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Welcome to irishhealth.com (20 May, 2013) Quickfind

Mirena Coil


 
Total Messages: 936    Latest post on: 28/04/2013 17:08     Page 4 of 24   Latest Post
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Canadian Liz

Joined: Aug 2008

Posts: 223

# 816

Posted: 16/09/2010 10:59

Vitamin D deficiency occurs in some women who have Mirena or who have had it even if they are in contact with direct sunlight on a daily basis and are not on any other forms of medications and do not have any pre-existing medical conditions.  While there are physical signs of vitamin D (osteomalacia is vitamin D deficiency) including painful leg cramps and leg pain from the knee down to the ankle, the primary diagnosis is done via blood work and testing a woman's vitamin D level.  Prior to Mirena, I never had any issues with vitamin D deficiency and the problem surfaced while I had it.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 815

Posted: 15/09/2010 14:16


Liz, I am very pleased for you that uterine cancer has been ruled out tho so sorry to hear of your bereavements, That is so stressful on its own without illness adding to matters. Sorry to hear of your oestalmacia, hope the treatment for it is helping. Vitamin D deficiency is not listed is being a mirena side effect here and nor is it listed for the implanon or any progesterone only pill. Tho it can of course be a side effect from other medications. Can you tell us, as it diagnosed with a DEWXA scan or can blood tests be used? I'm interested. Osteopenia / osteoporosis, however is listed as a side effect for the depo provera. Of course it is important to get adequate vitamin D complex in the diet and also to get exposure to sunlight as this is an easily assimilable form of vitamin D as you most probably know but I understand that in severe cases Vitamin D injections may be necessary for some. I understand that cramps can also be elevated due to magnesium deficiency so it may be worth your while to check that out also. Best of luck with the disability application. The social welfare system seems to be very organised so hopefully it'll all be straightforward. Just a note on the bleeding. I really cannot see ANY reason why any Dr. would not perform a hysteroscopy for sound clinical reasons. Are you legally ebtitled to written medical explanation for that? If so, it might make her think again were you request one. It could well help show the cause and so the possible solution to the bleeding. If you can, perhaps going private would be the answer.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 814

Posted: 12/09/2010 01:51

Well my post Mirena nightmare continues. I've started bleeding heavily again so back on Cyklokapron to stop it. The D & C did nothing and it was a waste of time. Couldn't have my post surgery follow up tv ultrasound last week or my pap. Seeing the gyne on Monday and going to demand a hysto. She told me before to find another doctor if I wanted one since she'd not do one on me so if she tells me that crap again I will find another female gyne. Can get a referral from my endo. Not happy at all.

 
Tilda

Joined: Jan 2010

Posts: 12

# 813

Posted: 11/09/2010 01:00

Becs, am passing that info to my sister as she has also been through hell and back with gynae problemos.And if possible she is more "allergic" than me... the poor thing has recently discovered she can't even take the non penicillin antibiotic! I don't know what she's going to do if she gets another infection!!! She also had Mirena, in fact she recommended I try it. She's had cervical cells removed to (after Mirena) but still managed to go on and have two babies after lazer treatment in the downstairs dept!

Liz, I am now taking Vit D to see if that helps, thanks to you. The weather has gone like poo over here and the minute it gets cold, I start to ache even worse than before. I am coeliac/dairy & red meat free for the past 10 years, so I will try the Vit D and maybe it will help. I'm sure I am probably a wee bit calcium deficient but eat loads of organic greens to try and combat it. I've totally shaken up my diet (again, limited though it is) so am now totally "green & organic" but still eat white meat. I despair sometimes but am mostly trying to be of positive mind all the time and turning negatives around. Tis hard but I do feel better when I "force" myself to think positive! Sounds a bit daft when you write it but eg; it's been raining hard and heavy here (hate rain & cold) - so instead of moaning, I bought a totally cool brolly, black with pink frills on it!!! Also, don't have to take the hose to the garden when it rains!!! Turning it around, all the time in the hope that it helps!

I love being a woman but damn, it hurts so bad sometimes. Am so glad you are in Canada Liz and will get the help you need; you'd be in a right mess if you were here in Ireland. Unless you've a limb hanging off, with blood and guts in tow, they'd say you were faking here! I am lucky enough to be able to work part time and earn enough to pay the bills; I've the "not working time" to psych myself up for the working time... swings & roundabouts but never forget, we women are made of strong stuff and we will persevere!

 
Geny

Joined: Aug 2010

Posts: 2

# 812

Posted: 09/09/2010 21:46

Thanks a million Becs for the info. Will definitely discuss with my doc and maybe the gyne. I would hope to go down the most natural route as possible. You've been through the mill, poor thing like a lot of the ladies here. Wishing you all well,

Geny

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 811

Posted: 07/09/2010 04:14

Hi Tilda, osteomalacia is vitamin D deficiency. I became deficient when I had Mirena and I should have listened to my gyne as the day she put it in she warned me that in some patients Mirena causes such a deficiency. Anyway it was discovered via blood tests back in December, 2009 after I had been complaining to my doctors about leg cramps and leg pain, which were preventing me from standing for longer than 10 mins at a time, from walking straight, sleeping, and exercising. My level was 24 back at Xmas, 2009 and it should be over 75. I had it tested 3 months ago and it was 54 so it appears to be improving although my leg pain and cramps is not. I have to repeat blood work this month so hopefully my level has increased. I have always consumed organic dairy products for the entire of my life. I did apply for disability last week so I just have to wait for them to call me to set up a consultation appointment. I'm in Canada and since I have so many medical issues getting it won't be a problem I'm sure. In Canada if you have depression and anxiety (which I have) alone you get approved. My grandfather was Irish from Dublin.

 
becs

Joined: Mar 2009

Posts: 17

# 810

Posted: 04/09/2010 20:59

hi geny,

sorry for only getting back to you,away on hols.the Qliara is a new contraceptive pill that contains both estragen and prostragen that you only bodies naturally makes.the pills are a different colour for certain times of the cycle and its given your body the boost of the certain hormones it needs at that particular time.its a 29 day pack but you take no break and start a new pack straight away.i normally get my period on day 26/27 and it lasts for a 2/3 days most.thats it.i have suffered severe bleeding with only getting a weeks break each month if lucky and also severe pain.i've had cin 3 cells removed from cervix so have to say getting a period for only the 2/3 days with very little pain is a gidsend.i don't even need a painkiller.like everything though it suits some more than others but i think its well worth a talk with your doctor and if given green light try it.it is expensive 96 euros for 6 months,nearly choked when told price but if it worked i was willing to try it.but when down with my own doctor recently he said there is a generic one for half that price.i'll be due to get that in a months time.

liz,i'm delighted you got the all clear i know how it feels to wait on results like that.

best of luck

 
Tilda

Joined: Jan 2010

Posts: 12

# 809

Posted: 03/09/2010 23:17

Bloody hell Liz, that's awful but you have to listen to your body and pace yourself. Can you explain the osteo thing to me please? I've had tests, like yourself, out and up the wazooo over the past few years to try and figure out what's going on with my stubborn body! MRI's to see what could explain the "paralysis" I have on the left side of my body and nothing! I personally think that I am just "broken" but as I said before, have a physio who is just a magical person and once I keep doing the exercises she has set I can get through the day.  My heart goes out to you, it really does, and I do hope that all gets resolved. By saying this I am not asking you where you live but what I will say is that I do hope you are not in Ireland because to get disability here you'd have to go in with your arms and legs in a bag before they'd believe you! I am lucky enough to work part time and so can pace myself. You will hopefully start to feel better once you get all your i's dotted and your t's crossed.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 808

Posted: 02/09/2010 14:09

Tilda, thank you!  Sadly I have to do something today I hoped I'd never have to but given all the medical problems Mirena has caused me and that I continue to battle I have to apply for disability today.  My osteomalacia prevents me from working for long periods (I have leg cramps so bad sometimes I can't stand up) and besides I spend so much time undergoing tests, attending doctors appointments and the like.  I remember prior to Mirena being healthy and active.  Now I can barely walk/stand.  My gyne and endo warned me that vitamin D deficiency/osteomalacia is common with Mirena patients, but I didn't believe it.  Now I do.  When I had Mirena I believed what I was experiencing was normal, now I know it wasn't and after talking to lots of women who have the same side effects as myself I know I'm not alone.  Someday I hope to be free of all the negativity Mirena has brought into my life. 

Next week, another transvag level IV ultrasound post surgery and a pap with my gyne.

Have to contact my endo and book an appointment with her and drop off my disability papers for her to fill out and forward to the government.

 
Tilda

Joined: Jan 2010

Posts: 12

# 807

Posted: 01/09/2010 22:12

Liz, am over the moon that all your results are looking more positive.  Good health is something that we all take for granted until we get sick... this I know from my own experience, so I am happy that you're getting sorted. 

A death in the family is just awful, so my heart aches for you. Can't imagine what it's like to lose a parent; I lost my brother a few years back and I thought my heart would break. I still miss him but I "talk" to him every day and that helps... in fact, now that you mention it, that's when I started to get ill. Maybe it's something I should look into? Keep me posted on how you get on please.

So far so good with me and the Mirena; periods have all but completely stopped now; odd sharp twinge of pain once a month but that's it so far! I've still got the leaflet that came with the Mirena and it would scare the bejaysus out of anyone. I do wish I had another option  as I hate any sort of external "entities" but with all the allergies I seem to be developing to medications etc, not chancing it. So I shall just have to keep my fingers crossed that nowt goes wrong... Hope all the news you get is good news from now on Liz.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 806

Posted: 30/08/2010 19:20

Well got some good news on Friday.  The D & C results are back and I don't have uterine cancer.  Hopefully the excessive bleeding and cramps don't start up again.  The gyne ruled out that the problem was caused due to having had Mirena for 18 months and no period and stress due to my father's death, the death of someone very close to me (both in the last 9 months), and the barrage of tests I've had to undergo for the last year.  My gyne will be monitoring my 3 benign breast lumps very, very closely (breast MRI, breast ultrasound, and mammo to be all repeated in 3 months' time).  Core biopsies to be done if necessary.  Have to have a follow up ultrasound and a visit with my gyne next week. 

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 805

Posted: 30/08/2010 19:14

Tilda, wow very shocked at your response.  You and I had pleasant discussions in the past. 

I've done nothing wrong here but share my story and what myself and others have endured and I've been attacked, bashed, degraded, and told I'm a liar.


Anon started this battle and I'm supposed to tolerate it?  I don't think so.

The solution?  She ignore my posts.  Then there will be no issues.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 804

Posted: 25/08/2010 09:43

Liz I was sharing facts, as was Barbie and becs. I am not aware of their qualifications, but I am keenly aware that the facts shared are backed by proven medical science from those who are qualified.

I hope your recovery from surgery continues to go well.

You are wrong in your statement about medical product inserts. I dont know how licensing works in Canada and it may of course be very different. In Ireland it is legally mandated (i.e. the manufacturer must, by law) that all proven side effects are listed. Without this, no medicine or medical device is licensed by the Irish Medicines Board for use here and thus annot be perscribed or imported. Hence without listing the medical facts proven by scientific research, it would not be possible to have the mirena in Ireland at all.

 
Geny

Joined: Aug 2010

Posts: 2

# 803

Posted: 25/08/2010 00:06

Hi all. Having recent problems with heavy and prolonged periods. Fibroids present but have been ruled out as a cause.This site is great source of info, thanks everyone!

 Becs mentioned a natural product, qliara. Would love to know more about it.

 
Tilda

Joined: Jan 2010

Posts: 12

# 802

Posted: 25/08/2010 00:03

JoJo, I agree with you wholeheartedly... I am sick to my back teeth of the two main contenders here in the "I'm right, no I'm right" brigade.  You know who you are (I won't name/shame you)!!! And you both should be ashamed of yourselves.  This forum is for women to discuss, not argue - leave that to the politicians. It's for women to share their problems, not have to search through the diatribe you BOTH have written in the desperate quest to "be right". There could be plenty of women out there wanting to join this discussion but won't because of you two!

The bottom line is that the Mirena is different for everyone, and that's a FACT!!! It can be good for some and bad for others and yes, one of you is right in that everything medicinal has it's side effects! Penicillan saves lives, FACT, yet it would kill me with one dose (totally allergic)! So the two of you please grow up, agree to disagree and stop b*tching at each other and just leave it at that for everyone else's sake!

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 801

Posted: 24/08/2010 20:36

Jojo, what women post on FB are not "stories".  They are true accounts of the hell that they've endured by having Mirena.  I believe that holds validity some medical lealleft does not as it's put out by the manufacturer who of course is going to praise their product to sell it.  I still have my Mirena leaflet that came with the device and now I laugh at it as it's so full of untruths.

My behaviour disgusts you?  I have no idea what behaviour your referring to as I've been nothing but pleasant even with Anon and her "gang.

Good luck to you :)

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 800

Posted: 24/08/2010 20:31

Unfortunately this page has turned into a war zone, which was started by Anon.  If you all scroll back it was her who started the war having responded negatively to my story about my Mirena struggle. 

Some need to learn to respect the feelings and struggles of others and learn from the experiences of others.  Also showing courtesy to what others have endured should be practiced on here, but sadly it's not the case.  We should be learning from shared opinions and experiences, not attack and bash.

I really don't appreciate having to defend my medical experiences and struggles 24/7 yet I feel I'm constantly forced into having to do this and that's just unfair to me. 

Everyone here is sharing opinions NOT FACTS.  No one here is medically qualified nor a medical expert so some should not pretend to be, but should behave in a realistic manner not a false one.

I'm recovering from surgery due to heavy excessive bleeding I have had for months prior to my D & C and uterine biopsies (caused by Mirena and this has been medically proven by 2 doctors) and I really don't need nor deserve childish drama. We are adults.

I have shown others nothing but respect and courtesy. Such a shame it has only been extended to me by Tilda (I thank her for that :). She is truly a classy lady.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 799

Posted: 24/08/2010 10:19

Wrong unfortunately Liz, what I along with Barbie, who was completely clear and concise, and Becs, have posted is universally recognised medical FACT proven by scientific research. You on the other hand have posted personal experiences. Very unfortunate personal experiences of course, but still personal experiences 

I agree entirely JoJo. We are here to help one another and share our expriences and what we have learned. To reassure each other and exchange what accurate medical information we have.

 
JoJo123

Joined: Jun 2009

Posts: 8

# 798

Posted: 24/08/2010 09:49

Hi All,

Im thinking this forum is turning into something we all know it shouldn't be.  Liz, I think you need to stop all this.  Each time I log on to see what post is up I am disgusted by your behaviour.  Anon, Barbie & Becs have put up medical info from leaflets.  I am on FB and I know ppl post stories up there but there is no need for all this.

I originally joined this forum for help and feedback about the Mirena because it just didnt suit me.  I was lucky that I didn't get the majorly bad symptoms, the worst was the acne and that was enough for me.  My main thing was my body rejecting it when I had it put in!

I like to come on here and see what experiences other people have had but not for this childish behaviour and it has to stop. Anyone thinking about joining this forum most likely have not due to all this bickering.

I have plenty of friends who have the Mirena and they are having no problems with it whatsoever.  Each person is different and every body is different.  We all come on here looking for reassurance from each other, not to fall out. 

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 797

Posted: 24/08/2010 02:54

And what you have posted is opinion not fact.  What I have posted is TRUTH!

Sorry but I prefer to talk to individuals who are respectful of others. 

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 796

Posted: 23/08/2010 13:57

You can disagree with opinion but not fact. But to be honest with you, I prefer to rise above the tit-for-tat and continue the discussio with becs, Barbie and those who are interested.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 795

Posted: 23/08/2010 11:00

Anon, well good for you.  We agree to disagree.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 794

Posted: 23/08/2010 09:02

Hi Barbie, hopefully when you choose to try to for a baby, treatment will have improved the extent of your symtoms and you will concieve quickly so they can be minimized. Yes, Canadian Liz, I believe the medically accurate fact which has been scientifically researched and reported forming the basis of a legal mandatory requirement for all medication licensed for use in Ireland by the IMB, over unscientific non-medical social networking sites.

 
barbie86

Joined: Feb 2008

Posts: 134

# 793

Posted: 20/08/2010 20:09

Thanks anon. I'm fortunate in some ways with endo (it's mild and can be controlled with hormones) but unfortunate in others (it's aggressive and unresponsive to surgery; one of my ovaries is stuck to my uterus which is causing chronic pelvic and back pain; without hormones my symptoms are numerous and severe). I dread the day I come to start TTC as I don't know whether I'll be able to continue working full-time, or whether my employers will be sympathetic :-( I'm just glad hormone treatments do work for me because god knows what state I'd be in otherwise! lol

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 792

Posted: 20/08/2010 18:57

Barbie, I still have the leaflet that came with my Mirena that was put out here by Bayer.  Bayer wants to encourage women to get Mirena.  They want to promote their product.

I was on the pill from May, 1991 until August, 2008 and had a period monthly like clockwork.  Then I got Mirena in August, 2008 until February, 2010 and had no period.  After having it out my periods are everywhere and I've been bleeding so heavily that I've had to take Cykokapron and undergo a D & C (3 days ago).  This has happened to millions of women and some of my friends as well, so it's not ludicrous that women don't have a period with Mirena.  It's truth.  There is no lining build up and Mirena is much stronger than the pill since it's at the source (the uterus).  The pill loses effectiveness as it travels throught the body.

Anon, so you believe a leaflet is more accurate than various FB pages continuing truthful comments from millions of women who have encountered medical issues from Mirena.  Sad.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 791

Posted: 20/08/2010 15:36

Hi barbie, that's true - I wasn't given the leaflet initially at my insertion appointment but it as given on request. Now, it's a mandatory requirement for patients to be given it. I had gone onlie nto read at beforehand tho and as fafr as I know the manufacturer will still give online access to it on request.

Absolutely correct, even the side effecs for aspirin an be extremely severe if taken by someone for whom it is unsuitable.

Sounds like you're having a dreadful experince wih Endo. Hope Cezarete continues to provide you with the relief you need.

 
barbie86

Joined: Feb 2008

Posts: 134

# 790

Posted: 20/08/2010 15:08

Hi becs, I also found the Mirena didn't help with my endo. Basically, without hormones my periods are 8 days of hell every 3 weeks, including 3 days of extremely severe pain (I nearly wet myself once because it took me 15 mins to crawl out of bed and down the hall about 5 paces to the loo; I've also vomited, and regularly get to a point when I'm unaware of anything apart from the pain (I don't know where I am, I'm not aware of people talking to me, etc)). Unfortunately, the Mirena caused severe abdo pain almost constantly from week 6 onwards, so in the end I figured 3 days a month of 9/10 pain was probably better than constant 7-8/10 pain, and decided to go hormone-free (which I'm afraid lasted just 2 months as I'd forgotten just how bad the pain was; I went on the injection and am now on Cerazette, and will not go hormone free again until I have to (when I start TTC).

The Mirena definitely isn't for everyone (inc me; although, I think in my case the pain was almost definitely because I've never been pregnant; the risk of abdo pain in these cases is VERY high), but it does suit about 90%.

BTW Endometriosis UK is a great charity with loads of info and a forum for support; I've found them very helpful :-)

 
barbie86

Joined: Feb 2008

Posts: 134

# 789

Posted: 20/08/2010 14:09

Hi, my source is the Mirena manufacturers leaflet; I was given it when mine was inserted, though a lot of women aren't, and last time I checked, it's hard to get hold of on-line (my guess would be because the sheer number and potential severity of side effects might scare people off or prevent them from making a rational decision). Every med I've ever taken has listed all potential side effects; you should check out the leaflets that come with plain, 'safe' old paracetamol and ibuprofen, where heart attack, stroke and death are among the rare but possible risks; likewise, the combined pill carries very similar risks. Drugs manufacturers, along with the prescribing physician, have a duty of care to patients, and as such the manufacturers leaflet will always state ingredients, plus ALL KNOWN side effects.

I am not saying that Liz's experience is absolutely not linked to the Mirena; all I am saying is that, just as womb perforation and PID (which can be extremely serious and can result in infertility) are listed as possible risks to Mirena use, if this were a known possibility, it would be mentioned. To suggest otherwise is IMO a little misguided. Further, the suggestion that the Mirena is dangerous because it stops menstruation is a ludicrous one, for the reasons I've given in an earlier post: menstruation is not medically necessary, with many hormonal contraceptives stopping menstruation.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 788

Posted: 20/08/2010 11:25

Canadian Liz, no-one is "bashing you for kicks". For the FOURTH time, I am not calling you or anyone a liar. I absolutely REFUTE that accusation and advise you to withdraw it. I simply said exactly the same thing as Barbie ( and the Irish medical board of qualified gynaecologists) with regard to side-effects. Nobody is implying you are an idiot - honestly, catch yourself on, please. I am not "acting" like anything, I like Barbie, am simply sharing what is recognised medical fact.   HOW DARE you say I am endangering the health of women - that is ridiculous. I am sure Barbie would be happy to share her source with you and indeed the IFPA (as I told you earlier) or Wellwoman or Everywoman clinic also have information to a similar accord. Nobody hates you for goodness sake - please don't descend into paranoia.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 787

Posted: 19/08/2010 13:53

Anon, so you have documentation confirming what Barbie is posting is medically accurate?  LOL I thought not!  So let me guess you agree with people you like but attack people you hate who are right with no justification.  I get ya!

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 786

Posted: 19/08/2010 13:51

Becs, yes I am quite fed up and you would be too if you had a know it all like Anon constantly bashing you for kicks and implying you and millions of other women are liars about the cause of their medical issues.  She continuously implies that I'm an idiot and wrong about everything I comment on when she's on here shooting off her mouth when she has NO medical qualifications and acting like she's a medical expert when she is in fact NOT.  She's endangering the health of women and that is so wrong. If you want to side with someone like that be my guest.

Yes quite some time ago (when I first got Mirena) I did praise it then all the medical issues started flaring up because of it.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 785

Posted: 19/08/2010 08:39

Further excellent posts from Barbie. Informatiave, completely factual and entirely medically accurate. We could do with more like yourself on this thread Barbie. Hope all goes well for you on Monday.

 
becs

Joined: Mar 2009

Posts: 17

# 784

Posted: 18/08/2010 21:39

hi barbie,your grand ,yes i know there was no cure just treatments and trust me i've had them all.i found the coil was the worse really just didn't agree with me and as soon as it came out i felt much better.even though i was dreading the heavy painful periods for me it was a better option rather than the coil.i will stick with tis new pill qliara,so far so good.i get a period on day 27 of taking it but its gone a few days later.i get slight cramping and i mean slight nothing that requires a painkiller for, before that, even on mirena,ponston was my best friend and had to take tablets to stop me bleeding, again, even with mirena.i kept in for 2 years hoping things would improve but sadly things only got worse.

i have to say liz from reading these comments,you come across that just cos mirena didn't agree with you then everyone else is wrong,afterall this thread is for women who want a rant and just pass on their experiences with mirena or anything else.it didn't agree with me but that doesn't mean that it doesn't agree with some else,every woman is different. the fact you seem a bit angry or hormonal might not be the mirena's fault.i think i remember you from a year and a half saying how great the mirena was,and the doctors you had we're brillant.also how your friends that was a gyne agreed with mirena and so did you.could be wrong but think their is only 1 canadian liz on this.

 
barbie86

Joined: Feb 2008

Posts: 134

# 783

Posted: 18/08/2010 15:49

Hi becs, I'm sure you know this so apologies in advance, but re what the doctor said, there is no 'cure' for endo; methods like the pill can help symptoms and can help suppress the condition, but they won't get rid of it unfortunately. That said, surgical treatment is effective for 5 years in 50% of cases.

If you want any info on endo (as it sounds like they've not exactly been that helpful since your diagnosis!) please feel free to ask. I was diagnosed in April 2009 and am having my second laparoscopy on Monday :-(

 
barbie86

Joined: Feb 2008

Posts: 134

# 782

Posted: 18/08/2010 15:45

As far as experiencing issues after removal of the Mirena goes:

First and foremost, methods like the Mirena undergo extensive medical testing. However, testing can only go so far and occasionally, some side effects may not be recognised as linked to a medication at first. However, manufacturers want to cover themselves and avoid lawsuits so you can bet that in most cases, any side effect that can conceivably be linked, will be covered. The Mirena manufacturers leaflet lists the following:

Very common (more than 1 in 10): menstrual changes; ovarian cysts

Common (between 1 in 10 and 1 in 100): bloating or swelling of legs and ankles; weight gain; depression, nervousness, other mood changes; headache; abdominal, pelvic, or back pain; nausea; acne; painful periods; increased vaginal discharge; cervicitis; tender, painful breasts; expulsion

Uncommon (1 in 100 - 1 in 1000): genital infections, causing painful urination, inflammation of the womb, ovaries, and fallopian tubes, abdo pain, or vaginal itching; increased hair growth; hair loss; itchy skin

Rare (less than 1 in 1000): loss of libido; migraine; bloated abdomen; rashes or eczema; womb perforation; PID; ectopic pregnancy.

Second, because methods like the Mirena stop menstruation they can mask the symptoms of conditions like endo. So, when symptoms then occur when periods return, some women may link this to the Mirena even though the two are entirely unconnected. For instance, I had awful periods when I was younger, but was told this was 'normal for young girls' and would 'go away'. I spent 6 years on the pill which drammatically reduced symptoms, then had a Mirena for 6 months, before having it removed due to abdo pain, and opting to go 'hormone free' for 6 months. The horrendous pain that I'd been led to believe should have gone, and that I hadn't had for over 6 years, came back instantly. Some women may have blamed this on the Mirena (in fact, I though that it might be because I hadn't had a 'proper period' for 6 1/2 years that it was so bad), but actually, it was the endo all along. It is easy for people, esp those without medical knowledge, to jump to conclusions; another example is people blaming the last thing they ate for food poisoning, when in some cases it could be caused by something they ate as much as 3 or 4 days previously.

 
barbie86

Joined: Feb 2008

Posts: 134

# 781

Posted: 18/08/2010 15:27

Re cessation of periods:

Numerous methods of contraception can result in the cessation of menstruation, including: the Mirena IUS; the Depo Provera injection; the contraceptive patch; the mini-pill; the Nuva ring; the contraceptive implant. Further, the 'period' you get on the combined pill is not actually a proper period: it is a bleed designed to replicate a normal cycle for those women who prefer a 'normal' cycle. There is no medical reason why you need to menstruate; indeed, in some cases (such as women like myself who have endometriosis) menstruation can have more cons than pros (causing horrendous symptoms and also allowing the condition to grow and spread, causing more implications for the future). In the USA, women commonly run up to 1 years worth of the combined pill back-to-back without a break; in the UK this is less common, but many women do run packs back-to-back to treat conditions like endo (in the past I've run up to 6 packets together without a break for a bleed). This is perfectly medically safe because as stated, the bleed you get on hormonal contraceptives like the pill is NOT a proper period and medically speaking is unnecessary.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 780

Posted: 18/08/2010 09:37

"Blah, blah whatever. Done with your bs". As I already said, the admin already reviews all posts and accepts or rejects them on grounds of suitability.

Glad to hear your D & C went so well and it sounds like you're in good hands. Hopefully the cramps and bleeding will ease soon and your follow up will go well.

 
Canadian Liz

Joined: Aug 2008

Posts: 223

# 779

Posted: 18/08/2010 01:55

Blah, blah whatever.  Done with your bs.  The admins on this site can deal with you.

Had my D & C today.  It went wonderfully, my gyne was fab as always.  I have some pain meds if needed, strong cramps, and light bleeding.  I have a follow up scheduled in a few weeks to get the results.  Hopefully they're positive and having had Mirena didn't do any internal damage.

 
Anonymous

Joined: Jan 2001

Posts: 12,056

# 778

Posted: 17/08/2010 09:46

I most certainly have NOT implied any such thing, you are simply reading something into my post which is not there.

None of the links you have provided are links to medical websites. By medical I mean websites such as JAMA, BMJ or Medscape or any other internationally recognise medical websites - with scientifically proven facts provided by medical doctors. 

I have provided ONLY facts in my posts and any opinions are prefaced by my referring to them as such. Where EXACTLY did I say I anything about my having a medical qualififcation - again you are choosing to read things into other pepes posts which are not there.

 Barbie has also provided a very clear, informative and detailed post which is entirely medically factual and can be completely backed up by anything from the IFPA or the Everywoman / Wellwoman clinics - (ifpa.ie) - go and read it.

You posted your own very unfortunate personal experience - which is YOURS and does not represent overall medicla fact for even a majority of women which can be very clearly seen by the MEDICAL FACTS posted by Barbie. These are the facts every women is entitled to know. Yes there are risk but as in every medical procedure, it is a case of risks vs benefits - even an aspirin can kill. Levongersterol is a universally medically recognised synthetic hormone, sythesised to the progesterone the female body produces. Again, you have not provided by medically recognised links to indicate anything else.

Hi becs thanks for the info. Very useful. Sounds like your previous Dr was too quick to try to rush you into surgery. Hope the new pill continues to help. Best of luck.

 
becs

Joined: Mar 2009

Posts: 17

# 777

Posted: 16/08/2010 21:32

hi anonymous,

yes qliara is a new pill only available i think since the end of last year or start of this one.i had lasar treatment done for endo when getting a treatment for cin 3.well thats what my doctor said to be honest i had to change doctor he was not the best too much to go into on here,but one thing that i would say is he was trying to presuade me to get a hysterectomy and then 9 months later told me i didn't need one and that i would be cured from endo within the next few years.

 
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