ADVERTISEMENT
157,999 registered users

| |
(Saturday, 1st Nov, 2014)

Do I have Fibromyalgia?

45 Comments
Sort by
Join the discussion...

38 Posts

Cara  ·  25 Jan 2011

To Mary who has the prolapsed disc firstly. Mary, did you have mri done on your neck? I'm just curious. I got my symptoms very suddenly when my son was 8wks old, i got blurred vision and a bad headache and have been suffering with fatigue,heavy/woozy head and stiffness up the back of my head ever since. It spread down my neck in recent months and down my back so i'm thinking it's fibromyalgia. I had mri of my neck and brain which were both clear. I have constant extreme fatigue and nausea from time to time. Since christmas i have severe pain in all my muscles and it spreads to my arms/legs, feels like a bad flu. I have good days and bad. Has anyone found anything to help with the fatigue or do ye have fatigue with the pain??

 

7 Posts

galeforce  ·  08 Nov 2006
hi all, after years of time with three different GPs, consultants and specialists i was dianosed with fm. I have been in pain most of my 29 years and was put on 20-30mgs of cipramil, lexapro or seroxat at different times since the age of 23. nothing worked only my own pure stubborness not to accept fm as a diagnosis. I battlled with the diagnosis for the simple reason thet some people said it was all in my head. And they were right......but for the wrong reason. It is a nuerological problem that is aggravated to a high level by stress, anxiety, over exertion and the poor understanding of it by some professionals.
so here's the criteria... if you not been diagnosed with any other disease and the professionals are sure you dont have any other illness like lupus. rhumatoid arthritis, etc, be happy you now know you have something that is finally getting recognition.
so heres the low down, your condition has no origin, no statistics, no official protocol and most importantly is a very individual condition. What has worked for me may not work for you.
I gave up drinking and smoking, try my best to eat healthily and maintain my weight. regular massage. GENTLE EXERCISE and generally lead an easy life by working part time and for going foreign holidays, brand names and major socialising.
I have almost lost my sanity to pain and misunderstanding of this condition. It is my strong opinion that fibromyalgia is an allergic reaction to modern living. keep happy
 

- Posts

Anonymous  ·  27 Oct 2006
I would def find a registered one!

- I found my chiropractor to be the turning point - Oestopaths are fine but I found limited and not as effective or helpful for me as a chiro that does; AK and functional biochemistry as mine has. This now means I have a much better quality of life and much less pain.

I am in the UK so I can not help with Ireland
good luck
 

- Posts

Anonymous  ·  27 Oct 2006
Rosebud, your GP can refer you to an orthopaedic care team or oesteopathic doctor. Be very caeful with chiropractors as not all of them are registered and those who aren't can sometimes do more harm than good.
 

8 Posts

Mary  ·  26 Oct 2006
For anyone who has M.E.(also known as Chronic Fatigue Syndrome) it's a good idea to join the Irish ME/CFS Support Group. (Contact info@irishmecfs.org for a free info pack).
If you decide to join, you will get a regular newsletter which is a great source of information about M.E., including the latest research and treatments that patients find helpful. You will also be able to contact other sufferers.
 

2 Posts

mel22  ·  26 Oct 2006
not sure about FM but was diagnosed with ME over a year ago and was v bad. my GP-prescribed gradual exercise program made me so much worse. managed to return to better health than before diagnosis by going on a very strict anti-candida diet and taking things to kill candida. Many of the symptoms of CFS/ME overlap with those caused by an overgrowth of Candida so its worth treating. you would not believe that an overgrowth of yeasts could make you so seriously ill but it's possible. Check it out on the net or with an alternative medicine practitioner, a GP will not be much use for this one, unless v enlightened.
 

2 Posts

Mary (YGS52600)  ·  26 Oct 2006
If you do not have access to an orthapaedic physician I would suggest you make an appointment with an osteopath or chiropractor.
They would be your first port of call, and can
then refer you to the appropriate experts if you are
not making progress.
 

- Posts

Anonymous  ·  23 Oct 2006
I often have muscle pains around my shoulders and back but have not been diagnosed with fibromyalgia. I have bulging discs in my neck. but have often wondered if i have this condition how do i go about finding out if i have it?
 

2 Posts

Mary (YGS52600)  ·  16 Oct 2006
AFTER MONTHS OF PAIN, WHICH STARTED IN MY NECK AND GOT WORSE AND WORSE, AND SPREAD ALL OVER, I WAS DIAGNOSED WITH FIBRO BY A CONSULTANT RHEUMATOLOGIST EARLIER THIS YEAR. HOWEVER, I COULD NOT ACCEPT THIS DIAGNOSIS, IT JUST SEEMED TO BE TOO SIMPLISTIC, I.E. NO OTHER EXPLANATION FOR SYMPTOMS, NO REAL CAUSE AND NO REAL CURE. AT AN APPOINTMENT WITH A MASSAGE THERAPIST SHE COMMENTED THAT MY POSTURE WAS ALL WRONG.

THIS LED ME TO MAKE AN APPOINTMENT WITH A
ORTHOPEDIC PHYSICIAN WHO SAID IT WAS THE FIRST THING HE NOTICED ABOUT ME, HE HAS DIAGNOSED A PROLAPSED CERVICAL DISC, WHICH SENDS PAIN UP MY NECK, ACROSS MY SHOULDER, DOWN MY ARM, CAUSES PINS AND NEEDLES AND NUMBNESS, HEADACHES, ELECTRIC SHOCK-LIKE SENSATIONS, ETC.. THIS OF COURSE WAS LEADING TO A LOT OF STRESS AND WORRY, WHICH WAS MAKING EVERYTHING WORSE, DUE TO TIGHTENING OF MUSCLES.

ANYWAY, HE GOT ME TO GET A BOOK CALLED
"TREAT YOUR OWN NECK", BY DR. ROBIN MCKENSIE, AND DO THE EXERCISES SHOWN THERIN. IT IS NOW TWO WEEKS LATER, AND I HAVE GOTTEN RID OF ABOUT
80% OF THE SYMPTOMS. ALL I'M SAYING IS DON'T ALWAYS TAKE THE FIBROMYALGIA DIAGNOSIS AS READ, SOMETIMES THERE CAN BE ANOTHER REASON FOR YOUR SYMPTOMS.

IF YOU HAVE A PROLAPSED DISC IN THE LUMBAR
REGION IT CAN CAUSE PROBLEMS IN THE LOWER BACK, CHEST, HIP AND LEGS. THERE IS A COMPANION BOOK CALLED "TREAT YOUR OWN
BACK" BY THE SAME AUTHOR. ITS WORTH A SHOT. WHEN YOU READ UP ON THE SYMPTOMS,
THEY ARE JUST THE SAME AS FIBRO. I THANK GOD I DIDN'T JUST ACCEPT THIS DIAGNOSIS, AND FOUND SOME ANSWERS.
 

0 Posts

scubee  ·  27 Jul 2006
Thanks Mary - Havn't done bone scan but have had blood tests done which eliminated arthritis. Am trying to get an appointment with a Rheumatologist to get a definite diagnois and a plan for the future.
 

- Posts

Anonymous  ·  26 Jul 2006
Scubee, have you had a bone scan? This could be due to deterioration of the hip boen or indeed arthritis. Have that checked out also?
 

- Posts

Anonymous  ·  26 Jul 2006
Have recently been diagnosed with FM (2 years+ suffering) and more recently an osteopath advised that one side of my pelvis is dropped and spine twisted. Currently doing pelvic rotations with the Osteopath. Does anyone know if the problems in my spine could have brought on the FM. Has anyone any experience with this. Thanks.
 

- Posts

Anonymous  ·  05 Jan 2006
Regarding EDM260, it just a request that the motion be discussed in the Houses of Parliament:
http://edmi.parliament.uk/edmi/
"An Early Day Motion, or EDM, is a motion put down ("tabled") by Members of Parliament calling for a debate on a particular subject. In practice, there is rarely time to debate EDMs nowadays and their true modern-day purpose is to enable MPs to draw attention to an issue and to canvass support for their views by inviting other Members to add their signatures in support of the motion. Members may also table amendments to existing EDMs."
That EDM was set up last summer and still nothing has happened and it may never get debated. And anyway, MPs don't really have the power to decide that a particular illness gets more money or not - that decision is left to the Medical Research Council who vet applications and then fund a percentage of the total. Similarly in the Rep. of Ireland, TDs don't really have the power to decide which illness gets studied - the government just gives the Health Research Board a wad of money and they vet applications. In Ireland, I'm not sure that any researchers have put in applications so not likely to be passed then!
There's going to be an inquiry in the UK into the funding of ME/CFS research so fingers crossed something will come of that - for further info, see:
http://www.investinme.org/Article-009%20Gibson%20inquiry.htm
So fingers crossed there will be more money for researchers as we need diagnostic tests and more effective treatments. Similarly if there was more research for Fibromyalgia it'd be great - does anybody know of biomedical research into Fibromyalgia that is happening in the Great Britain or Ireland?
 

- Posts

Anonymous  ·  05 Jan 2006
Latest proof of ME /CFS at University of Dundee show much more info on what actually happens to the body. One of the most interesting relating to the above muscle problems is new understanding of oxygen in the body and oxidation - you can find this latest reserach here....

http://www.meresearch.org.uk/

Also UK parlament are debating ME right now Jan 2006 and voting if they will allocate more resources for research - so if in the Uk lets hope our MP's vote to get the funding needed for more of this fantastic prooven causes.
It is Early Day Motion (EDM 280) I hope that more research can be funded to get to the bottom of this for everyone.
 

- Posts

Anonymous  ·  29 Aug 2004
To Anon who wanted a recommendation for a consultant in any of the Dublin Hospitals who deal with patients who have ME/Chronic Fatigue Syndrome: I'm sure if you contact the Irish ME/Chronic Fatigue Syndrome Support Group (details given earlier in the thread), somebody there might be able to help. I personally would recommend caution in following the advice of most rheumatologists in Dublin with ME/CFS as they (like most rheumatologists, it seems) don't seem to distinguish between FM and ME/CFS and the exercise programmes they seem to advise for FM could make you worse, possibly a lot worse, if you have ME/CFS.
 

- Posts

Anonymous  ·  27 Aug 2004
Names of consultants in Dublin hospitals which I have found to be helpful are :Dr Geraldine McCarthy in the Mater Private and Dr. Frances Stafford in the Blackrock Clinic.
I also found Dr. Muriel Sodden in the Bons Secour hospital in Tralee excellent. I live in Dublin but I spent a week in the Tralee Bons being evaluated and trying different treatments. She was great - very thorough, lovely bedside manner and knows FM well from ten years in Oz.
 

- Posts

Anonymous  ·  27 Aug 2004
Anyone going to the FM conference in London (September 11th and 12th)? I am and would like to meet others from Ireland if possible.

My lastest bulletin from www.immunesupport.com was interseting. A diagnostic test for FM is being launched. It said that this laboratory test will change the perceptions of medics who still believe FM is a psychological condition. It makes for very interesting reading!
Sandra
 

- Posts

Anonymous  ·  05 Aug 2004
Hi,
Can anybody please recommend a consultant in any of the Dublin Hospitals who deal with patients who have ME/Chronic Fatigue Syndrome. I have suffered from terrible tiredness for nearly 2 years with increasing associated problems like a haze cloud decending over my brain making me not able to function until this passes as well as terrible muscle twitches.I am finding it hard to get the name of a consultant who believes in the condition ME/CFS. Can any please help
 

- Posts

Anonymous  ·  21 Jul 2004
Hi there, i was in the same boat. Having had a baby girl i was very stressed and later on about four months later started to get tingling and burning senation in my arms and legs. For a year i went around in pain and feeling very worried and then i was told at last what it was, it was Fibro. I was told to exercise and i bought a threadmill. At first it made my pain worse and then gradually i started to improve and now i am almost pain free. If i stop the walking i notice my symptons reappearing. Don't let it take over your life. I cant remember the last time i was in real pain. Best of luck guys change your attitude and don't let it eat you up.
 

- Posts

Anonymous  ·  21 Jul 2004
I have just been diagnosed witn fm after two years and feel lucky to have a diagnosis in this time, however it hasn't been easy. After 7 doctors and 3 consultants, many scans, x-rays blood tests etc, i got there. Now I'm not sure what happens next. My symtoms came about after the birth of my son and is without a doubt linked to anxiety. It was my third pregnancy and after sailing through the other two I thought I'd have no probs but then around the last trimester i became very anxious for some reason, even my gynae noticed. After my son was born i started getting stiff if I sat still for a few minutes or getting out of bed then I began to get aches and pains all over. Sometimes I could hardly walk. My days now feel like I have the flu all the time. NSAIF don't help infact I am the same on them as off. Exercise does help however i must stress that its gentle. The Gym is to aggressive and I had flares as a result of over doing it. I posted this message really because I want to encourage people not to give up on getting their diagnosis. I was actually told by a leading consultant that I didn't have fm so i never bothered doing a web search on it. Several consultants later I got my diagnosis I didn't believe it until I became informed about the condition and I could tick every box. Don't give up I've been there, I thought of suicide at one point because you're made to feel like its in your head. I shed many tears for every blood test that showed up nothing because for me there had to be something but all I ever had to cling to was a high ESR. Today I'm feeling positive about my condition and just want to do everything to combat this thing. I am by no means an exercise freak infact I generally need a kick in the rear to get me out walking but my husband and my children deserve me to be in the best shape I can for their sakes. Your not alone, Sue xxx
 

- Posts

Anonymous  ·  24 May 2004
Hello,

I have had pain and stiffness in the right side of my abdomen for about eighteen months now. When it is bad it extends all the way up to my rib-cage and I get extemely fatigued and then sometimes it is just like a knot just over my hip-bone. Recently it seems to have spread all the way up and I get a stiffness in my throat. I've had lots of scans and a laparoscopy and nothing. I'm wondering if it is chronic fatigue or fybromyalgia. My GP thinks it could be stress and stress certainly makes it worse but I think there's a bit more to it than that. Anybody got info on more sympathetic GPs in Cork area?
regards,
In a tight spot.
 

85 Posts

gfosh  ·  08 Apr 2004
Endometriosis Linked to Autoimmune and Other Chronic Diseases Including
Chronic Fatigue Syndrome & Fibromyalgia By Laurie Barclay, M.D.

A cross-sectional survey reported in the Sept. 27 (2002) issue of Human
Reproduction showed that women with endometriosis have higher rates of
autoimmune and other chronic diseases than do women in the general U.S.
population.

"Women with endometriosis frequently suffer from autoimmune inflammatory
diseases, hypothyroidism, fibromyalgia (FM), chronic fatigue syndrome (CFS)=
,
allergies and asthma," lead author Ninet Sinaii, from the National Institut=
e of
Child Health and Human Development in Bethesda, Maryland, says in a
news release. "These findings also suggest a strong association between
endometriosis and autoimmune disorders and indicate the need to consider
the co-existence of other conditions in women with endometriosis."

In this population-based survey of 3,680 members of the endometriosis
Association, all had surgically diagnosed endometriosis, 90% were of
reproductive age, 66% had a positive family history for diagnosed or
suspected endometriosis, and 20% had more than one other chronic disease.
Nearly one-third of those with coexisting diseases also had been diagnosed =

with either FM or CFS, and some of these women also had other autoimmune
or endocrine disease.

Compared with expected rates in the general population of U.S. women,
women in this survey had increased rates of chronic disease. CFS was more
than a hundred times more common (4.60% vs. 0.03%, P
 

- Posts

Anonymous  ·  08 Apr 2004
In my research of diabetes I read in several places that 90% thats right 90%
of diabetics have a dual diagnosis of fibromyalgia!!!!! So doesn't it tell us
with fibro that we may very well have diabetes????

I will never take no from a doctor again about what is in my head and what is
in my body. I will never again return to a doctor that tells me there is
nothing physically wrong with me. I will never again let a doctor deny me
medication that I believe will help me. I am over 40 and I am just not taking shit
out of anybody anymore. Seem to be a little feisty tonight.....maybe I
shouldnt have had that slice of cake. Ha Ha Ive lost a lot of weight I deserve a
piece of cake.

Take care everyone:

Susan
 

151 Posts

Tom (tomkindlon)  ·  22 Mar 2004
The contact details for the Irish ME/Chronic Fatigue Syndrome Support Group are:
P.O. Box 3075,
Dublin 2.
Tel: 01-235 0965
Fax: 01-496 8360
Email: info@irishmecfs.org
 

- Posts

Anonymous  ·  20 Mar 2004
Hi, the sciatica could be caused by the difficult birth. If it's still bothering you I'd recommend a visit to a chiropractor.
The fact that your GP is of no help and you're still having muscle pain and feeling so tired, I'd suggest contacting either the Fibromgalgia support group or the Irish ME Support group and they would have lists of recommended doctors. I think they're listed somewhere on this site, but you'll also find them in the Golden Pages.
No one should have to go without a proper diagnosis for 13 years, although sadly it doesn't surprise me. Hope this is of some help.
 

- Posts

Anonymous  ·  16 Mar 2004
After having my first baby 13 years ago I suffered terrible pains in the muscles in my arms, shoulders, legs & feet, also my back. After 5 years and several visits to my GP who kept telling me that of course I was tired with a new baby, my back problem was diagnosed as sciatica. The other pains lessened gradually over about 3 years but never went completely. Having read other people's descriptions, I think I may have had FM - does anyone think it can be brought on by pregnancy or childbirth? ( The birth was quite difficult). Like many others, I have found exercise disastrous, anything strenous wears me out for days. Is there anywhere I can go for a proper diagnosis, as my GP is not very helpful?
 

- Posts

Anonymous  ·  16 Mar 2004
Have had FM for the past 6 years and tried almost everything..I also suffer from migraine and some people feel the two are in someway linked...my FM pain starts on one side of my body and works its way up my arm, into my soulder accross my neck and down my other arm into my hand...a flare up of this type usually lasts 2 weeks and at its peak is very severe.It effects my chest and breathing very seriously and I've been put an an inhaler to help ease the breathlessness..I don't sleep very well and a particularly bad bout of insomnia certainly triggers an attack...I am on amitryptline,aulin,solpodeine,imigran and symbacort inhaler..I also attend a homeopath...I found this a great help both in terms of results and having someone listen and take you seriously...My next path is to try hypnosis..mainly for the sleep deprevation but also to explore any hidden or deep rooted reasons for my attacks...
 

- Posts

Anonymous  ·  05 Mar 2004
Have a look at http://thyroid.about.com/cs/fibromyalgiacfs/a/couldyou.htm. There's a lot of info there. It's definitely a condition related to hypothyroidism. Get your thyroid checked urgently!
 

6 Posts

Sandra (sduffy)  ·  25 Feb 2004
gfosh - could you point me towards this research? I try to read anything I can on FM. Any research that discredits the "it's all in your mind, get a grip" brigade has to be worth reading!
 

85 Posts

gfosh  ·  22 Feb 2004
I have read recent article on Fibromyalgia in the Sunday Independent,both of Ml Kelly\'s books, a trnscript of his interview with Gerry Ryan & I attended a talk given by Ml kelly at CUH in conjuction with Cork Fibromyalgia Group. I feel that ML Kelly is being too simplistic in his assertion that Fibromyalgia is the result of do-gooder\'s taking on too much & being unable to say no. How about the many individuals that have secondary Fibromyalgia actually I think the Dr\'s prefer to call it concommitant fibromyalgia now. I raised this issue with Ml Kelly at his talk in CUH I asked him if he could comment on the issue of secondary Fibromyalgia with particurlar emphasis on Endometriosis as research conducted in the USA among Endometriosis support group members by the NIH indicated that they were twice as likely to suffer from FMS & 100 times more likely to suffer from ME than the ordinary female population of USA. Ml Kelly fudged on the issue & said that if you investigate someone enough for long enough that you are bound to find something implying that the dignosis of Endometriosis were only incidental.I said that in my own case my diagnosis of Endometriosis was far from incidental & that I had to endure 28 yrs of symptoms before I got a diagnosis.There was also a counsellor at this meeting who was involved with counselling many members of the cork group & he was basing his treatment protocol on ML Kelly\'s theories on personality. I pointed out that the perfectonist theory had been discredited by recent research.
 

6 Posts

Sandra (sduffy)  ·  21 Feb 2004

Maybe a certain personality type is more likely to develop FM but then that is true of many illnesses, for example heart attack. Can anyone imagine a cardiologist telling someone to change their personality? In fact years of pschotherapy couldn\'t do that. A change of lifestyle is a different matter - but then many of us don\'t have much choice about slowing down our lifestyle!

I\'ve tried everything that has been reccomended to me or that I\'ve read and will continue to try until I beat this illness.
 

- Posts

Anonymous  ·  20 Feb 2004
i agree with you about the Michael Kelly interview. He has written this book but does it match all the scientific research into FMS and ME? All we need is a personality change? I did not feel the tone of the interview with Gerry Ryan helpful to sufferers of both conditions.
I assume you have FMS, I have ME. Some of the symptoms overlap, but exercise in ME can be counter productive. Your rheumatologist sounds good, and was prepared to disagree with Mr Kelly .
 

- Posts

Anonymous  ·  19 Feb 2004
I know someone who was diagnosed with Fibromyalgia, in 1990, by Michael Kelly ( who is a rheumatologist with a particular interest in Fibromyalgia) His literature and thinking ( book not written at the time) was followed to the last detail, leading to complete resolution of all symptoms over a 2-3 year period. He defined FM at the time as a soft tissue rheumatism, very much aggravated by stressful conditions. ME seems to be part of the same family of conditions, with the main presenting symptom being the fatigue, rather than the muscle pain and stiffness. My understanding would be that stress related sleep disturbance, often low grade, but over a long period, is probably a major factor in both conditions. In FM, only certain personality types are affected. I do not know if that is the case with ME.
 

- Posts

Anonymous  ·  19 Feb 2004
Did anyone read the article in last weeks Sunday Independant by a guy called Michael Kelly who has a book out called Fibromyalgia , Fatigue and you. I was realy annoyed by the article. Michael maintains that if you change your personality you will get better. He was also on the G Ryan show yesterday and i could not agree with his view. I was in with my rheumatolghist the next day and she was furious about his comments. Did anyone else hear or read his comments... My Rheumatolghist maintains that if you bulid up an exercise progamme where you achieve at least 30 min of arobic exercise ( Brisk walking- Treadmill. Exercise bike ) for six days a week you will make great improvments. Also she reccomends taking fish oils.
 

6 Posts

Sandra (sduffy)  ·  19 Feb 2004
Maria (riaria)- I have just ordered guaifenesin from the US as my pharmacist couldn't get it here. I'm delighted to hear that it worked well for you.

I have had FM and all related syndroms for at least 13 years but was only diagnosed 18 months ago when symptoms became far more severe and continous. I am now unable to work and the impact on my family has been severe. I know the condition is pretty common but I haven't met anyone else with it, so I am pleased to see this discussion. I have been feeling very isolated and useless. I have also tried every alternative therapy possible over the years. Any improvement was very shortlived and they no longer impact on the FM at all. At this time I am placing all my hopes on the guaifenesin - did you also avoid all products containing silicitates as per Dr. St. Armands book? That bit looks difficult to achieve.
 

- Posts

Anonymous  ·  11 Feb 2004
On reading the first message here alarm bells started to ring. Most of the subsequent messages also struck a chord. As the last message conveyed, symptoms of fibromyalgia and ME seem to overlap. I have ME and had been given so many false diagnoses in the beginning, when I could have been treated and saved the awful trauma of 6 years of this illness. Like the last correspondent I pushed myself almost to the point of collapse and have spent the past 6 years paying the price, so please beware!! Be very careful if you're told that exercise will cure you. If you really have FMS it may, but if you have ME it could set you back for years. As for stress, I feel it's far too easy to put everything down to stress nowadays. If routine tests show no abnormalities doctors are too quick to put it down to stress.
Good luck and I sincerely hope your doctor is more clued in than my first one was.
 

65 Posts

maria (riaria)  ·  11 Feb 2004
about 2 years ago i was diagnosed with fibromyalgia. this subsequently changed to RA. however i tried a non prescript product called guaifenesin and while i will never say i am cured because i dont know but my symptoms are practically non-existant, my life has completely changed. it would appear that thousands of people around the world find this helpful. look it up you might find it useful
 

- Posts

Anonymous  ·  11 Feb 2004
I'm a 40yr old male. I've had FM for about 5 yrs but it was only diagnosed 2 yrs ago. Since diagnosis I swim regularily, 3x per week. It has helped me manage the symptoms greatly. I really feel it when I miss a couple of sessions. My doctor prescribed amitryptaline for me which has helped with sleep and has reduced muscle tension, particularily in my jaws,at night.( I've broken several teeth in my sleep).Since last Sept I've been taking cod liver oil with evening primrose oil and after 6/8 weeks I noticed a good improvement in my joints. This improvement has remained.
I find that in the swimming or any exercise you have to push yourself. Its not enough to just meander around the pool. You have to set achievable targets for yourself. I started off at first with just 10 lengths and slowly built it up to where I can do 120 lengths an hour. Maintaining it regularily helps keep joints supple. Find an exercise you like ( you're more likely to keep it up) and one you can take regardless of the weather and make sure it is done aerobically.
Good luck
 

- Posts

Anonymous  ·  11 Feb 2004
It'simportantthat people with CFS also have their thyroid levels checked. In theUS alone. 40% of people with CFS also have abnormal thyrois condition. A percentage 10 times higher than in the non-CFS affected population.
 

- Posts

Anonymous  ·  11 Feb 2004
I think that people should know that some of the people who satisfy the criteria for Fibromyalgia will also satisfy the criteria for M.E. or Chronic Fatigue Syndrome. This is important because in M.E. or Chronic Fatigue Syndrome (strictly-defined) there is an abnormal response to exercise and many people have found that exercise programmes, such as those recommended for Fibromyalgia, have made them worse. For example, for the first few years of my M.E. (which had occurred after I didn't rest when I had a viral infection) my main symptoms were muscle pains (I only had mild fatigue and mild cognitive cognitive problems at that stage). I wasn't diagnosed at the time and the orthopaedic surgeons and physios (I had over 100 physio appointments) kept encouraging me to try to exercise. This eventually led to a major relapse, which included my throat swelling right up that it was a little difficult to breathe, talk and swallow and my glands swelled up. When the test for glandular fever came back negative, I tried to start exercising again and I could only do a few lengths of the pool (I'd previously built myself up to being about to doing 40 lengths every two days although being able to all this exercise had never actually helped my pain). Anyway, I kept trying to gradually increase the exercise over the next year but instead of improving I got worse and worse and developed more symptoms. Eventually I collapsed before finally being diagnosed by Prof. Austin Darragh as having ME/post-viral chronic fatigue syndrome. I've spent the last eight years housebound and severely affected, only able to leave the house for essential trips as it can leave me flu-like (post-exertional malaise) for days, sometimes weeks. Tests on my immune system show that I have low natural killer cells as well as low dhea-s levels. Unfortunately, rheumatologists in Ireland often don't seem to distinguish between Fibromyalgia and M.E. (the M in M.E. is for Myalgic which shows pain is an integral part of M.E.) and this often leads to advice about exercise being given to people with M.E. which seems inappropriate to me. Some symptoms which people with M.E. have that don't seem to be part of Fibromyalgia (although Fibromyalgia and ME/CFS are very much intertwined) are tender lymph nodes e.g. under ears, under arm pits and sore throats - most people with M.E. don't have these symptoms all the time but can get them if they overdo it. I thought I should write this as I'd be worried that other people could end up like me if they undertook inappropriate exercise programmes. Another problem is that a lot of doctors don't know the symptoms or criteria for M.E. or Chronic Fatigue Syndrome and may not even consider the diagnosis even if you're a "classic" case e.g. you have a acute onset after an infection.
 
Next Page »
 Return to Topics
 Main Discussion Page
This website is certified by Health On the Net Foundation. Click to verify.
Copyright © 2014. All rights reserved. We subscribe to the principles of the Health On the Net Foundation