Do I have Fibromyalgia?
To Mary who has the prolapsed disc firstly. Mary, did you have mri done on your neck? I'm just curious. I got my symptoms very suddenly when my son was 8wks old, i got blurred vision and a bad headache and have been suffering with fatigue,heavy/woozy head and stiffness up the back of my head ever since. It spread down my neck in recent months and down my back so i'm thinking it's fibromyalgia. I had mri of my neck and brain which were both clear. I have constant extreme fatigue and nausea from time to time. Since christmas i have severe pain in all my muscles and it spreads to my arms/legs, feels like a bad flu. I have good days and bad. Has anyone found anything to help with the fatigue or do ye have fatigue with the pain??
so here's the criteria... if you not been diagnosed with any other disease and the professionals are sure you dont have any other illness like lupus. rhumatoid arthritis, etc, be happy you now know you have something that is finally getting recognition.
so heres the low down, your condition has no origin, no statistics, no official protocol and most importantly is a very individual condition. What has worked for me may not work for you.
I gave up drinking and smoking, try my best to eat healthily and maintain my weight. regular massage. GENTLE EXERCISE and generally lead an easy life by working part time and for going foreign holidays, brand names and major socialising.
I have almost lost my sanity to pain and misunderstanding of this condition. It is my strong opinion that fibromyalgia is an allergic reaction to modern living. keep happy
- I found my chiropractor to be the turning point - Oestopaths are fine but I found limited and not as effective or helpful for me as a chiro that does; AK and functional biochemistry as mine has. This now means I have a much better quality of life and much less pain.
I am in the UK so I can not help with Ireland
If you decide to join, you will get a regular newsletter which is a great source of information about M.E., including the latest research and treatments that patients find helpful. You will also be able to contact other sufferers.
They would be your first port of call, and can
then refer you to the appropriate experts if you are
not making progress.
THIS LED ME TO MAKE AN APPOINTMENT WITH A
ORTHOPEDIC PHYSICIAN WHO SAID IT WAS THE FIRST THING HE NOTICED ABOUT ME, HE HAS DIAGNOSED A PROLAPSED CERVICAL DISC, WHICH SENDS PAIN UP MY NECK, ACROSS MY SHOULDER, DOWN MY ARM, CAUSES PINS AND NEEDLES AND NUMBNESS, HEADACHES, ELECTRIC SHOCK-LIKE SENSATIONS, ETC.. THIS OF COURSE WAS LEADING TO A LOT OF STRESS AND WORRY, WHICH WAS MAKING EVERYTHING WORSE, DUE TO TIGHTENING OF MUSCLES.
ANYWAY, HE GOT ME TO GET A BOOK CALLED
"TREAT YOUR OWN NECK", BY DR. ROBIN MCKENSIE, AND DO THE EXERCISES SHOWN THERIN. IT IS NOW TWO WEEKS LATER, AND I HAVE GOTTEN RID OF ABOUT
80% OF THE SYMPTOMS. ALL I'M SAYING IS DON'T ALWAYS TAKE THE FIBROMYALGIA DIAGNOSIS AS READ, SOMETIMES THERE CAN BE ANOTHER REASON FOR YOUR SYMPTOMS.
IF YOU HAVE A PROLAPSED DISC IN THE LUMBAR
REGION IT CAN CAUSE PROBLEMS IN THE LOWER BACK, CHEST, HIP AND LEGS. THERE IS A COMPANION BOOK CALLED "TREAT YOUR OWN
BACK" BY THE SAME AUTHOR. ITS WORTH A SHOT. WHEN YOU READ UP ON THE SYMPTOMS,
THEY ARE JUST THE SAME AS FIBRO. I THANK GOD I DIDN'T JUST ACCEPT THIS DIAGNOSIS, AND FOUND SOME ANSWERS.
"An Early Day Motion, or EDM, is a motion put down ("tabled") by Members of Parliament calling for a debate on a particular subject. In practice, there is rarely time to debate EDMs nowadays and their true modern-day purpose is to enable MPs to draw attention to an issue and to canvass support for their views by inviting other Members to add their signatures in support of the motion. Members may also table amendments to existing EDMs."
That EDM was set up last summer and still nothing has happened and it may never get debated. And anyway, MPs don't really have the power to decide that a particular illness gets more money or not - that decision is left to the Medical Research Council who vet applications and then fund a percentage of the total. Similarly in the Rep. of Ireland, TDs don't really have the power to decide which illness gets studied - the government just gives the Health Research Board a wad of money and they vet applications. In Ireland, I'm not sure that any researchers have put in applications so not likely to be passed then!
There's going to be an inquiry in the UK into the funding of ME/CFS research so fingers crossed something will come of that - for further info, see:
So fingers crossed there will be more money for researchers as we need diagnostic tests and more effective treatments. Similarly if there was more research for Fibromyalgia it'd be great - does anybody know of biomedical research into Fibromyalgia that is happening in the Great Britain or Ireland?
Also UK parlament are debating ME right now Jan 2006 and voting if they will allocate more resources for research - so if in the Uk lets hope our MP's vote to get the funding needed for more of this fantastic prooven causes.
It is Early Day Motion (EDM 280) I hope that more research can be funded to get to the bottom of this for everyone.
I also found Dr. Muriel Sodden in the Bons Secour hospital in Tralee excellent. I live in Dublin but I spent a week in the Tralee Bons being evaluated and trying different treatments. She was great - very thorough, lovely bedside manner and knows FM well from ten years in Oz.
My lastest bulletin from www.immunesupport.com was interseting. A diagnostic test for FM is being launched. It said that this laboratory test will change the perceptions of medics who still believe FM is a psychological condition. It makes for very interesting reading!
Can anybody please recommend a consultant in any of the Dublin Hospitals who deal with patients who have ME/Chronic Fatigue Syndrome. I have suffered from terrible tiredness for nearly 2 years with increasing associated problems like a haze cloud decending over my brain making me not able to function until this passes as well as terrible muscle twitches.I am finding it hard to get the name of a consultant who believes in the condition ME/CFS. Can any please help
I have had pain and stiffness in the right side of my abdomen for about eighteen months now. When it is bad it extends all the way up to my rib-cage and I get extemely fatigued and then sometimes it is just like a knot just over my hip-bone. Recently it seems to have spread all the way up and I get a stiffness in my throat. I've had lots of scans and a laparoscopy and nothing. I'm wondering if it is chronic fatigue or fybromyalgia. My GP thinks it could be stress and stress certainly makes it worse but I think there's a bit more to it than that. Anybody got info on more sympathetic GPs in Cork area?
In a tight spot.
Chronic Fatigue Syndrome & Fibromyalgia By Laurie Barclay, M.D.
A cross-sectional survey reported in the Sept. 27 (2002) issue of Human
Reproduction showed that women with endometriosis have higher rates of
autoimmune and other chronic diseases than do women in the general U.S.
"Women with endometriosis frequently suffer from autoimmune inflammatory
diseases, hypothyroidism, fibromyalgia (FM), chronic fatigue syndrome (CFS)=
allergies and asthma," lead author Ninet Sinaii, from the National Institut=
Child Health and Human Development in Bethesda, Maryland, says in a
news release. "These findings also suggest a strong association between
endometriosis and autoimmune disorders and indicate the need to consider
the co-existence of other conditions in women with endometriosis."
In this population-based survey of 3,680 members of the endometriosis
Association, all had surgically diagnosed endometriosis, 90% were of
reproductive age, 66% had a positive family history for diagnosed or
suspected endometriosis, and 20% had more than one other chronic disease.
Nearly one-third of those with coexisting diseases also had been diagnosed =
with either FM or CFS, and some of these women also had other autoimmune
or endocrine disease.
Compared with expected rates in the general population of U.S. women,
women in this survey had increased rates of chronic disease. CFS was more
than a hundred times more common (4.60% vs. 0.03%, P
of diabetics have a dual diagnosis of fibromyalgia!!!!! So doesn't it tell us
with fibro that we may very well have diabetes????
I will never take no from a doctor again about what is in my head and what is
in my body. I will never again return to a doctor that tells me there is
nothing physically wrong with me. I will never again let a doctor deny me
medication that I believe will help me. I am over 40 and I am just not taking shit
out of anybody anymore. Seem to be a little feisty tonight.....maybe I
shouldnt have had that slice of cake. Ha Ha Ive lost a lot of weight I deserve a
piece of cake.
Take care everyone:
P.O. Box 3075,
Tel: 01-235 0965
Fax: 01-496 8360
The fact that your GP is of no help and you're still having muscle pain and feeling so tired, I'd suggest contacting either the Fibromgalgia support group or the Irish ME Support group and they would have lists of recommended doctors. I think they're listed somewhere on this site, but you'll also find them in the Golden Pages.
No one should have to go without a proper diagnosis for 13 years, although sadly it doesn't surprise me. Hope this is of some help.
Maybe a certain personality type is more likely to develop FM but then that is true of many illnesses, for example heart attack. Can anyone imagine a cardiologist telling someone to change their personality? In fact years of pschotherapy couldn\'t do that. A change of lifestyle is a different matter - but then many of us don\'t have much choice about slowing down our lifestyle!
I\'ve tried everything that has been reccomended to me or that I\'ve read and will continue to try until I beat this illness.
I assume you have FMS, I have ME. Some of the symptoms overlap, but exercise in ME can be counter productive. Your rheumatologist sounds good, and was prepared to disagree with Mr Kelly .
I have had FM and all related syndroms for at least 13 years but was only diagnosed 18 months ago when symptoms became far more severe and continous. I am now unable to work and the impact on my family has been severe. I know the condition is pretty common but I haven't met anyone else with it, so I am pleased to see this discussion. I have been feeling very isolated and useless. I have also tried every alternative therapy possible over the years. Any improvement was very shortlived and they no longer impact on the FM at all. At this time I am placing all my hopes on the guaifenesin - did you also avoid all products containing silicitates as per Dr. St. Armands book? That bit looks difficult to achieve.
Good luck and I sincerely hope your doctor is more clued in than my first one was.
I find that in the swimming or any exercise you have to push yourself. Its not enough to just meander around the pool. You have to set achievable targets for yourself. I started off at first with just 10 lengths and slowly built it up to where I can do 120 lengths an hour. Maintaining it regularily helps keep joints supple. Find an exercise you like ( you're more likely to keep it up) and one you can take regardless of the weather and make sure it is done aerobically.