157,113 registered members
583 on CF register
[Posted: Wed 26/07/2006 www.irishhealth.com]
By Niall Hunter-Editor
A total of 583 people with Cystic Fibrosis are now enrolled on the registry for the condition in Ireland.
According to the latest annual report from the Registry, it has now passed the 50% mark in enrolment in terms of the estimated numbers with CF in Ireland.
The report states that if all persons with cystic fibrosis were enrolled on the registry it would be in a much better position to calculate survival rates.
At this time, such calculations cannot be made as there is not enough data available, according to the report.
The report estimates that the number of children with CF is set to grow by 7% between 2005 and 2010 while the adult population will grow by 25% in the same period.
It adds that not all people with cystic fibrosis attend a CF centre close to their residence. The proportion of people who attend hospitals in Leinster at 64%, is larger than the proportion of people with the condition who live in Leinster.
The report points out that that Ireland has the highest incidence of CF but also may have the largest proportion of families with more than one child with the condition.
There are four families with three siblings with CF in Ireland.
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