At the moment I have been diagnosed with Labrynthitis. Have had lots of physio from a Vistibular Physiotherapist but unfortunately I still have dizziness & off balance in i.e. supermarkets or busy places. I am to go to The Beacon in Dublin for Balance Test next week. It is quite expensive & not covered by VHI. I live in Cork. Would love to know is there a similar facility in Cork or has anybody any experience of Balance Test in the Beacon.
Any advice would be appreciated.
Just responding to Neesee. Stemitil is an anti-nausea drug, as far as I understand it. It isn't actually doing anything for the vertigo itself. I had similar symptoms beginning in 2010 - regular vertigo attacks leading to nausea and nothing to be done except lying down until it passed., which usually took 4-8 hours. I eventually was referred on to an ear specialist who diagnosed Menieres disease, which is a disorder of the inner ear that causes hearing loss, tinnitus and vertigo. I was put on a drug called SERC for the vertigo, stemitil for the nausea and, when the stemitil didn't really work, a stronger anti-nausea drug that still didn't really help. I don't want to alarm you but just to be straight, I was getting regular (i.e. at least monthly, sometimes weekly) attacks right up to 2013 until it burned itself out with bad hearing loss in one ear. Hopefully this is not what you have; hopefully your vertigo is a temporary thing caused by something else. BUT just in case I would urge you to get on to your GP about being referred on to an ear specialist if it doesn't clear up in a week or two.
And I would also say that even if you do have Menieres, I did come through on the other side eventually and there are ways you can manage things so that disruption is minimised.
One key thing to be careful of is to avoid falling in to the trap of getting anxious about getting a vertigo attack. You can find that you start worrying about travel abroad or other things in the future becuase "what if I get an attack". This happened to me for a while until I get on top of it, and it can take over your life. I'd really just urge you to take it a day at a time, and if it happens know that you will cope, even with the four kids, jobs, flights, etc. I had attacks while doing public speaking, on holiday (twice!) and at my father's funeral! And I lived to tell the tale. So try not to get anxious about it, becuase that is a real risk. Two other things that worked for me -
1. Cut out caffeine - I did this and it helped a lot.
2. Try to reduce stress (difficult I know) but again it might help.
My meds took about 6 weeks to work. My vertigo is still ongoing after 15 weeks altho now under control with Serc16 (I am gradually coming off Stemitil as told by my GP hat over use can cause Parkinson type side effects). I am still very dizzy first thing in the morning and need to eat and take meds before I feel 'human'. I began driving 4 weeks ago but only when I feel it is safe and I went back to work today for the first time in 15 weeks.
Hi, I am new on here & in need of some help/advice. 2 days ago I woke up feeling dizzy when walking about then yesterday it got really bad to the point of just moving my eyes made me feel dizzy & nauseous, I have a constant buzzing in my ears but when I move it goes to a very loud pulsating noise & I feel as if I'm going to fall over & the room is spinning.
I went to my GP today who informed me I had vertigo & tinnitus he prescribed me Stemetil 5mg twice daily. I'm a mum of four so very busy but have just had to take to bed as I can't move my eyes/head without feeling sick & dizzy.
I am wondering has anyone taken this medicine & how long does it take to work if it will work? I'm traveling to Florida end of Sept with my family & im so hoping I will be over this by then as I can't imagine a 10hr flight feeling like this & then not being able to enjoy our special trip to Orlando.
Many thanks to anyone who can offer me any tips or advice.
I had a vertigo attack 12 yrs ago that lasted a week. This attack started over 3 weeks ago and has veen horrendous. I can't drive or work I'm on Stemetil and Serc16 and still very dizzy yet suddenly last night it went!!! Lying in bed and and still no dizziness. I am praying it has disappeared as quickly as it arrived
Hi Im new to this site, found it by accident but im so glad to find that there are others out there with the same condition. I've had vertigo on and off for about one and a half years. I didn't know there were different types my doc just told me I had vertigo and prescribed serc 16. While its a help it dosn't allieviate the symptoms completely, I still get disorientated and each day I wake up wondering will I make it to work today, as walking can be difficult when you feel like your legs are going to buckle under you. Sometimes when stopped at a crossing and the lights change I find that I can't move as I have to focus on how big a step I need to take to get down to the road. Most drivers look at me as though Im nuts. I work in an office that deals with the public and sometimes I stumble around the waiting area trying to get to reception, and lately I find that i'm developing a shake in my hands. Waiting for a bus is a nightmare and I keep feeling as though i'm going to fall over, but knowing now that i'm not on my own helps.
can anyone tell me if it is safe to fly to England next week?I was diagnosed last week and am on Serc
Vertigo is different for everyone, but one friend who'd experienced it said that it's three very bad weeks, three weeks of somewhat bad but mostly bearable, and then three weeks with it kind of lurking in the background - it might come on a bit if you've a cold or are run-down.
I had very bad vertigo two months ago (and posted to this site at the time), but after about a month it was under control, though I still am occasionally disorientated. I used SERC, which may have helped, though it's not clear to me whether the vertigo would have gone away anyway. I am now off all medication and it's okay. But I completely understand and relate to that feeling of waking up every morning hoping you'll be okay. Keep your spirits up because it does get better eventually!
Eversince falling in washroom 30 days earlier i am having vertigo.I went to ENT and then to Neurologist for this.My ECG,EEG,CT SCAN,neck X-ray have been done.All these tests are clear by thr grace of God.During first week i was put at Strugen and now i am having Serc 16 for last 10 days.My vertigo is 80% better.This waiting period of complete recovery is very agonising.Every morning i get up with ahope that may be i am over with it today.Anyone with this experience can tell me how long my vertigo still take to settle?
Im so relieved that I am not on my own with god awful disorder, I was told i had it when i was 17, as far as i remember it wasnt too bad, just a little bit of dizziness here and there, i was put on steriods and some other tablets which i cant remember the name and after a while i was fine...
I then began to get older, with no dizziness and thought to myself was that all in my head because i was grand since, about 6-8 weeks ago it hit my like a train that i wasnt all in my head, and it was back with a vengance..
The dizziness started fairly mild and I could still continue with my day as normal, then i couldnt keep myself steady and could stand for too long for fear i might fall over, then the headaches started, after that came the nausea and vomiting..
I thought today i finally had to go to the doctor, she prescribed me with Serc-16.i hope they dont take long to start working, im in college studying Nursing and its very hard to concentrate when my head is spinning..
I find that driving really makes it worse and actually brings it on, but im 22 and i need to drive myself to college, i dont have another choice, anyone have any advise on how to make driving easier??...Id really appriciate and try anything that might just make my day easier..
Huge empathy for you, if you would like tips for handling your vertigo or just to let off steam please pm me on email@example.com
Warm wishes and good health
Like many people who have posted here, I have recently experienced vertigo.
About two weeks ago, I was suddenly struck by a feeling of dizziness. I lay down for an hour before I started to feel better. When I woke the next morning, I was a bit groggy, but felt fine and forgot about it. One week ago, I was flying back to Ireland (short flight - about 2 hours' long), when the dizziness returned, this time far worse. I felt completely incapable of moving, and any attempt to do so resulted in an awful feeling of nausea. When I got off the plane, I was physically sick.
Since that time, I have had constant dizziness (with different levels of severity, ranging from light-headedness to complete inability to move) and ringing in my ear, and near constant nausea. On 5-6 occasions, that dizziness has intensified to the point where everything seems to spin, where movement is impossible - and in all cases, I've been physically sick.
I have pain in my right ear, and indeed over the last year or so had been to my GP about slight hearing loss in that ear, and was (and still am) awaiting an appointment with ENT specialist.
So basically the condition is that I've had hearing loss gradually over the last six months, and then had one dizzy spell, followed by another far more serious dizzy spell which has lasted (with varying degrees of intensity) for well over a week. My hearing is okay, except that I have a ringing in my ear. I have occasional pain in my hear which radiates down to the back of my neck. I'm a 35-year-old male in otherwise good health.
My GP has given me bi-vurten, and I am taking 6 of those every day (that is 3 x 2). It's made some difference, but not much. Certainly not enough to allow me to do things that I need to do - like going to work, doing jobs around the house, etc. Like many people who've already contributed to this forum, I find the idea of going outside slightly nerve-wracking, from fear that I'll be sick or get 'stuck' (as I was during the last week when I found myself having to cling on to a bus-stop for 20 minutes before I could move off).I am still going outside anyway, but it's getting to be a strain.
My wife is doing her best to support me, but I can see that it's starting to take its toll on her that she has to take on so much of the work around the house and looking after our child etc. I'm fortunate in that I can do a lot of my work from home but because I'm not 100% I'm starting to fall behind. So I'm running out of patience, and feel like I'm really starting to be a burden.
I'm very concerned about all of this because I've never really been sick for so long (nine days now and counting). I've seen from some of the contributions that this condition can go on, and on, and on. I guess it seems like I just need to wait to see the ENT specialist, and by the sound of things on other posts I can expect an MRI scan etc.
But if anyone has any suggestions for things I can do, if only just to manage the dizziness a bit better, I'd be very glad to hear them.
The vertigo is set off by many things and the key is not to avoid those situations but to confront them head on. I know it is scarey but if you start with the avoidance as I did 4 years ago it will creep up on you again! My ENT says that the virus can lay dormant and flare up. If you have been diagnosed with Labrynthitis for definete then I would ABSOLUTELY seek help from a Vestibular Rehabilitaion Therapist. I am 5 months in now and I am back shopping with the kids,attending family events,going to dinner,all of the things that I had avoided for years! If you need any info or just want to vent about your fears etc. please email me on firstname.lastname@example.org
Don't give up becasue you are not alone! This is something that can be controlled once you stop letting it control you :)
Please please look up this site as it helped for me to realise I wasn't alone with this:
*Ps any stimulants coffee,sugar,alcohol,motion in cars,lifts,even someone moving the bed when you are sitting on it can bring on the dizzies so best to cut down or out altogether :) (not the bed part ha ha ha although it really helps if your partner/kids understand why you need balance sometimes so theyneed to support you)
I was too quick to think I was on my way to get better. Two days ago I got a really bad head ache and took some tablets, then the day after, yesterday I was dizzy again. Today it is even worst. I'm so upset, I thought I was out of the woods. I'm going back to the doctor tomorrow to see what he says. I haven't been back since the first appointment so I assume it is for the best.
Hi. I am new to this website. I put in a search for serc 16 and here I am. I am at the moment at home from work following my third bout of vertigo since Christmas eve. Doc reckons I came off the Serc way to soon (I stopped taking it as soon as I felt better!!) and that is why the re-occurence. I am at the moment on both Serc and Stemitil even though I have stopped vomiting and being Nautious. Doc says I have to stay on them for a month. Like everyone else here I am so scared and confused. I know that there is nothing dangerous about this but that is no good to you when you are spending days in bed and can't stop getting sick with all the dizziness ets. I have been diagnosed with Labrynitis and I have had an MRI which came back normal, which I know is great news!! I have had episodes since 2007-2008 and they seem to be getting more frequent. I nearly missed my son's communion last May and I am dreading my Son's confirmation in April as I think I am going to be sick - which is awful. Hubby dosen't seem to get this fear and tells me not too worry about things I have no control over.
I am sorry for about the waffle on and would really like to know is anyone on both Serc and Stemitil at the same time for a long period of time. Also I am very interested in the foods etc. I wasn't aware that certain foods could bring on attacks and please don't tell me Chocolate can or else I will be really upset ..
Great to hear!glad you both coping and looking forward
Out of interest I was wondering how people would feel about a "Dizzy" based information website/support group? The worst part of alot of vertigo based conditions is that you feel so confused and uninformed.
Please email me with your views email@example.com
Thanks Lou, Anneli
Nice to know it's not just me. I had a bad cold for about ten days before the vertigo hit. Thought I was just about getting rid of the cold, and then the dizziness started. I'll try be more patient with the medication. Doc upped the dosage yesterday, and I think there may be a small improvement today, so I'll keep hopeful. Thanks for your advice/support.
Empathy first of all, we all know what you are going through :(
Were you ill before you had the attack of vertigo? Was the initial attack for very long and was there vomitting etc..? Neither of the drugs will work immediately im afraid and I know that is the ab worst thing you could hear right now. Either could work eventually but you really need to investigate why you have had a sudden attack of vertigo. Did you have a cold prior to this? Ear problems,blow to the head etc..? Only a very small number of vertigo cases are serious but they are all a symtom of something else not a condition in itself. Could just be stress or migranes etc.. did you have a particularly stressful xmas? (i know they all stressful:)
Jackie its not all bad there are tonnes of things to do to get yourself back on track,mainly positive thinking,dont stress yourself further. Try not to let the dizziness inhibate you,push through it if you can :) Diet and exercise can help heaps and chatting to a family member or hubbie etc.. can take a tonne of stress off.
If you still bad after a week go back to your doc again!
Feel free to email me firstname.lastname@example.org
Lou (dizzies for 4years due to viral ear infection)
I was on Serc 16 and then Prochlorperazine that is probably more or less the same as Stemetil. I took myself off them as they didn't do anything for me. The latter just made me more dizzy and more unstable when I was walking. Now I'm slowly getting better, most of my dizzyness is gone but I still loose my balance at times. My head is also better, I can think better and it is not fuzzy any more. Today is my 18th day since it started. I'm crossing my fingers that I might be back at work in a week or two. I'm also confined to home since it started. I hope you feel better soon Jackie.
All the best
I had sudden onset of vertigo last Monday 11th Jan. Been confined to home since then. Serc-16 didn't help at all, and after 5 days on that I was switched to Stemetil. It's now day 4 on that, and I'm as bad as ever, heavy, painful headache, fuzziness, behind my eyes sore. Is there hope that the tablets will eventually kick in and let me get back to work and back to normal?
Thanks for your reply. No I did not have a cold but my right ear was ringing as it can do sometimes, not often though. I am fine otherwise, but got migraine sometimes. My doctor thought it is Vertigo and based that on while doing the pen test my eyes where jumping when following the pen. I will follow your advise and go back as I have had it for 11 days now and no change at all.
Also did you have a cold or any ear problems prior to new years?
go check out some very simple vrt (vestibular rehabilitation therapy) exercises online but do them with someone with you xx
Empathy first of all :( secondly did the doctor give you a diagnosis or say what he thought it might be? Are you normally in good health etc..? Serc will work but it depends on what is wrong with you really. If it is a viral thing and you have some sort of inflammation it could take a while longer for you to feel right again,if you have say BBPV you could fix the dizziness with a trip to the ENT to have the Eply exercises done. Dizziness is a symptom not a condition so I would go back to your doctor if you are still not well after a few days, ask questions its your health!
I woke up on new years day feeling really dizzy, went to my GP last Tuesday and was prescribed Serc for Vertigo. I feel really bad with constant dizzyness if I move the slightest but if i am still it's not so bad. But I found it a nightmare, I can't drive so I can't work. I can't walk strait so can't go out. Been reading everything I can find on the net, that has helped a bit. You are saying a while for the tablets to work is that like a few days or so?
They take a little while to work but what were you prescribed Serc for?
Lou (Please feel free to email me email@example.com)
I have been priscribed Serc 16 by my doctor but they don't seem to do anything for me. How long does it take for them to work? Do I need to take them for a few days befor I would notice any changes or do they work instantly?
hi guys - I work for the health section in the Irish Times and I am writing a piece about the impact that vertigo has on people's lives. It's an issue that hasn't received much if any attention in the health media and there is a lot of confusion about what causes it, what impact is etc. I am interested in talking to someone who has vertigo about what impact it has on their lives, what treatment options are, what symptoms they get etc. If anyone is interested please drop me an email to firstname.lastname@example.org or call 087 987 1080. This is for next Tuesday's health supplement (12th Jan 2010) so will need to talk by end of tomorrow (6th). Best Regards Michael Kelly.
Physio works but you have to stick with it,it wont happen over night. Some people I have spoken to are into their 2nd year and still a little dizzy sometimes. When you haven't had an episode for 2 full weeks, you are considered "cured" but my ENT says that some people will always be dizzy even a little but that your brain will eventually compensate. My own GP says and quote vertigo is not a condition it is a symptom and I ab agree with him. Although certain foods,alcohol,caffine even a severe drop in pressure in the weather can affect vertigo,they are not the cause and further tests should always be carried out to rule out other conditions such as meniere's etc..
my answere to your mail, do u used vinegar in any of your cooking, i was told by a specialiast that vinegar can cause this, i have stop using it, but i do get a dizzy head now and then virtigo is not curable, but its not dangerouse to have either, so no worries, serce is the best for it as that doesnt make you drowsey like stemital.
Can anybody tell me if they have the same symptoms as I do? Basically I have been diagnosed with vertigo since June 09 and only recently (due to the epley manouvre) have I stopped spinning but I am left with a very heavy, foggy feeling in my head and eyes. This is worse when I go outdoors. Thankfully I also have good days but then I can have very bad days where all I can do it lie down. I am on Serc and attend the physio but I am really not sure if either are helping. Would really appreciate some advice.. M.
Hi to all fellow "Dizzies"
I am on week 8 of Vestibular Rehabilitation and I have to say it is easing alot and even better news I am completely Serc free :) I too couldn't have imagined being without them but from day 1 the physio said to me 'don't be afraid of your dizziness,we want to nudge that dizziness and take back control'-I have been to Physio place in Airside and bought the Airex balance pad and a wobble board (too soon for the latter just yet!) and the pad helps so much. I do a set of 8 mini exercies every day,meant to be twice but I just cant face sometime. Also been given a walking program just 5mins a day,just to get some fresh air and it is effective. Bad news,I have completely cut out coffee and alcohol and I am sleeping so much better,I miss being able to have my cuppah but I dont miss the after affects! I have been living with dizziness for 4 years now and in the past 8 weeks I feel I have really turned a corner,it is incredibly hard and you have to push through and ultimately have to do all the work yourself but when I went into a shop with my girls the other day for the first time in over a year and saw their faces it was worth a million euros to me believe me!
Also check out http://www.labyrinthitis.org.uk/ I find their info great!
Good luck & stay strong!
All I can say is that Epley works for me. It does have to be done exactly right, which is why it helps to have a doc. There is a good little vid on YouTube - thinking about it there are a few that are not so good so I'll try and find the good one and post it here.
serce is very good, i'm on them too, but do you use vineger, if so stop, as this doesn't help with the vertigo,
I actually have been diagnosed with left benign positional vertigo by a specialist and I do take serc 16mg. I also do the exercises that you are talking about and it still lasts multiple days.
I am so scared to quit taking the serc because i do not want to get it back so i take it once a day before i go to bed.
any other suggestions or advice for me - it is starting to run my life instead of me running my life.
actually i have been diagnosed from a specialist as left benign positional vertigo and i do the exercises and it still last for days at a time.
If you look at my message of 27/7 it explains a bit about the commonest form of vertigo, BBPV, which I too suffer from time to time. The first thing to do is decide whether or not that's your problem. If it is, try the Epley Manoevre. You'll be back at work the next day!
your job has no right to tell u your job is gone because you suffer with virtigo, virtigo is a terrible thing to have, it lasts for 8 weeks, noone can help that. do u use vinegar on anything. and what did u get for your virtigo,.
I would like to know how anyone deals with vertigo and working???
My work place is threatening to fire me because of all the days i am missing due to vertigo.
I would like to know how others maintain a job when you need to be off sick when i frequently get spells of vertigo??
Vertigo is more than a slight disruption in my life, i need any kind of advice i can get.
Thanks Lou, bit too far away tho, I'm almost on the west coast. Epley does work at home. When I've got bad vertigo I have to sleep on one side. If I turn in the night the whole world spins. In the most recent episode I had, it was turning to the left that was the trigger (also looking up). At first I thought it was the right ear that was affected, but when Epley didn't work that way, tried the opposite. Immediately afterwards, I was able to turn whichever way I wanted! That was a couple of weeks ago, and no more trouble. If my guess is correct then, if you spin when turning to the left (in bed) then the left ear is the culprit. There is a thing called 'Dix-Hallpike' which is a more accurate measure, but you have to wear special glasses so that your eye movement can be monitored during treatment.
For some of those who've posted messages, basically there's nothing to fear about BPPV, it's more annoying than anything else. Personally I've never had it whilst driving, it's always turning, bending or looking up. You get used to it, and it usually goes away without treatment. But Epley rules!
BPPV just diagnosed a while ago and the ENT showed me how to do the Eply exercises at home - I tried them and didnt see any difference but felt that I should go to a vestibular rehabilitation physio as I have read tonnes of positive articles about them. The guy I found is John Maguire in The Grange Clinic in Donaghmede and he also works out of Drogheda. If you would like his number please email me email@example.com There is also a guy who works out of the eye and ear hospital on the south side of Dublin.