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(Wednesday, 22nd Oct, 2014)

Psoriasis support group to be expanded

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4 Posts

russellie  ·  26 Sep 2012

Living in Laois looking for support group

Russell

 

4 Posts

russellie  ·  26 Sep 2012

Is this topic that old ????????? looking for support

 

98 Posts

vonnie  ·  15 May 2009

my child had psoriasis from age 4 to 9 and we took her to seventh son in glenamaddy, galway on recommendation. we took her for 9 visits in total but we saw instant results. she was clear after the 9th visit. she is now 12 next week and it has not returned since. she had it very bad on scalp. give it a try folks. if it works for us , im sure it can for you also.

 

7 Posts

smurf  ·  02 Nov 2007
Has anyone tried Exorex.. i just bought the head and body was in just to test it out ,, I hoping it will work and if it does i might buy the lotion in it.
 

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Anonymous  ·  06 Mar 2007
Had psoriasis for 23 years. my dad before me. All five of my children are showing signs of it. I was hospitalised when I was 18 as I was covered from head to toe. My arms and back would crack and pus would come out. Tried all sorts over the years. Because I\'m fair skinned I could never get away with the UV lights - even in hospital. But I tried the stand up sunbeds a few years ago and found not only did I get a tan my psoriasis cleared up. Although not an idea to use all the time because of the risks associated with skin cancer!! I use them for a couple of times (not even long enough to get a tan) during the months when the psoriasis flares up - usually in the winter months and it keeps it at bay.
Also for the scalp somebody recommended using head and shoulders and I dismissed the idea as i had really bad psoriasis on my scalp for many years and had tried everything with only tar pomade working. As a last resort I tried it and believe it or not it cleared up for several months. Who\'d have thought!! Good Luck!
 

3 Posts

missmadireland  ·  05 Mar 2007
Hi Lubby...You should consult with your G.P who will refer you to a dermatologist in Galway..I went to one in Galway before but didnt find her that good..I subsequently went to see one in Mullingar..He was much better. I think they are all the same anyway..They send you home with a prescription the lenght of your arm for steriod based creams..I went to see a homepath in Dublin who i found excellent and it was first bit of relief I had in years..If you want his contact details I would be happy to send them on to you.
 

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Anonymous  ·  05 Mar 2007
Yes there is an excellent dermatologist in Bon Secour hospital in Galway. Her name is Dr Mary Garvey. You will need to get a referral from your GP in order to get an appointment. I attended her last year as my psoriasis had gotten so bad. I was given UV treatment last Summer and so far I only have one or two spots of psoriasis now. Good luck.
 

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Anonymous  ·  03 Mar 2007
Is there Dermatologist in Galway ? I v been searching the directory but cant seem to find any.
Thanks 4 the replys
 

3 Posts

missmadireland  ·  01 Mar 2007
Hi Lubby...I use dermovate for the psoriasis on my scalp which is prescribed by my dermatologist..as far as i know you can only get in on prescription..feel free to email me...ceallaigh28@hotmail.com
 

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Anonymous  ·  01 Mar 2007
you can buy it in any chemist but only on perscription....
 

3 Posts

lubby  ·  01 Mar 2007
Where can i find Dermovate to buy in Galway or online ?
 

2 Posts

ronan (YQC43234)  ·  21 Feb 2007
I am a member of the Psoriasis Association of Ireland. If anyone would like to join please feel free to vist our web site @ www.psoriasisireland.ie. You can register online with the association if you wish.
 

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Anonymous  ·  17 Feb 2007
Hi, I\'ve had plaque psoriasis now for 18 yrs and have now got gutate as well. Away into hospitl next week as ive tried ever treatment under the sun. every bit of my body is covered and my face and scalp\'s quite bad. Let u know what treatments i get and how i get on.
 

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Anonymous  ·  18 Oct 2006
hi fellow sufferers just came across this site and noticed no new messages since july is ir still in use. have sufered with psoriasis for 6 years and am coming to the end of my tether now. have tried everything and am so depressed, cant really talk to anyone about it cos no one understands how i feel. has anyone tried anything new lately that worked for them.
 

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Anonymous  ·  01 Jul 2006
if anybody is interested on the Psoriasis ireland web page you will find names and contact details for support groups in Meath, Kilkenny and north dublin.
that web address is www.Psoriasisireland.ie
 

- Posts

Anonymous  ·  07 Jun 2006
Hi Mary ,

Thanks for your rely I will try to get refered to a hospital and will let you all know how I get on -it is good to know I am not alone
La
 

7 Posts

Nollaig  ·  01 Jun 2006
Hi
Summer is here at last!! The psoriasis had cleared since my last treatment in Hume St Hospt March 2004. Some spot came back and I use Dermovate Oint to stop it from spreading. Its working well. I use dermovate Cream on my scalp & face and its fantastic, all cleared aswell.

Noel
 

4 Posts

Mary (MSC40870)  ·  01 Jun 2006
I went to see a dermatologist in Galway some weeks ago and she referred me for UV treatment. I am having 6 weeks treatment and am in my 4 week now. I had it all over my body and the difference is unreal. By the end of the treatment I will definetly have very little left...how long this lasts I dont know but any length of time psoriasis free is good. As far as I know they do uv treatment in the majority of hospitals around the country. If you can get an appointment with a dermatologist in the hospital near you they will refer you. Good luck with it.
 

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Anonymous  ·  31 May 2006
Hi ,

I have had psorais for the past 13 yrs . I first developed psorasis after getting reoccuring bouts of tonsillitis. After I had my tonsillis removed the psorasis has continued and I have it on my elbow (plaque) and all over my legs and torso ( guttae -little red dots ) and of course to make things worse on my bottom ( just going into the hole) and the vagina. The psorasis on my bottom is most distrubing as it bleeds and is just red no plaque. I cant wear any summer clothes and I can't even go swimming -docotors have recommed donovex which I will try but I doubt it will cure the guttae psorasis as this is all over . I really need advice on what would be the best thing I could do ? Where would i go to get UVB treatment ? Has anyone gone to the dead sea - I can't believe that there is such a thing as psorais on the bottom it is so upseting -what can i do for it please reply.
 

2 Posts

Ken (JAK46102)  ·  01 May 2006
There is a new treatment under final testing here in Canada that seems to be very effective.
Keep an eye on their website or e-mail them to be added to their mailing list.

K Taylor
Vancouver

http://www.advitech.com/en/produits.php
 

- Posts

Anonymous  ·  03 Apr 2006
hi the e45 cream is good for ur face
 

- Posts

Anonymous  ·  25 Jan 2006
I have psoriasis since I was born. It is pretty much everywhere and lately it has started on my neck area with some on face too. is there anything i can use for this. i use dovanex for the rest of my body but can i use that on neck are etc?
 

1 Posts

Eoin  ·  16 Jan 2006
Hey, have had psoriasis for past 11 years. You name it i\'ve tried it. in and out of hospital every year for 3-4 months at a time uva, uvb, puva(works but comes back in a month or 2).Tried every cream from tars to steriods and whatevers in between (including dead sea products)to varying effect. been to turkey to swim with the magic fish(weird, again worked for about a month then back), went to australia for a year seemed to improve with the weather but back home and guess what it\'s back. any one wanna chat about anything . email: eoin.reilly4@mail.dcu.ie
 

- Posts

Anonymous  ·  15 Jan 2006
i got psoriasis last summer and went to a dermotologist and he recommended ucerin cream with a steroid and it is almost gone,it did not get better when i went abroad.Mine was linked to stress so i am dreading the summer coming as i have a lot of trouble with children and neighbours fighting.
 

1 Posts

cliona (CGJ38048)  ·  21 Nov 2005
I have just been diagnosed with Psoriasis and would love to meet up with other 'sufferers'. Am still in state of shock, but this thread has been very helpful regarding possible things that may work. Is coal tar urea (what my doc gave me) any good
 

2 Posts

Lisa(ldunne)  ·  07 Nov 2005
Hi, I am michelles sister and I buy my tar pomade from a pharmacy in Naas. The only problem with this product is that every time you go to buy it the price increases dramatically I bought one today and it cost 32. The only makers of this in Ireland is Ovelle, you can order online with them but I can\'t find any other source on the net.
 

6 Posts

Michelle (mowens)  ·  02 Nov 2005
Hi, at the moment i buy tar pomade from Remedi pharmacy in the IFSC, Dublin 1. My sis also buys it in a chemist in Naas so it is still avaialbe. You may need to ring around the chemists near you to see if they have any in stock or can order it for you.
 

7 Posts

Nollaig  ·  28 Oct 2005
Hi
Most chemists does not sell Tar Pomade anymore. They did not give any reason why!
I used tar Pomade myself but not anymore cos its does not work for me. Iam using Dermovate Ointment for the psoriasis on my skin only at night time, then Dovonex Ointment for the day time. Few hours later I use Donovex cream for 2 hours before having a shower using Emulsifying Ointment to help keep ur skin soft and prevent psoriasis from spreading. Use Dovonex cream for the scalp and wash off in the morning.it will cleared up in 2 days, brillant stuff. I have no psoriasis now only a little spot but keep using the treatment when they appear. Also Try all that for a month. Iam no doctor but give it a try. I had psoriasis for 36 years going in and out of Hume Street Hospital. Got fed up but ok now.
Doctor Nollaig :-)
 

- Posts

Anonymous  ·  28 Oct 2005
Hi Shy,

It will take about a month for it to disappear, however it might come back so you will need to keep using it :(
 

126 Posts

Chuckles  ·  14 Oct 2005
Hi Shy, I didn't use dovobet, but I used exorex last year and it worked for me. However like you the flakiness went first. I continued to use the product and the redness went too. I can't remember exactly how long it took. I suggest that you just continue to use it. I takes time for your skin to heal completely.
 

- Posts

Anonymous  ·  13 Oct 2005
Hi

Can anyone tell me when I will see results using Dovobet? I am using it a week now and so far the flakiness has gone but redness is still there. Thanks
 

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Anonymous  ·  19 Aug 2005
Hi, does anyone know where to get some Tar Pomade? My chemist says it's no longer available. Works well for me. Also, anyone got the Psoriatic arthritus as well?
 

4 Posts

Keith (ktwamley)  ·  08 Aug 2005
I don't know of any in Dublin but I think it would be a great idea and would help in any way I can.
 

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Anonymous  ·  05 Aug 2005
does anyone know of a psoriasis support group where people meet up to discuss their conditions with other people like them??? If not maybe something should be set-up as it's nice to speak to other suffer's face to face also!!!
 

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Anonymous  ·  18 Jul 2005
I have being diagnosed as having pustular psoriasis affecting the palms and soles.I now have this condition over three years, I have being to the same specialist and he has had me on the same cream for the past three years, any time I suggested a differant treatment he has dismissed my comments, where do I go from here, any suggestions would be welcome.
 

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Anonymous  ·  02 Jun 2005
Had psoriasis for long time, tried everything. Has anybody heard of or used Dr.Connolly's book psoriasis cured?
 

4 Posts

Keith (ktwamley)  ·  31 May 2005
It does work for some people, but the thing with Psoriasis is each case is unique what works for some won't work for others and you have to be careful not to be sucked into the many supposed cures that are out there, I would recommend seeing a dermatologist who will probably prescribe steroid cream if it is not too severe, or uvb treatment if it is quite bad, both of these treatments are known to work but shouldn't be over used. Good luck!
 

- Posts

Anonymous  ·  31 May 2005
Hi has anyone bought dead sea products of the internet is it a waste of time and money? It's just that i was told about someone who went to the dead sea for treatments and got great results and now they attend regularly every year,i have p for the last 12yrs and it hasnt been as bad as some peoples but it's starting to flare up now again, my dad has it bad and most of the boys in my family have it,but i'm the only girl who has it out of all my relations,can anyone tell me if they've heard anything about the dead sea, thanks and i'd be lost without this site.
 

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Anonymous  ·  16 Apr 2005
anyone know of a sunshine resort with a treatment centre for psoriasis. Over last 15 years i have tried just about every treatment and cure from dovobet, steroid creams, faith healers, coal tar
baths, diets and on and on . Just seems to be an endless cycle of forking out cash to my local chemist for the latest miracle treatment.Steroid creams such as dovobet do have some initial success but I found they lost their impact after first treatment period. On a positive note 'Diprosalic' scalp application is very good to control scalp irritation. Great to hear about the new support group. keep up the good work.
 

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Anonymous  ·  02 Mar 2005
Hi..Am just wondering about support groups in the Galway area or Midlands area? I've suffered from it for the past eight years. I've been to many dermatologist but treatment only works for a while. If anyone in similar position would like to get in touch wit me by email my email address is ceallaigh28@hotmail.com.
 
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