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Chronic pain so bad, sufferers 'want to die'

[Posted: Mon 13/10/2003 www.irishhealth.com]

By Deborah Condon

Over half a million Irish people suffer from chronic pain on a daily basis, with 100,000 of these saying that the pain is sometimes so bad, they want to die, a major new European survey has found.

According to the 'Survey of Pain in Europe', 510,000 people or 13% of the population, suffers from chronic pain which is long-term daily pain. However poor treatment of the condition in this country results in three million days off work every year.

The survey was Europe's biggest ever study into pain and the results have prompted experts to call for the recognition of pain as a disease in its own right. They are also seeking better education of doctors and nurses in the area of pain management.

"Long-term pain is a major public health issue, affecting more than a quarter of all Irish households. Untreated chronic pain leaves sufferers' lives in ruins", said Dr Declan O'Keeffe, a pain specialist at St Vincent's Hospital in Dublin and president of the Irish Pain Society.

The survey found that one in six people suffering from pain in Ireland has lost a job because of the condition, while one in five sufferers have been diagnosed with depression as a direct result.

More than 40% have feelings of helplessness and feel they cannot think or function normally. While over half are unable to have sex anymore.

"Despite advances in the management of chronic pain, many patients still suffer unnecessarily. Chronic pain is not a symptom - it should be regarded as a disease in its own right and treated with the same urgency as any other similar chronic condition. Any condition that makes you feel like ending it all has to be taken very seriously indeed", Dr O'Keeffe said.

What is it like to life with chronic pain? Read one sufferer's account at...

http://www.irishhealth.com/index.html?level=4&id=819

Are you a Health Professional? Log on to IrishHealthPro for more...

 

  Brid(mehta)  Posted: 14/10/2003 12:46
It's absolutely true. Chronic pain makes life unbearable sometimes. I have been in constant pain for 20 years due to spinal injuries which have lead to arthritis and problems with mobility. My ability to work, travel, drive or have a social life has been severely curtailed particularly since I injured my neck 10 years ago. Only now am I being referred to a pain clinic, so only now is my pain being taken seriously. My doctor's attitude is "go home and put up with it". Because I look fine people don't understand why I cannot do stuff. But like so many others, the only reason I'm as well as I am is because I have learned to pace myself. If I overdo it, I'm the only one who suffers. So I'm careful, but I do really miss having a normal life. I miss the freedom of it, being able to go places and do things when you want to. Now, it's all very measured and managed. I'm not as lucky as some in that I have no family support. My family are not interested and have never been any help to me. But I have good friends and my faith which keeps me going. I swim regularly and find being in the water is the best pain killer. But if I knew for certain that it would continue like this or worse, I would rather be dead.
 
  daddy(fordekp)  Posted: 15/10/2003 15:14
Dont suffer in silence with chronic pain and dont let your GP fob you off with pain killers. the Pain Management clinic in Tallaght hospital is a wonderful inovation and the multi-disciplined approach to pain is both very helpful and comforting with people that really understand what you are going through. I cant praise them highly enough.
 
  Pat(myvore)  Posted: 29/10/2003 20:54
I know I'm generalising a little here, but the ones needing more education and understanding of chronic pain is the medical profession. For years my pain was not taken seriously bur worse still I was abused by so called "specialists" that actually subjected me to verbal abuse and indeed physical abuse also, by their refusal to even consider me as needing treatment. I found myself caught between my then GP and the hospital I then had to use. Understanably, my GP could not diagnose what was wrong and sent me to hospital where i was told i was imagining it. My doctor told me to go to casualty when the pain and other obvious symptoms occured but the ER doctors, led by the consultant in charge of ER made my life a living hell for over two years. They berbally abused me and ridiculed me. They told me and my wife to stop annoying them and that every time i presented, with or without a note from my GP, they had instructed the staff to continually put my card to the rear of the pile and that if either of us asked about the delay a member of staff would deliberately hide the card. I know that readeres of this will think I'm exagerating this story but i am not. What I have described above is the least abusive treatment, there would be no question of this ever being posted if I told the whole story. Eventually, because of the help given to me by a certain specialist involved with pain management, hint, I had the necessary MRI scan which showed my spinal cord so severely depressed by vertebrae and disc's, known to be injured, that i had surgery which thankfully has improved my life immensly. I have had senior specialists tell me that chronic pain is in the mind and anyone dealing with it is only a voodoo doctor! I have to stop, I'm becoming distressed thinking about it. Fortunatly I have relocated and now have the blessing of being treated by enlightened doctors and nurses.
 
  Michelle(michelle33)  Posted: 04/11/2003 20:53
All three comments were most interesting. The Pain Clinic in Tallaght sounds ideal. I have come to the stage in my life that perhaps it is a little un-realistic for us to think that other people can feel our pain or empathise. To handle someone else's sickness now has become out of vogue in the detached society we live in and it is my humble opinion that people are no longer able to cope. In fact, they fear the reflection i.e. it could be them and would they handle it as well as you.......... Distraction techniques - to take the negative connotations that go with depression, include shopping, pandering to your needs and whims, can also be turned around another way. Pace oneself is key. It has taken ten years for me to fully accept this. I fought it and made matters a lot worse. It is not that people did not encourage me to pace but then there were others particularly family who are in denial and to be kind, unknown to themselves they impose a pressure on you to get back to the old you. Early words in Zimbabwe from two nuns check in several times a day now even though it is a decade since the accident. They are Rest Restores. The other distraction technique I have is that I go to say a coffee shop locally - and annotate the relevant points that interest me in the paper. Then I might look at the social aspects or even political and follow some made up theme of my own. I also (due to no concentration) make notes of programmes that interest me and then type them up. This kind of distraction helps me. It might be of benefit to another. Regarding the 'want to die' - I dance this dance with bipolar depression. I went to the National Disability Library - Clyde Road and located an article written by Professor Quinn - Law Faculty 'From Charity to Rights'. The issue 'Right to die' is not included in this Disability Bill presently under review. Quote: Yes I have a lever arch file of quotes from my solitary existence 'All suffering prepares the sould for Visionn' - Martin Buber - Jewish Theologian.
 
  Anonymous   Posted: 17/11/2003 17:11
The idea of a pain management unit is a brillant one, however as a thirty year old whose suffered from rheumatiod Arthritis since the age of sixteen I feel that what needs to be learnt is not by the sufferer. From my own experience of constant chronic pain I have learnt to manage my pain myself, therefore I feel it is others who need to learn about chronic pain, the effects it has on the person's wellbeing. When your constanly in pain it is extremely difficult to even consider anything let alone living a happier life. The amount of times that I have been asked how I'm doing, to respond with I fine thank you, Despite the fact that I may not be able to put one foot in front of the other or lift a fork/spoon to eat. Yet if I was to tell the enquirer the turth they'd walk away mortified. So not only do the sufferer need be educated in pain management non-sufferers need to understand better
 
  Anonymous   Posted: 17/04/2004 09:03
as a chronic pain sufferer myself, i totally sympathise what you have all gone through and understand the frustration at being made feel like its all in the head. i actually visited my GP doubled up in pain,roaring crying with my mother trying to explain how bad this had gotten.(was bout my 5th visit) He then tryed to send me home again with painkillers? when i asked or more like begged him to refer me to a specialist,i was told he didnt think i was serious enough and as the waiting list was very long anyway,he reckoned just take the tablets? eventually i was referred onto a whole line of doctors,an orthopedic surgeon,a neurlogist to name but a few.. i was constantly being asked had i got a pending court case,(which i had{and won!} but dont see how this was any of their buisness?) as soon as i said i had,their attitude totally changed towards me and i was treated very badly. i was eventually referred onto the pain management clinic in st.vincents hospital where i was finally believed and not asked that question. i was so relieved at finally being believed, and then i did the pain/mgemnt course.It was a turning point for me. I met others in the same constant pain,and some who were a lot worse off.of course i was very down accepting this was my lot but a sense of relief to finally get answers to a lot of questions i needed. i would urge anyone to try and get onto that course,its hard,3wks long and very tiring but really,really worth it.. you learn invaluable info and also theres a family day where ur family can go in and listen to doctors and ask their own questions. i'm now 30 and have suffered from chronic pain for the last 7yrs. i have had to dramatically reduce my work hrs,change jobs,split up with a long term partner,the family home had to be re-adjusted to suit my needs,social life went downhill, spent a lot of time crying and thinking about suicide.. list goes on & on.. after the course i learned to think-thats my old life, i need to find a new one.. i'm now working p/t,can manage my pain ok most of the time,learned to cope with a pain flare up more gracefully! ;-) i'v also met a new partner who is very understanding but i still have the worry of pregnancy and how that will affect me. to sum it up, i'm really saying, dont despair, there is help out there, dont be afraid to put pressure on your gp. only you know how severe your pain is. The sooner chronic pain is recognised as a disease,the better for all of us sufferes!!!
 
  Anonymous   Posted: 31/08/2004 14:35
i have suffered with chronic pain almost 3 yrs.this last yr has been very sever.my pain started in my arms and shoulders,now i have lower back pain thats with me 24-7.im wondering if any of you have chronic pain so bad it feels like your dieing?mine is still undiagnosed,except for fibro and myofacial pain.
 
  Anonymous   Posted: 23/09/2004 18:02
chronic pain has been a part of my life for 11 years just when you think your on top of it bang, you're brought back down to earth. Neurosurgeon x 1, Orthopaedic Surgeon x 3, Chronic Pain Specialists x 2, chiropractor, osteopaths the lists goes on, no answer no let up, even though most days you cope simply because you have too other days you just want to be on your own to simply deal with it. Hospitals x 2 1st time traction of 9 days 2nd brought by ambulance to hospital 1 Saturday night after having called 5 doctors to house during week, eventually gave in and went to hospital. Get to the hospital, get examined, x-rays etc. Sorry can't find anything wrong with you we will get you a wheelchair to your car because I was physically not able to walk. Went home cursing and blinding following Monday back to same hospital with appointment admitted staight away to hospital for a week. I was told I did not follow proper procedure. What does that mean??? Wont be a patient in a hospital now. Been in a out of work Employers get browned off of that and dont want you, who can blame them. Leave it all to the Medical Referres for Social Welfare, one in particular who told he was sending me back to work, told meto be careful and try and get someone else to do my work. In the last year I am having trouble with with Carpal Tunnel Syndrome which affects the hands and my back is so bad at times the pain literally brings me to my knees at least 2 - 3 times a day. Bottom line from the medical profession take the pain killers and get on with your life !!!!
 
  sinead(YXD20436)  Posted: 10/11/2004 13:02
On reading the articles on this site I am horrified at their experiences. Why do doctors not listen when we tell them we are in pain? My husband has been suffering with chronic back pain for the last six months. We have gone to several doctors one which thought is may AS an mri scan was done but it didn't show up anything only inflammation of the sacro joint. The doctors are saying they can't help my husband and just take the painkillers. I feel that they are not bothered in trying to find out the root of the problem just fill him up with drugs and hope that will keep him happy. I really do wonder about our medical profession and are these people in the right jobs?.
 
  Anonymous   Posted: 15/02/2005 01:39
I'm doing a presentation about chronic pain to a group of Doctor of Physical Therapy students in the U.S. I would like an opinion from a person that suffers from chronic pain. In your opinion, what are key points for us to know when interacting with patients with chronic pain? How can you best explain to a group of mid-20's college students what it's like to live with chronic pain? From what I've read, health care professionals tend to discriminate against chronic pain sufferers. Is there anything we can do to reduce this bias? Thank you for your help!
 
  nuala(BOY25000)  Posted: 25/02/2005 03:14
Explaining to mid-20's college students:- 'it haunts you twenty four seven, you watch your life peter away, there's no escape, no sleep, you cannot depend on anything, it bores into your mind and worse of all you look normal and people expect normal successes and productivity from you - hell'
 
  Robin(VGY27032)  Posted: 10/04/2005 18:16
To Anonymous: As a college student with chronic pain, I have some experience trying to explain the condition to people in their 20s. I've often wished to know someone else my age with chronic pain to compare notes, if nothing else. If I can help you with your presentation or anything else, please email me: donovark@email.uc.edu.
 
  Anonymous   Posted: 15/04/2005 01:55
i think i can speak for most chronic pain sufferers when i say its CONSTANT pain, u might get a few moments painfree per day.. maybe sitting down watching tv or somethin but as soon as you even so much as cough, sneeze, turn ur head quickly or even shift a little bit in ur seat, it can literally have u in tears with excruciating pain. you dont sleep much at all, if u do get into a rare deep sleep, a simple movement is enough to wake the whole house with screams of pain. simple things that others take for granted, like blo-drying hair, putting on socks,trousers etc, carrying bags/boxes, become a total nightmare. shopping, outings in busy places become terrifying as the thought of someone knocking into u will send u into a flare up. embarassment is also a major thing, last wk an old man dropped something in front of me and asked could i pick it up for him, i was having a bad day so i had to stop someone else and explain our predicament,was very upset afterwards as i'm only 30. the least little thing can set u off, sometimes u even get resentful of other people running round doing every day things when all u can do is sit helplessly and watch them,which sounds quite silly. when someone tries to help u feel like screaming at them that your ok, dont need help-even if u do!! there is a real need for counselling early on as depression sets in when u think your alone with this burden. if doctors took a little more time listening to what the patient is telling them, thats half the battle, its so disheartening when u have to keep repeating the same story over and over knowing they think you're exagerating and blowing it out of all proportion..
 
  G.(PGB27862)  Posted: 27/04/2005 19:37
Greetings from the u.s.a. just thought i would put my 2 cents worth in, everyone should agree that chronic pain properly treated can only serve to help those that are in the worse of condition! why should "anyone" have to suffer?after years of untreated or under treated chronic pain distroys many persons live's entire familys are effected by this and only the worse can come from it! the system's counter attack;yes you may only be a drug addict looking for a high, well' addicts have many right's and get treatment. and thats just dandy however those who suffer the real pain CANNOT BE TREATED UNLESS WE GO THRU HELL FIRST AND THEN SOME NEVER DO! TRUST ME i PERSONALY WOULD RATHER BE A DRUG ADDICT! at least we could recover. but the fact is that we dont ever regain from chronic pain unless the Doctors will at least treat us, at best we can live a managed life, this is all we are asking for isn't it??? I say error in the side of caution first, give us relief, "IF" we abuse our medication the lession is soon learned to the new treated person, if you get 1 pill every 6 hours, and u always use 2' that just really means that you get to suffer half of the month"" and people in c.p. learn this real quick.. and real c.p. person's wont sell even 1 pill if they know they will be in the agony zone if they do! I will say this" you couldnt buy 1 hydrocodone pill from me! peroid!!! I refuse to suffer anymore then i have to for ANYBODY" it's ez'er to stay out of pain then to try to get out of it. im not saying that you wont mess up and hurt your self mowing or something stupid like that but trust me its a learning process, after years you learn to say' NO, SORRY, CAN"T DO THAT< its just not worth it.. and its part of the learning process we go thru and hope we learn sooner then later.. If doctors work with their c.p. people they will learn quickly who is who, and if you are a drug addict selling the medication there are laws for that and persons employeed to deal with you, thats their job and the medical profession shold let them do their's and tend to their own suffering. the weeds will be weeded out. one way id for doctors to request count of medication if they think there is a problem. 'BUT' also in fairness, doctors should allow c.p. people a break thru medication for the ruff times of to help them sleep and or to get up in the mornings if able, pain is real. and its real real bad for you. your health will soon wither if not properly treated not to mention the familys need their lovedone's back, and hopefully before their life is semi still intact. my 2 cents worth. thanx's. G. p.s. tell this to those 20 plus year old Doctors.. if they really care, so something, and be the best that they can be' someday they will be glad they did and maybe even their loved ones. bye.
 
  Anonymous   Posted: 16/08/2005 11:26
What should doctors know??? 1 Pain scales - how bad is the pain relative to how it normally is (for the person)? The scales need to be meaningful to the patient! I've had morphine when I didn't need it, been hospitalised when I didn't need it, generally had my life messed around because doctors couldn't cope with the idea that someone had so much pain - when what they were looking at was spasm, which is a daily event for many people in chronic pain, and very managable - just cause it happens in a doctors surgery shouldn't mean being treated like a package for delivery elsewhere. Pain scales need to be related to something the doctor can understand too. Loss of sleep caused by pain. Duration of acute pain in hours. Pain level beyond the point where efforts to distract yourself are useful. Pain which reduces ability to think about anything else. Pain causing one to cry out involuntarily. Pain causing one to feel that all one can do is survive the pain. Pain that did not respond to taking x amount of prescribed medication. Pain severely reducing mobility. Pain causing pacing. 2 To know that NRSAs etc are useless for nueropathic pain. Diazepam or longer acting benzos, Nuerontin/Lyrica, Tegretol etc 3 The patient's right to manage their own pain - doctors seem scared of the idea that people in chronic pain need to be able to decide when they need to take anti-spasmodics, analgesics, anti-epeleptics for nerve pain etc. This is cracked in the head! We need them when we need them, not take twice a day! 4. Basic physio ideas about stretching may be new to non-sporting patients. relieving a severe cramp in the surgery takes 60 seconds and is something the patient can do at home. 5. Something about burning pain caused by partial nerve damage, MS, Central pain. Sensations of being sunburnt, having acid on your skin, feeling as if something is under your skin and eating into the subcutaneous tissue, intense burning in toes, wearing sandals with loose straps, not being able to bear sheets at night, burniing sensation in the groin.
 
  Catherine(JHH38494)  Posted: 30/11/2005 20:46
Ihave suffered from Chronic Pain for the last 5 yrs. I had a mole taken off my right leg and the nerves in my leg were damaged. I have tried everything. I had a rhizotomy in March, Cord Spinal Neurostimulator in May this was taken out in June and a second one put in at the end of June this was taken out in July. I have taken class 1,2,3,and 4 drugs and I would try anything to control my pain but there is really nothing else that can be done for me. My husband has been my rock through all this, I have had to give up work and suffered really bad with depression, I have also done the 3wk Pain Programme in St.Vincents and it was good. But I am at rock bottom again. I have come to the conclusion that there is no cure for me and sometimes I do wish My Mole had been Cancerous and maybe I would be six feet under now.
 
  Anonymous   Posted: 01/12/2005 17:57
I was involved in a car accident in 1995, as a result of the accident I have peroneal nerve damage in my right leg and also developed drop foot. Ten years of pain and when I went back to hospital this year in the hope that with time medicine might have advanced that something could be done to help the ever increasing deformaty in my right foot I was just reminded how well I was cared for after the accident. I cannot take the normal pain killers offered because of how they make me feel ill. When I wake up in the morning, after a nights sleep, when I can sleep, it takes a few minutes for reality to set in, when I put my feet on the floor most mornings I cry because it is another day of pain and not being able to walk right. Pain managment sounds good but my problem is my deforming foot and no one wants to know. I have lost faith in the medical system
 
  Tom  Posted: 11/03/2006 15:40
I have been suffering with a severe back pain for over six years now. I came across this site while searching on the Internet for advice in managing chronic back pain. At this stage of my life I really don’t know were to turn, as only people who have suffered as I have can understand what I am talking about. I come from a generation where one didn’t really complain about things and one just got on with life. My problems started in February 2000 after an accident at work. Since that day I have never being able to work, nor have I received a cent in compensation due to the fact that my neurosurgeon put my pain down to “a degree of unfitness” and weight gain even though I felt something give in my back the morning of the accident. My question would be “how did he think I got this way”(But that’s a whole other story) The reason I am writing this is to agree with the people that say that the medical need proper training in treating people with chronic pain. There seems to be no understanding that people who have chronic back pain or any sort of pain deserves to be taken seriously and listened to. Since my accident I have been on benefit and one just survives on that and no more. I have watched my friends out working and making loads of money and having their big house and big car while I am not able to do so. I find that very hard, because I had plans to and now that wont happen. I live in the country and need a car to get around but even my car is now coming to the end of its days and there is no way that I could ever afford another one. That’s when I can drive, some days it’s impossible to drive. I returned to College in an effort to improve my skills as well as get me doing something to keep my mind active. I found it hard at first getting into learning mode but soon got myself sorted out and was doing ok, but had to leave after it became impossible due to the pain getting worse. That hit me really hard. I try now to dwell on it but it scares me when I do think about it. Who knows where I will be in 10 years time. While I look ok and can walk, I suppose that it is hard for people to understand just how restricted my life is. On a bad day I am more restricted then a person on a wheel chair. I can do noting but lie down and even breathing is difficult and frightening, or the pain can be so bad that I think I am going to throw up. My doctor is understanding but all he can do for me is pain killers which help if I am not having a really bad bout of pain. Then you just sit or in my case lye it out.
 
  M  Posted: 01/08/2006 22:53
Interesting comment on pain scales. Was trying to explain that to my boyfriend today - pain scales are so subjective - and who knows whether the pain is going to jump from say, six out of ten right up to ten out of ten by the time you get home after visiting your rheumatologist?! Besides which, his "ten" and my "ten" might be poles apart... I'm 26, was diagnosed with RA just two years ago and already I'm finding the pain the hardest part to cope with. It's always there, sometimes it's all you can think about. It becomes difficult to carry a conversation because you can't give people your full attention. Family and friends are "understanding", but don't, can't understand. It's not just the disease that requires treatment is it? There's a whole lot of emotional and psychological baggage that noone can prepare you for, same as with any other illness. i'd love to hear from others my age out there who are going through the same. How do you deal with the bad days? Any advice appreciated... :)
 
  des  Posted: 10/08/2006 21:46
hi i have had a constant pain in my groin area for the last six years ,despite every test under the sun and radical surgery it has all been to no avail i survive on nuronten , and solpadeine every day just to get me through, i was referd to the pain management team in St Vincents elm park, i was advised to have a spinal cord stiulater implanted and to be honest , there is not enough space to tell how bad that all went for me so after many spells in hospital and six years i am back where i started from , i live in the tallaght area of dublin area and was told that there is a very good pain management team in tallaght would anybody out there have any experience of this team in tallaght , many thanks
 
  Anonymous   Posted: 28/01/2008 14:03
hi, i have suffered with back pain for over 30 years. it first showed it self when i was 19 and pregnant with my first child. when the baby was born i was told i had to have surgery to remove the disk as the pregnancy had caused further problems to my spine. i am now 49 and five opperations later i am in constant pain every day 365 days of the year. i even went to germany to a private clinic, paid out a load of money and had surgery. i thought i had finaly found the help i needed and that i was going to go back to a normal life. the doctor said all the things i needed to hear and i fell for it. but two months later the pain was back with a bang. i now am trying to adjust my life around the pain. it is so hard to come to terms with it. The people around me are one of the biggest problems when you hear things like "you look well it is great that you are better now" or its just your back can it be that bad" when the pain hits bad and it travels to my head i can spend anything up to 3 months in bed. sometimes unable to sit up. if i walk for a distance the pain travels to my heels and i find it very hard to walk. i feel like a fool when i see people staring at me. my mother is getting on in years and needs help but i am unable to give it. that makes me feel very guilty i wish i could do more for her i cant even sit with her because i have to have a special chair that my legs are raised off the floor. if i sit in a normal chair for long periods of time the pain hits with a bang. i am waiting for a place with the pain clinic in vincents hospital and they are going to show me how to cope with chronic pain. my local G.P. gives me no support at all just gives me loads of pain killers. this all sounds very negitave there are some positive things in my life like my wonderfull children who have been great. i have adjusted my car so i can drive using my hands only ( that was fun learning to drive again but i got there) i have a great love of dogs and have four dogs in the house with me. i find that they have a very calming affect and they just want to be loved all the time. i am now going to breed dogs as a hobby. so life is not all bad.
 
  Anonymous   Posted: 22/03/2008 23:11
I suffer from chronic pain, last B/H weekend the pain got really unbearable. I went to ED but was told go home since there was nothing that could be done for me. There was no pain team on call at weekend. I went into the toilets and took every painkiller I had in my bag. But I didnot have enough. I felt so suicidal and nobody was going to listen.
 
  ChronicPain Sufferer  Posted: 25/03/2008 21:36
Hi there, Did A & E do nothing for you at all? I've had quite a few visits to different hospitals and once I tell them I suffer with Chronic pain, I am immediately given an injection. You should INSIST they do something, I know how you feel wanting to take a bundle of tablets to stop the pain, I've been there too and I totally sympathise with you but try a different hospital and complain to the one you went last B/H wknd...
 
  sammi  Posted: 14/03/2009 10:18

Hi. I just came across this post.

My husband also suffered for years. when he was bad, as it comes and goes, I paid private for a scan. It showed a bulging disc. the last 7 yrs have been bad but the last 2 have been a nightmare, all i could do was watch him suffer.

He was in and out of hospital when the pain was chronic and he was virtually disabled. Eventually after a year of nerve blocks, he was in hospital last august, the consultant told him to just go home, he wasn't going to operate, and that was that.

We found a Nuero surgeon in Dublin and were going private. A few weeks ago he was REFUSED admission to hospital for pain relief. go to dublin he was told. He had to leave the A&E just like that.

He had surgery yesterday and he is sore from that, but he says it's a different pain, the old bad pain is gone. So we shall see how it goes.

You have to fight, which is very tiring. Fight and research, ask questions, don't be fobbed off.

Get a scan when you are bad.

If you have to borrow the money, do it. Get it done private and get an un-biased reading on the scan.

If you don't feel right with your doctor, change him.

You should be reffered to a consutant. Ask questions, make notes, write it down.

If you are not happy about how the hospital has treated you.

Complain, in writing and keep copies.

Go to your TD. Yes, it does make a difference, go to one who is in opposition to the government.

You have a right to a second opinion, but your fighting a powerful club.

Get a refferal to a Nuero surgeon. If you have to borrow money to see one, do it. again you are getting independent advice.

If you get on the waiting list for an operation you will qualify for Patient Purchase fund.

there are a lot of problems put there, people need to come together with all of the complaints so that there are statistics on paper to be able to prove the extent of the problem.

 
  Russel  Posted: 17/03/2009 22:14

Hi Sammy. Just to fill you in about my own experiences in this back problems. The first time the problem started with me I was in agony for about two weeks and my doc at the time did some manipulation in the area but made it worse. He then told me to go home and lay on the floor with a towel or cushon underneath my back to keep the disk pushed in, i could not even get to the floor the pain was that bad. Two days later my wife rang an ambulance and they rushed me to Hospital. ( Im from the midlands ) The surgeon in the hospital just took a look at me and sent me straight to a Dublin hospital and the neuro surgean opperated within two hours, at this stage my kidneys were not working and this added to the back pain was unbareable. I had previously had another disk removed and I'm still in agony swallowing painkillers, my opinion is our surgeons don't know enough about the back and the way it functions. I'm disabled because of the opperations, I have no feeling on the left side from the waist to the toes.

 
  Anne M  Posted: 06/03/2010 09:52

Hi there, I can so relate to this, only that I have children I have considered giving up! The pain on bad days can be so awful that it doesn't seem worth going on! but then I have days that I can control the level of pain and even thought its hard at least I can do things

 
  Pain-med Bonanza  Posted: 21/10/2012 01:00

I had an injury and it was not treated properly. Doctors didnt want to listen and focused on the wrong things. Now I have chronic pain and it affects everything. Ability to work, have fun, sleep, cook dinner, do chores, drive, walk in a park, everything. I have to sit on my floor after 3 minutes while trying to maker dinner just to ease it off as it is so bad. I cant even go for a walk with my wife for more than 5 minutes. I have been on a steady run of different pain killers and none of them work much at all. Maybe taking it down from an unbearable roar to slightly less unbearable. Lately I have started drinking just so I can pass out and not feel anything for a while. The ONLY reason I do not kill myself is because the insurance money wouldnt pay out if I did. I am not sad about wanting to die. Im ok with it as at least I wouldnt be in pain anymore, AND I would leave a lot of money for my wife. Although most people I think want to live, and live happily, living in this constant pain is nothing but torture until the end comes. I pray every night that I wont wake up in the morning, and when the morning comes, all I can say is Damn. And then I try my best to make it through yet another day of this crap until the nighttime again. Try my best to make it through work, do all the things that need doing, and try not to snap at everyone because Im in pain all the time and always tired. Not much of a life and certainly not one I value at all. For some reason today I just wanted to say it. I hope tonight, like I do every night, that finally I will just not wake up.

 
 
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