Mirena in.

I wish you good luck :)

 

223 Posts

Canadian Liz  ·  09 Oct 2010

Well got my referral to my new breast doctor and went to my initial consult and she's really great.  I'm all booked in for a mammo and ultrasound to check the 3 lumps in my right breast in January.  My gyne is no longer handling this issue and felt given my sister having breast cancer and losing her life to that, a breast specialist was necessary.  Hopefully these next round of tests will determine if they are benign or malignant.  It's a waiting game.

Having my hysto in less than 2 weeks because of Mirena and the damage it's done so that's all set up.

And have yet another body cyst so the toxicity of Mirena is not yet out of my system unfortunately.  Had 1 cut out last June, having another cut out this week and it looks like it will be 2 being cut out and stitched up not one. 

 

2 Posts

Linnie  ·  08 Oct 2010

I had merina fitted 7 weeks ago after D and C i have suffered severe pain and have been bleeding a lot i have been bleeding past 2weeks non stop although very light never the less very painfull i have been to me GP over past few weeks hetrys to assure me that it will settle down i also have pelvic adhesions which are adding to the pain he has given Primolut tabs to try stop the bleeding i would like to know has anybody else have these problems im in agony at the moment i just cant keep taking pain relieve i am wondering should i get marina removed i dont need it as contraception i had my tubes clipped 9yrs ago i had 2 c sections and that how i had pelvic adhesions had them cut and divided and ended up having 2 hernia repairs i have suffered for years now with heavy and painfull periods and midmonth bleeding but nothing like the pain im having at the moment did anyone else have similar problems?

 

134 Posts

barbie86  ·  28 Sep 2010

I'm all too aware of how chronic conditions can affect your personal and professional life Liz. I have had endo since the age of 12, and my symptoms include: excessively heavy and long periods (8 days of bleeding so heavy I would soak through a super tampon and night-time towel combined within under an hour); unbelievable pain (to the point of vomitting/nearly wetting myself because it took me 15 minutes to crawl out of bed and a few paces to the loo/being literally delirious and unaware of anyone or anything around me, etc) that no prescription painkillers help; pain during intercourse that is so bad I've blacked out; pain during bowel movements that it so bad I've blacked out (I have to cling to the wall and sink for support so I don't crack my head open); chronic fatigue; and, more recently, constant and debillitating back and pelvic pain to the point where to get through a shift at work I need to take 16 painkillers (2 at 2 hour intervals throughout the day). I am unresponsive to surgery and at 24 I am fated to another 25 years of being forced to stay on hormone treatments and ever-stronger painkillers to lead a semblance of a normal life. When I come to start a family, I may struggle to conceive, and because I will be unable to take painkillers or hormone treatments, will probably have to reduce my hours/days at work as I will be physically unable to work 3 days out of every month.

So yes Liz, having lived with endo for 12 years, I know what it can be like to live with a debillitating and draining condition, and I would never ever describe it as 'minor'. I am utterly thankful that hormone treatments help my condition, so currently the 'only' symptoms I have to deal with are extreme fatigue, constant severe back and pelvic pain, and pain during intercourse which makes my partner frightened to have sex with me (god knows how we'll conceive lol); I dread the day that I either can't take hormones anymore (eg when TTC), or that they stop being as effective.

My post re surgery was out of genuine concern; I am not an expert in gynae conditions but since my endo diagnosis have read a HUGE amount on endo and spoken to several leading consultants. I know enough to know that a hyst is major surgery (as my mum would tell you) and is NOT a decision to be rushed into, or an option to try before exhausting other options. I can understand that you want things to be over with, but please, please consider this carefully; maybe join a forum where women have undergone hysts or who have similar gynae problems and ask about their experiences, and what they tried first. I have seen so many women undergo hysts who haven't realised just how major an op it actually is, and how long it can affect you for both phsyically and emotionally and in terms of after-effects like the surgical menopause; I have also seen many undergo hysts for endo only to have their symptoms return a few years down the line, and these women now have no options left to them, as their hyst was a last resort.

I personally would seek a second opinion before even considering such radical surgery; endo ablation is NOT dangerous when performed by a skilled surgeon and most decent surgeons would want to exhaust other surgical options before performing a hyst. Unfortunately some surgeons are not skilled in less invasive surgery, which is why some jump the gun; I know one woman who's cons tried to push her to have a hyst as he said her severe endo and adhesions could not be treated laparoscopically; she sought a second opinion, had less invasive and radical surgery performed by a top endo specialist, and has delayed the need for a hyst by some years.

 

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Anonymous  ·  28 Sep 2010

Like yourself Barbie, I know of no good competent up to date doctor in Ireland (or France for that matter) who would recommend a major surgery involving organ removal over a less invasive procedure in the first instance. Certainly unheard of here.

 

223 Posts

Canadian Liz  ·  27 Sep 2010

Well all efforts to control the damage done to my body by Mirena have been exhausted so a hysto is the last resort and my only choice to stop my excessive, constant, heavy bleeding.  All tests have been performed to search for other causes of the issue and none exist.  Waiting for my surgery to be booked. 

I can't believe that some on here think it's a minor issue, but if it affected your personal and professional life you'd not make such insensitive remarks.

 

134 Posts

barbie86  ·  27 Sep 2010

Totally agree with anon.

There are risks to any surgical procedure, that goes without saying, but it is a case of weighing those risks up against the potential benefits, and also against the risks of other types of surgery.

I have had 2 laps in 18 months, the first with diathermy (basically, burning of the endo deposits), the second with deeper excision surgery. My recovery after both was fairly quick, and the treatment effective (after my lap and diathermy I could have pain-free sex for the first time in about 3 or 4 years, which was so nice). Unfortunately I have an aggressive form of endo so from now on will have to look at pain management, as while surgery is effective, it is only effective for me for about 1 year. However I'm glad I had both ops as I suffered no adverse effects and was pain-free after my first for about 10 months; hopefully I will get a similar amount of relief this time round, as I need it to recharge (I've been in almost constant pain since early Feb, with the biggest period of relief about 1-2 weeks).

Endometrial ablation carries risks but IMO saying a hyst is preferable is misguided. Hysts carry FAR more risks, and a far longer recovery period; done under keyhole you are still looking at a minimum of 3 months. Added to that you have issues such as the surgical menopause and HRT, as well as risks of osteoporosis. It should really be a last resort and I do not know any good doctor in the UK who would recommend one over less invasive surgery in the first instance. Also, I don't know whether you have endo, but they are now not recommending hysts for the treatment of endo, as the risks of recurrence stand at up to 10%, and the treatment of post-hyst endo can be very difficult to say the least. There are also issues such as for it to be effective, all endo MUST be removed, which depending on where it is or how microscopic it is, might not be possible; there are then issues of whether or not to leave the ovaries; if they are affected they MUST be removed, but this necessitates the need for HRT in younger women, which then in turn increases the risk of endo returning as HRT contains oestrogen which feeds endo. Very complicated and as such, an absolute last resort. Even if endo is not the issue, IMO a hyst should still be a last resort, not a first port of call; the surgical menopause is not pleasant, nor is taking HRT, which has it's own risks, inc an icreased risk of breast cancer. With ablation, the main risk is damage to the uterus (which is why it isn't recommended for those who haven't had children) in which case, if it fails, a hyst can THEN be carried out; but to carry out a hyst based on a small risk is IMO jumping the gun somewhat.

 

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Anonymous  ·  27 Sep 2010

Hi Mozler, I agree.  People's opinions and view need to be respected in a forum like this. Everyones opinion differs but facts do not.

Yet again, Liz, no-one is mocking anyone. The product insert, must BY LAW contain scientifically proven medical fact. This is mandatory in order for the Mirena to licensed and available here in Ireland or the UK. Otherwise it would be impossible for any woman to have the mirena inserted in Ireland. I am glad to hear your application for disability is going well.

It is unfortunate that you are not made aware of all of the risks of Mirena prior to getting it. This is a mandatory requirement of all doctors here, prior to any procedure. A lesson to women who are thinking of getting it is research all the FACTS and ensure you have a highly competent experienced gyne. Anything less would be a disservice to women.

Furthermore, endometrial ablation is in my opinion not dangerous. It has been approved by the ACOG (Amercian association of Gynes) as well as the Irish and Bristish medical associations for decades now as being an extremely safe and highly effective, commonly performed alternative to hysterectomy - which is major sugery, carrying far fewer side effects with little to no long term effects occurent following it. Do the research, for your own sake. Any doctor telling me what you were told would find me running from the surgery and getting a second opinion.International recorded data indicate that the risk of burning is in fact minor. However, this is dependant on not only the skill of the surgeon, (like the mirena) but also the method used. There are several method ablation, which suit different patients. Yes, a small percentage of women can experience regrowth of the endometrium and need further sugery, but personally I would prefer a day procedure under local or spinal aneastetic which is very effective in most cases than opting straight for major sugery and organ removal which carries greater risk and requires months of recovery. Yes, birth control is required after ablation as ablation is not regarded as an effective method of contraception but if your family is complete, you could consider tubal ligation, which again, is a much smaller procedure than hysterectomy surgery. Again, just trying to help.The very tiny risk of mild clinical insulin resistance which has been reported in the U.S with the implanon has been medically confirmed as of no clinical relevance in normal healthy women. It is however, of concern in women who have diabetes, hyperlipidemia or polycystic ovaries who would need to be closely observed if they elect to have the implanon. It is extremely important that this is clarified.  

 

223 Posts

Canadian Liz  ·  24 Sep 2010

Anon, my gyne did discuss endometrial ablation but she doesn't do that procedure it on women because it's VERY dangerous!  A great risk of such a procedure is burning to the uterus beyond the endometrial lining.  Apparently in some women who have the procedure they end up having to have a hysto anyway at a later date due to the procedure having not worked and due to uterine scarring.  Birth control is required after the procedure anyway and I can only use birth control with progestrone, so my choices in that area are very limited and I'm already on Micronor and it no longer works due to the damage Mirena has done.  It no longer controls my bleeding and PMS and I refuse to have anything else implanted in me such as Implanon which causes insulin resistance in some women or diabetes.

 

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Canadian Liz  ·  24 Sep 2010

Molzer, it's always a cat fight on here and such behaviour isn't necessary, but some clearly thrive on picking on others and mocking their plight.  It's been going on for a few years on purpose so I just laugh at  some posters who believe a leaflet, which doesn't list the true side effects of Mirena, is the bible.  Of course it won't, Bayer wants women to use their product so there not going to put true side effects in their procedure and there are LOTS Of side effects of Mirena.

You hit the nail on the head when you said in your post "people's opinions and view need to be respected in a forum like this".  I echo that sentiment, however, there are cliques on this board unfortunately. 

So I have a meeting on Tues with the government agency responsible for handling disability claims.  I've already been approved and will be getting my current income topped up due to my disability.  I'm at tests and medical appointments more than I work these days and suffering financially so approval came as a welcome blessing.  My transportation costs to and from my appointments and tests will be paid for as well.  I'll be getting a drug card, which will pay for medications and services that my current benefit plan through work does not pay for.  My application for provincial disability has been submitted and I have a meeting coming up about that too.  Once it's approved I'll be on permanent disability and not working at all anymore. 

We are only made aware of some of the risks of Mirena prior to getting it, not all of them unfortunately. 

It's sad that my sister and I both had Mirena and we both had to have a hysto because of it, and the toxicity, and the damage it did to our bodies.  Let it be a lesson to women who are thinking of getting it.  DON'T!

 

1 Posts

molzer  ·  23 Sep 2010

Hi, just came across your discussion group, prompted by newsletter email.  Luks like it turned into a cat fight.... pity about that.  People's opinions and view need to be respected in a forum like this. 

Anyhow, back to the Mirena.  I'm on my second, had first fitted about 9 years ago.  Havent looked back!  Have 3 kids, last were fraternal twins and high chance of having same again, so instead of sterilization as I was only just 30, my Doc advised the coil, in case I wanted more children in the future. 

Periods, just a sight spot, the odd monthly cramp, just to remind me I still have a womb :) and no side effects to report, luckily enough (so far!). 

I sympathise with anyone who has had Adverse Reactions to the mirena, when getting the mirena I knew the risks, but I thought it worse for 'me' personally if I ended up preganant already with 3 children under 3 years of age.  In the end, it is a personal choice what we decide to do for our own best, and if it doesnt work out, we learn by it and look at a more positive solution for our wellbeing.

Doctor support and advice is crutial in chosing what is the best solution for your problems, so if you dont get the support you expect from your GP, change and get a second opinion. 

 

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Anonymous  ·  23 Sep 2010

Liz, I am sorry to hear that you are opting for such major surgery as a hysterectomy. I am surprised that they did not at least offer something like endometrial ablation first.

Such a pity the testing done for your breast cysts (which were surprisingly common in women here also, long before the mirena was avialable) wasn't more precise but hopefully you will have good news in December when they retest.

 

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Anonymous  ·  23 Sep 2010

Excellently put Barbie. Again an entirely medically accurate and completely factual post. One can disagree with opinions but you cannot dispute the requirements of the law or established scientific fact.

 

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Canadian Liz  ·  22 Sep 2010

Another victory today, found out I was approved for government disability coverage.  Very happy!

 

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Canadian Liz  ·  22 Sep 2010

Barbie. I'd rather speak to someone who has manners and knows how to treat others with respect and who doesn't deliberately mock the plight of another.  Your posts do give me a great laugh tho.  Wonderful for entertainment LOL.

Well the verdict is in.  A hystorectomy is on the horizon.  My gyne's office is booking it and will advise me when it will be done.  All options to control the damage Mirena has done have been exhausted.  Soon my excessive heavy bleeding with cease to exist.

Her office is also referring me to a breast specialist who will focus on my 3 breast lumps (again proven to have been caused by Mirena).  My gyne informed me today that the results of my last mammo, core breast biopsy, breast ultrasound, and breast MRI are "probably benign".  They can't tell for sure so naturally I was shocked.  Repeating all tests in December.

 

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barbie86  ·  22 Sep 2010

Liz have you actually read the manufacturers leaflet? Because I'm not sure how you can argue that they 'fail to mention the horrible side effects that women experience with the Mirena', as in fact dozens are listed that are either proven to be, or possibly, linked to the Mirena IUS. Womb perforation is one of them; I was made aware of this by my doctor, and it clearly states it in the leaflet. It is unfortunate if women experience it, but that is a risk they choose to take; in many cases women perforation is not serious, though obviously in some it can be. The leaflet also states the risk of PID, a potentially very serious infection that can lead to infertility; with this in mind, I find it bizarre that they would choose not to mention something like Vit D deficiency.

As anon has said for a product to be licensed in the UK or Ireland it must have undergone extensive tests and MUST come with an insert listing ALL POSSIBLE side effects or risks. Maybe in Canada this isn't the case, and your sister was unaware of the risk of perforation; I cannot comment. But that is not the Mirena manufacturer's fault, but the fault of the practiomer who inserted it for not taking their patient through the risks.

How you can cite FB as a reputable source is really quite beyond me; I don't know whether I want to laugh ir cry... anyone can set up a page on FB saying anything they want; I could set up a page slating the Depo Provera injection and saying it causes lung cancer; that doesn't make it medically accurate or a reputable source of information.  I NEVER use sites like FB for accurate information; I stick to reputable medical or scientific sources.

You've had a bad experience, and I empathise, but you really need to  stop citing inaccurate and misleading information. I go through hell with my natural periods; after having the Mirena removed, because the hormone left my body straight away, I once again had periods from hell for the first time in over 6 years; I could have blamed the Mirena, but in fact it was endo, which I've likely had since the age of 11 or 12, that was causing it.

Seek the help and treatment you need but please stop making false and unsubstantiated claims. As far as I can tell you cannot provide a reputable medical source that links the Mirena to anything you've mentioned.

 

223 Posts

Canadian Liz  ·  22 Sep 2010

The mirena manufacturers fail to mention the horrible side effects many women are suffering day in and day out.  Of course they won't mention any of that in their brochure as they want women to use their product.  Of course the company is going to tell consumers how fantastic their product is because they want women to use it.  I know what Mirena has done to me.

 

223 Posts

Canadian Liz  ·  22 Sep 2010

Well back to the gyne today as the heavy, excessive bleeding caused by having had Mirena and no period for 18 months has started up again. Back on Cyklokapron to try and stop it, which it will as it's done in the last few months.  Blood work is all normal and no sigs of polyps, endo, or uterine cancer.  Going to discuss my options with my gyne but I am going to push for a hysto. This issue is interfering with both my personal and professional lives. I wish I'd listened to others tell me how Mirena destroyed their lives and not gotten it. If I'd listened I would not be in the situation I'm in now, disabled and proceeding with my disability applications. I miss not being about to go out and work like a normal person. Someday maybe I will be able to again once I get the toxicity of Mirena out of my body. It's been 7 months since I had it removed and the battle rages on.

 

223 Posts

Canadian Liz  ·  22 Sep 2010

Well we agree to disagree.

 

12,083 Posts

Anonymous  ·  22 Sep 2010

Liz, it is a mandatory legal requirement - in other words the law on the land makes it obligatory, that the product inserts for all medicines contain and only contain medical fact which has been scientifically proven, in order for that medicine to be licensed for use in the country. Without proven medical facts provided on any medical product insert, the medicine is not and cannot be licensed to available for sale or perscription in Ireland and hence no one attending a doctor in Irleand could be provided with or perscribed it. 

While everyone is entitled to believe what they wish, what anyone believes does not change those facts nor mandatory legal requirements.  

There are a myriad of websites, companies, associations, charities, retail chains, causes, media organisations, politicians, newspapers and verious assorted others on Facebook. Does that make facebook a charity, retailer, newspapar or a politcal website? No. Of course it doesn't - any more than it makes it a medical website. 

 

223 Posts

Canadian Liz  ·  21 Sep 2010

I believe product inserts are full of lies because manufacturers want patients to use their product.  I believe the personal experiences of another hold validity meanwhile product inserts do not. 

Oh and the Irish Health site is on FB as well.  So you condone this page but you refuse to condone the personal experiences of others on FB  pages such as Ban Mirena IUD and I Hate Mirena.  Hmm interesting.

 

12,083 Posts

Anonymous  ·  21 Sep 2010

Liz, Barbie has posted data that is directly from the product insert, which must by law, contain factual medical data backed up by scientific evidence - without which the mirena (or perscription product) would not be licensed for use or legally available here. That is not opinion.

FB may well be a reputable social networking site but what it is plainly not and has never claimed to be is medical or scientific website.

 
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