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Welcome to irishhealth.com (17 Apr, 2014) Quickfind

Mirena Coil


 
Total Messages: 960    Latest post on: 03/04/2014 09:34     Page 4 of 24   Latest Post
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Canadian Liz

Joined: Aug 2008

Posts: 223

# 840

Posted: 24/09/2010 15:18

Molzer, it's always a cat fight on here and such behaviour isn't necessary, but some clearly thrive on picking on others and mocking their plight.  It's been going on for a few years on purpose so I just laugh at  some posters who believe a leaflet, which doesn't list the true side effects of Mirena, is the bible.  Of course it won't, Bayer wants women to use their product so there not going to put true side effects in their procedure and there are LOTS Of side effects of Mirena.

You hit the nail on the head when you said in your post "people's opinions and view need to be respected in a forum like this".  I echo that sentiment, however, there are cliques on this board unfortunately. 

So I have a meeting on Tues with the government agency responsible for handling disability claims.  I've already been approved and will be getting my current income topped up due to my disability.  I'm at tests and medical appointments more than I work these days and suffering financially so approval came as a welcome blessing.  My transportation costs to and from my appointments and tests will be paid for as well.  I'll be getting a drug card, which will pay for medications and services that my current benefit plan through work does not pay for.  My application for provincial disability has been submitted and I have a meeting coming up about that too.  Once it's approved I'll be on permanent disability and not working at all anymore. 

We are only made aware of some of the risks of Mirena prior to getting it, not all of them unfortunately. 

It's sad that my sister and I both had Mirena and we both had to have a hysto because of it, and the toxicity, and the damage it did to our bodies.  Let it be a lesson to women who are thinking of getting it.  DON'T!

 
molzer

Joined: Jan 2010

Posts: 1

# 839

Posted: 23/09/2010 19:10

Hi, just came across your discussion group, prompted by newsletter email.  Luks like it turned into a cat fight.... pity about that.  People's opinions and view need to be respected in a forum like this. 

Anyhow, back to the Mirena.  I'm on my second, had first fitted about 9 years ago.  Havent looked back!  Have 3 kids, last were fraternal twins and high chance of having same again, so instead of sterilization as I was only just 30, my Doc advised the coil, in case I wanted more children in the future. 

Periods, just a sight spot, the odd monthly cramp, just to remind me I still have a womb :) and no side effects to report, luckily enough (so far!). 

I sympathise with anyone who has had Adverse Reactions to the mirena, when getting the mirena I knew the risks, but I thought it worse for 'me' personally if I ended up preganant already with 3 children under 3 years of age.  In the end, it is a personal choice what we decide to do for our own best, and if it doesnt work out, we learn by it and look at a more positive solution for our wellbeing.

Doctor support and advice is crutial in chosing what is the best solution for your problems, so if you dont get the support you expect from your GP, change and get a second opinion. 

 
Anonymous

Joined: Jan 2001

Posts: 12,079

# 838

Posted: 23/09/2010 09:03

Liz, I am sorry to hear that you are opting for such major surgery as a hysterectomy. I am surprised that they did not at least offer something like endometrial ablation first.

Such a pity the testing done for your breast cysts (which were surprisingly common in women here also, long before the mirena was avialable) wasn't more precise but hopefully you will have good news in December when they retest.

 
Anonymous

Joined: Jan 2001

Posts: 12,079

# 837

Posted: 23/09/2010 08:59

Excellently put Barbie. Again an entirely medically accurate and completely factual post. One can disagree with opinions but you cannot dispute the requirements of the law or established scientific fact.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 836

Posted: 22/09/2010 22:27

Another victory today, found out I was approved for government disability coverage.  Very happy!

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 835

Posted: 22/09/2010 19:42

Barbie. I'd rather speak to someone who has manners and knows how to treat others with respect and who doesn't deliberately mock the plight of another.  Your posts do give me a great laugh tho.  Wonderful for entertainment LOL.

Well the verdict is in.  A hystorectomy is on the horizon.  My gyne's office is booking it and will advise me when it will be done.  All options to control the damage Mirena has done have been exhausted.  Soon my excessive heavy bleeding with cease to exist.

Her office is also referring me to a breast specialist who will focus on my 3 breast lumps (again proven to have been caused by Mirena).  My gyne informed me today that the results of my last mammo, core breast biopsy, breast ultrasound, and breast MRI are "probably benign".  They can't tell for sure so naturally I was shocked.  Repeating all tests in December.

 
barbie86

Joined: Feb 2008

Posts: 134

# 834

Posted: 22/09/2010 14:45

Liz have you actually read the manufacturers leaflet? Because I'm not sure how you can argue that they 'fail to mention the horrible side effects that women experience with the Mirena', as in fact dozens are listed that are either proven to be, or possibly, linked to the Mirena IUS. Womb perforation is one of them; I was made aware of this by my doctor, and it clearly states it in the leaflet. It is unfortunate if women experience it, but that is a risk they choose to take; in many cases women perforation is not serious, though obviously in some it can be. The leaflet also states the risk of PID, a potentially very serious infection that can lead to infertility; with this in mind, I find it bizarre that they would choose not to mention something like Vit D deficiency.

As anon has said for a product to be licensed in the UK or Ireland it must have undergone extensive tests and MUST come with an insert listing ALL POSSIBLE side effects or risks. Maybe in Canada this isn't the case, and your sister was unaware of the risk of perforation; I cannot comment. But that is not the Mirena manufacturer's fault, but the fault of the practiomer who inserted it for not taking their patient through the risks.

How you can cite FB as a reputable source is really quite beyond me; I don't know whether I want to laugh ir cry... anyone can set up a page on FB saying anything they want; I could set up a page slating the Depo Provera injection and saying it causes lung cancer; that doesn't make it medically accurate or a reputable source of information.  I NEVER use sites like FB for accurate information; I stick to reputable medical or scientific sources.

You've had a bad experience, and I empathise, but you really need to  stop citing inaccurate and misleading information. I go through hell with my natural periods; after having the Mirena removed, because the hormone left my body straight away, I once again had periods from hell for the first time in over 6 years; I could have blamed the Mirena, but in fact it was endo, which I've likely had since the age of 11 or 12, that was causing it.

Seek the help and treatment you need but please stop making false and unsubstantiated claims. As far as I can tell you cannot provide a reputable medical source that links the Mirena to anything you've mentioned.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 833

Posted: 22/09/2010 12:52

The mirena manufacturers fail to mention the horrible side effects many women are suffering day in and day out.  Of course they won't mention any of that in their brochure as they want women to use their product.  Of course the company is going to tell consumers how fantastic their product is because they want women to use it.  I know what Mirena has done to me.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 832

Posted: 22/09/2010 12:47

Well back to the gyne today as the heavy, excessive bleeding caused by having had Mirena and no period for 18 months has started up again. Back on Cyklokapron to try and stop it, which it will as it's done in the last few months.  Blood work is all normal and no sigs of polyps, endo, or uterine cancer.  Going to discuss my options with my gyne but I am going to push for a hysto. This issue is interfering with both my personal and professional lives. I wish I'd listened to others tell me how Mirena destroyed their lives and not gotten it. If I'd listened I would not be in the situation I'm in now, disabled and proceeding with my disability applications. I miss not being about to go out and work like a normal person. Someday maybe I will be able to again once I get the toxicity of Mirena out of my body. It's been 7 months since I had it removed and the battle rages on.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 831

Posted: 22/09/2010 12:40

Well we agree to disagree.

 
Anonymous

Joined: Jan 2001

Posts: 12,079

# 830

Posted: 22/09/2010 11:41

Liz, it is a mandatory legal requirement - in other words the law on the land makes it obligatory, that the product inserts for all medicines contain and only contain medical fact which has been scientifically proven, in order for that medicine to be licensed for use in the country. Without proven medical facts provided on any medical product insert, the medicine is not and cannot be licensed to available for sale or perscription in Ireland and hence no one attending a doctor in Irleand could be provided with or perscribed it. 

While everyone is entitled to believe what they wish, what anyone believes does not change those facts nor mandatory legal requirements.  

There are a myriad of websites, companies, associations, charities, retail chains, causes, media organisations, politicians, newspapers and verious assorted others on Facebook. Does that make facebook a charity, retailer, newspapar or a politcal website? No. Of course it doesn't - any more than it makes it a medical website. 

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 829

Posted: 21/09/2010 20:37

I believe product inserts are full of lies because manufacturers want patients to use their product.  I believe the personal experiences of another hold validity meanwhile product inserts do not. 

Oh and the Irish Health site is on FB as well.  So you condone this page but you refuse to condone the personal experiences of others on FB  pages such as Ban Mirena IUD and I Hate Mirena.  Hmm interesting.

 
Anonymous

Joined: Jan 2001

Posts: 12,079

# 828

Posted: 21/09/2010 10:00

Liz, Barbie has posted data that is directly from the product insert, which must by law, contain factual medical data backed up by scientific evidence - without which the mirena (or perscription product) would not be licensed for use or legally available here. That is not opinion.

FB may well be a reputable social networking site but what it is plainly not and has never claimed to be is medical or scientific website.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 827

Posted: 21/09/2010 09:51

Anon, Barbie said

"The fact your deficiency developed while on the Mirena proves nothing more than a coincidence. The problem is that a lot of people take such coincidences and then make a 'definite' connection".  Tell that to millions of women who have had their lives destroyed by Mirena and a war will erupt.

And you call Barbie's comment eloquent?  I call it false and rude.  The medical problems I have been suffering since having had Mirena have been confirmed by 3 doctors to be caused by Mirena.

I will continue to condemn Mirena and spread my story.  If people have a problem with that then turn away, but respect it.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 826

Posted: 20/09/2010 15:59

Anon, you and Barbie have not posted anything that is 100% medically accurate and completely scientifically factual.  You both continuously just post your opinions and nothing more.  You both have no medical qualifications. And FB is reputable (even Bayer who manufactures Mirena has a page on there) and what myself and other women post on there about our Mirena horror stories are our own personal experiences.  You clearly cannot respect that and it's sad really.  But your choice.

 
Anonymous

Joined: Jan 2001

Posts: 12,079

# 825

Posted: 20/09/2010 11:56

Thank you very much Barbie for your post. I attempted to say the same thing but was slandered out of all proportion. You are more eloquent than I but nonetheless entirely 100% mediclaly accurate and completely scientifically factual - as being otherwise would be a great disservice to women. Liz, exactly do you mean by telling people they have been reported - this is not a blog site and the editor reviews all posts and edits where neccessary. Telling people that they have been reported simply because they post accurate scientific data which you disagree with is meaningless. NO-ONE is attacking or "bashing" you and I have not seen anyone call you a liar. Perforatation is a risk with the mirena (and it was advised to me, by a clinical gyne cons. that that is generally down to the skill of the gyne) and usually a scan will diagnoise it without a hysterocopy being needed - tho' it may well be required in the case of endo. Half of all perforations heal on their own without any further medical intervention - such as a repair being neccessary so I hope sister has recovered well and is being treated adeqautely for her endo. As has been pointed out to you before, Facebook is not a reputable medical or scientific website.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 824

Posted: 18/09/2010 06:13

http://www.facebook.com/home.php?#!/pages/I-hate-Mirena/120754677961871?ref=ts

Check this out ladies.....tons of women who have horror stories to share about Mirena.  Very sad, but women need to be made aware.


 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 823

Posted: 18/09/2010 06:01

Got a call from one of my good friends today, Kathy, who recently had Mirena removed due to horrible side effects it (very smiliar to mine, except she had nasty mood swings, common with it) and lo and behold according to recent blood work, her vitamin D level is 11, so she is deficient as well.  Like myself, she never had issues with deficiency prior.  For some to suggest that my situation is "coincidence" is disgusting and a major insult.  I would not have had to file for disability recently if it wasn't for Mirena and there are millions of women like myself who have had to do the same and will be doing the same (some women I even know).

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 822

Posted: 17/09/2010 15:15

And by the way my sister had a hysto at 43 years old due to Mirena having perforated her uterus.  Oh and she had endo.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 821

Posted: 17/09/2010 15:13

And now and in the future I will report ANYONE who attacks me, downplays what Mirena has done to me, calls me a liar, or bashes me. 

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 820

Posted: 17/09/2010 15:00

You have been reported!

 
barbie86

Joined: Feb 2008

Posts: 134

# 819

Posted: 16/09/2010 16:03

I cannot find anything anywhere that suggests a link between the Mirena and a Vitamin D deficiency; I would stress that that doesn't mean that there ISN'T one, simply that no scientific source I can find links the two.

Vitamin D deficiency is extremely common, affecting 10% of the UK population during summer, and 1 in 6 during winter; from what I can gather, this figure is significantly higher in Canada, with several stats I've seen suggesting that up to 97% of the population will be vitamin D deficient at some point each year.

This is not an attack; I simply do not like scare-mongering and it is IMO dangerous to make assertions that there is no medical or scientific evidence for as it could put some people off treatments like the Mirena which could be highly beneficial for them. The Mirena is for example an excellent treatment for endo, a condition which, left unchecked, can cause severe and in some cases irreparable damage (I know women who have lost parts of their bowel to it, or who have to cathetirise as it has destroyed their urethras, etc); it is wrong to scare people off a perfectly good treatment based on conjecture and assumptions rather than proven evidence.

The fact your deficiency developed while on the Mirena proves nothing more than a coincidence. The problem is that a lot of people take such coincidences and then make a 'definite' connection; I've seen all sorts linked to the Mirena, or other methods of contraception for that matter, for the simple reason that women develop a condition, then think 'well, the only thing that has changed is I went on x, therefore x must be the cause'. This way of thinking is a leap to say the least; I could, for example, be diagnosed out of the blue with throat cancer, and think 'well, I haven't changed my diet or liefstyle, I don't smoke, but I did have a Mirena fitted prior to my diagnosis; therefore, the Mirena MUST be the cause'. At best this is misguided; at worst, frankly dangerous.

I am not downplaying your experience; I cannot say for certain that the Mirena didn't contribute, as I'm not a doctor or a scientist. I can say that I have a copy of the leaflet to hand, and it does not mention Vit D deficiency as a side effect, nor are any of it's ingredients linked to Vit D deficiency; I can say I have checked REPUTABLE, SCIENTIFIC sources on the internet and neither the Mirena nor it's components is linked to deficiency; I can say that unfortunately Vit D deficiency is very common, especially in Canada.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 818

Posted: 16/09/2010 15:36

Magnesium level is fine according to blood work done 3 months ago.  Never heard of the Dexa thing.

 
Anonymous

Joined: Jan 2001

Posts: 12,079

# 817

Posted: 16/09/2010 14:01

The listed side effects for Canada obviously are different. Barbie has listed the ones for here, on her post a number of weeks back and thankfully I don't know of anyone on the mirena - apart from yourself, who was affected by this. Tho' of course there are women in Northern latitudes who are affected by it, independent of their medication.Thanks for the info on the bloodwork, is a Dexa scan neccesary also? That is one of the methods of diagnosis for osteopenia / ospteoporosis (which any long terms users of the depo would have had to be careful of) Painful leg cramps can also result in magnesium deficiency, do the two go hand in hand in your case? Just interested - not any attempt to "bash" or battle :-)

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 816

Posted: 16/09/2010 10:59

Vitamin D deficiency occurs in some women who have Mirena or who have had it even if they are in contact with direct sunlight on a daily basis and are not on any other forms of medications and do not have any pre-existing medical conditions.  While there are physical signs of vitamin D (osteomalacia is vitamin D deficiency) including painful leg cramps and leg pain from the knee down to the ankle, the primary diagnosis is done via blood work and testing a woman's vitamin D level.  Prior to Mirena, I never had any issues with vitamin D deficiency and the problem surfaced while I had it.

 
Anonymous

Joined: Jan 2001

Posts: 12,079

# 815

Posted: 15/09/2010 14:16


Liz, I am very pleased for you that uterine cancer has been ruled out tho so sorry to hear of your bereavements, That is so stressful on its own without illness adding to matters. Sorry to hear of your oestalmacia, hope the treatment for it is helping. Vitamin D deficiency is not listed is being a mirena side effect here and nor is it listed for the implanon or any progesterone only pill. Tho it can of course be a side effect from other medications. Can you tell us, as it diagnosed with a DEWXA scan or can blood tests be used? I'm interested. Osteopenia / osteoporosis, however is listed as a side effect for the depo provera. Of course it is important to get adequate vitamin D complex in the diet and also to get exposure to sunlight as this is an easily assimilable form of vitamin D as you most probably know but I understand that in severe cases Vitamin D injections may be necessary for some. I understand that cramps can also be elevated due to magnesium deficiency so it may be worth your while to check that out also. Best of luck with the disability application. The social welfare system seems to be very organised so hopefully it'll all be straightforward. Just a note on the bleeding. I really cannot see ANY reason why any Dr. would not perform a hysteroscopy for sound clinical reasons. Are you legally ebtitled to written medical explanation for that? If so, it might make her think again were you request one. It could well help show the cause and so the possible solution to the bleeding. If you can, perhaps going private would be the answer.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 814

Posted: 12/09/2010 01:51

Well my post Mirena nightmare continues. I've started bleeding heavily again so back on Cyklokapron to stop it. The D & C did nothing and it was a waste of time. Couldn't have my post surgery follow up tv ultrasound last week or my pap. Seeing the gyne on Monday and going to demand a hysto. She told me before to find another doctor if I wanted one since she'd not do one on me so if she tells me that crap again I will find another female gyne. Can get a referral from my endo. Not happy at all.

 
Tilda

Joined: Jan 2010

Posts: 12

# 813

Posted: 11/09/2010 01:00

Becs, am passing that info to my sister as she has also been through hell and back with gynae problemos.And if possible she is more "allergic" than me... the poor thing has recently discovered she can't even take the non penicillin antibiotic! I don't know what she's going to do if she gets another infection!!! She also had Mirena, in fact she recommended I try it. She's had cervical cells removed to (after Mirena) but still managed to go on and have two babies after lazer treatment in the downstairs dept!

Liz, I am now taking Vit D to see if that helps, thanks to you. The weather has gone like poo over here and the minute it gets cold, I start to ache even worse than before. I am coeliac/dairy & red meat free for the past 10 years, so I will try the Vit D and maybe it will help. I'm sure I am probably a wee bit calcium deficient but eat loads of organic greens to try and combat it. I've totally shaken up my diet (again, limited though it is) so am now totally "green & organic" but still eat white meat. I despair sometimes but am mostly trying to be of positive mind all the time and turning negatives around. Tis hard but I do feel better when I "force" myself to think positive! Sounds a bit daft when you write it but eg; it's been raining hard and heavy here (hate rain & cold) - so instead of moaning, I bought a totally cool brolly, black with pink frills on it!!! Also, don't have to take the hose to the garden when it rains!!! Turning it around, all the time in the hope that it helps!

I love being a woman but damn, it hurts so bad sometimes. Am so glad you are in Canada Liz and will get the help you need; you'd be in a right mess if you were here in Ireland. Unless you've a limb hanging off, with blood and guts in tow, they'd say you were faking here! I am lucky enough to be able to work part time and earn enough to pay the bills; I've the "not working time" to psych myself up for the working time... swings & roundabouts but never forget, we women are made of strong stuff and we will persevere!

 
Geny

Joined: Aug 2010

Posts: 2

# 812

Posted: 09/09/2010 21:46

Thanks a million Becs for the info. Will definitely discuss with my doc and maybe the gyne. I would hope to go down the most natural route as possible. You've been through the mill, poor thing like a lot of the ladies here. Wishing you all well,

Geny

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 811

Posted: 07/09/2010 04:14

Hi Tilda, osteomalacia is vitamin D deficiency. I became deficient when I had Mirena and I should have listened to my gyne as the day she put it in she warned me that in some patients Mirena causes such a deficiency. Anyway it was discovered via blood tests back in December, 2009 after I had been complaining to my doctors about leg cramps and leg pain, which were preventing me from standing for longer than 10 mins at a time, from walking straight, sleeping, and exercising. My level was 24 back at Xmas, 2009 and it should be over 75. I had it tested 3 months ago and it was 54 so it appears to be improving although my leg pain and cramps is not. I have to repeat blood work this month so hopefully my level has increased. I have always consumed organic dairy products for the entire of my life. I did apply for disability last week so I just have to wait for them to call me to set up a consultation appointment. I'm in Canada and since I have so many medical issues getting it won't be a problem I'm sure. In Canada if you have depression and anxiety (which I have) alone you get approved. My grandfather was Irish from Dublin.

 
becs

Joined: Mar 2009

Posts: 17

# 810

Posted: 04/09/2010 20:59

hi geny,

sorry for only getting back to you,away on hols.the Qliara is a new contraceptive pill that contains both estragen and prostragen that you only bodies naturally makes.the pills are a different colour for certain times of the cycle and its given your body the boost of the certain hormones it needs at that particular time.its a 29 day pack but you take no break and start a new pack straight away.i normally get my period on day 26/27 and it lasts for a 2/3 days most.thats it.i have suffered severe bleeding with only getting a weeks break each month if lucky and also severe pain.i've had cin 3 cells removed from cervix so have to say getting a period for only the 2/3 days with very little pain is a gidsend.i don't even need a painkiller.like everything though it suits some more than others but i think its well worth a talk with your doctor and if given green light try it.it is expensive 96 euros for 6 months,nearly choked when told price but if it worked i was willing to try it.but when down with my own doctor recently he said there is a generic one for half that price.i'll be due to get that in a months time.

liz,i'm delighted you got the all clear i know how it feels to wait on results like that.

best of luck

 
Tilda

Joined: Jan 2010

Posts: 12

# 809

Posted: 03/09/2010 23:17

Bloody hell Liz, that's awful but you have to listen to your body and pace yourself. Can you explain the osteo thing to me please? I've had tests, like yourself, out and up the wazooo over the past few years to try and figure out what's going on with my stubborn body! MRI's to see what could explain the "paralysis" I have on the left side of my body and nothing! I personally think that I am just "broken" but as I said before, have a physio who is just a magical person and once I keep doing the exercises she has set I can get through the day.  My heart goes out to you, it really does, and I do hope that all gets resolved. By saying this I am not asking you where you live but what I will say is that I do hope you are not in Ireland because to get disability here you'd have to go in with your arms and legs in a bag before they'd believe you! I am lucky enough to work part time and so can pace myself. You will hopefully start to feel better once you get all your i's dotted and your t's crossed.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 808

Posted: 02/09/2010 14:09

Tilda, thank you!  Sadly I have to do something today I hoped I'd never have to but given all the medical problems Mirena has caused me and that I continue to battle I have to apply for disability today.  My osteomalacia prevents me from working for long periods (I have leg cramps so bad sometimes I can't stand up) and besides I spend so much time undergoing tests, attending doctors appointments and the like.  I remember prior to Mirena being healthy and active.  Now I can barely walk/stand.  My gyne and endo warned me that vitamin D deficiency/osteomalacia is common with Mirena patients, but I didn't believe it.  Now I do.  When I had Mirena I believed what I was experiencing was normal, now I know it wasn't and after talking to lots of women who have the same side effects as myself I know I'm not alone.  Someday I hope to be free of all the negativity Mirena has brought into my life. 

Next week, another transvag level IV ultrasound post surgery and a pap with my gyne.

Have to contact my endo and book an appointment with her and drop off my disability papers for her to fill out and forward to the government.

 
Tilda

Joined: Jan 2010

Posts: 12

# 807

Posted: 01/09/2010 22:12

Liz, am over the moon that all your results are looking more positive.  Good health is something that we all take for granted until we get sick... this I know from my own experience, so I am happy that you're getting sorted. 

A death in the family is just awful, so my heart aches for you. Can't imagine what it's like to lose a parent; I lost my brother a few years back and I thought my heart would break. I still miss him but I "talk" to him every day and that helps... in fact, now that you mention it, that's when I started to get ill. Maybe it's something I should look into? Keep me posted on how you get on please.

So far so good with me and the Mirena; periods have all but completely stopped now; odd sharp twinge of pain once a month but that's it so far! I've still got the leaflet that came with the Mirena and it would scare the bejaysus out of anyone. I do wish I had another option  as I hate any sort of external "entities" but with all the allergies I seem to be developing to medications etc, not chancing it. So I shall just have to keep my fingers crossed that nowt goes wrong... Hope all the news you get is good news from now on Liz.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 806

Posted: 30/08/2010 19:20

Well got some good news on Friday.  The D & C results are back and I don't have uterine cancer.  Hopefully the excessive bleeding and cramps don't start up again.  The gyne ruled out that the problem was caused due to having had Mirena for 18 months and no period and stress due to my father's death, the death of someone very close to me (both in the last 9 months), and the barrage of tests I've had to undergo for the last year.  My gyne will be monitoring my 3 benign breast lumps very, very closely (breast MRI, breast ultrasound, and mammo to be all repeated in 3 months' time).  Core biopsies to be done if necessary.  Have to have a follow up ultrasound and a visit with my gyne next week. 

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 805

Posted: 30/08/2010 19:14

Tilda, wow very shocked at your response.  You and I had pleasant discussions in the past. 

I've done nothing wrong here but share my story and what myself and others have endured and I've been attacked, bashed, degraded, and told I'm a liar.


Anon started this battle and I'm supposed to tolerate it?  I don't think so.

The solution?  She ignore my posts.  Then there will be no issues.

 
Anonymous

Joined: Jan 2001

Posts: 12,079

# 804

Posted: 25/08/2010 09:43

Liz I was sharing facts, as was Barbie and becs. I am not aware of their qualifications, but I am keenly aware that the facts shared are backed by proven medical science from those who are qualified.

I hope your recovery from surgery continues to go well.

You are wrong in your statement about medical product inserts. I dont know how licensing works in Canada and it may of course be very different. In Ireland it is legally mandated (i.e. the manufacturer must, by law) that all proven side effects are listed. Without this, no medicine or medical device is licensed by the Irish Medicines Board for use here and thus annot be perscribed or imported. Hence without listing the medical facts proven by scientific research, it would not be possible to have the mirena in Ireland at all.

 
Geny

Joined: Aug 2010

Posts: 2

# 803

Posted: 25/08/2010 00:06

Hi all. Having recent problems with heavy and prolonged periods. Fibroids present but have been ruled out as a cause.This site is great source of info, thanks everyone!

 Becs mentioned a natural product, qliara. Would love to know more about it.

 
Tilda

Joined: Jan 2010

Posts: 12

# 802

Posted: 25/08/2010 00:03

JoJo, I agree with you wholeheartedly... I am sick to my back teeth of the two main contenders here in the "I'm right, no I'm right" brigade.  You know who you are (I won't name/shame you)!!! And you both should be ashamed of yourselves.  This forum is for women to discuss, not argue - leave that to the politicians. It's for women to share their problems, not have to search through the diatribe you BOTH have written in the desperate quest to "be right". There could be plenty of women out there wanting to join this discussion but won't because of you two!

The bottom line is that the Mirena is different for everyone, and that's a FACT!!! It can be good for some and bad for others and yes, one of you is right in that everything medicinal has it's side effects! Penicillan saves lives, FACT, yet it would kill me with one dose (totally allergic)! So the two of you please grow up, agree to disagree and stop b*tching at each other and just leave it at that for everyone else's sake!

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 801

Posted: 24/08/2010 20:36

Jojo, what women post on FB are not "stories".  They are true accounts of the hell that they've endured by having Mirena.  I believe that holds validity some medical lealleft does not as it's put out by the manufacturer who of course is going to praise their product to sell it.  I still have my Mirena leaflet that came with the device and now I laugh at it as it's so full of untruths.

My behaviour disgusts you?  I have no idea what behaviour your referring to as I've been nothing but pleasant even with Anon and her "gang.

Good luck to you :)

 
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