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Epilepsy is 'much misunderstood'
[Posted: Fri 11/05/2001 www.irishhealth.com]
No medical condition is as misunderstood or misinterpreted as epilepsy, delegates at the National Neurosciences Nursing Conference have heard.
According to Maire White, a clinical nurse specialist in epilepsy at Beaumont Hospital, people with the condition often have to cope with problems in almost every sphere of their day-to-day lives, from making friends to getting a job.
"The sizeable social stigma attached to epilepsy, its unpredictability and its transient nature may cause frustration and anxiety, not only for the patient, but for the family, friends and care workers", Ms White said.
She added that while some restrictions are necessary, adults and children with epilepsy should be encouraged to live a full life with the condition.
Epilepsy is one of the most common neurological conditions, with at least five in every 1,000 people being affected by it. People with the condition have seizures. These happen when an abnormal electrical discharge occurs in the brain, disturbing normal function.
The seizures are usually brief but can result in a loss of consciousness, however once the attack is over, the normal electrical activity of the brain resumes.
The conference was held at Beaumont Hospital.
|grace(graceki) Posted: 21/01/2002 15:51|
|i agree with your opinion, i am completing a project for my montessori couse in college and would greatly appreciate info on epilepsy in children my name is grace kiernan and my address is 205 clontarf rd clontarf,dublin 3|
|Anonymous Posted: 29/04/2003 11:41|
|my dads brother has epilepsy,he cannot drive,go out for a few drinks (because of his tablets),he doesnt work,he leads a very sad life really,he has developed a stammer in his speech i would love to be able to help him in some way because i feel that none of us in the family know enough about it. My grandparents tried to cover it up for years thinking that it was an embarrasing problem which they couldnt tell anyone, i do agree that it is seriously misunderstood!!|
|liam(liamwalsh) Posted: 27/08/2003 09:22|
|my sister and a good friend of mine have epilepsy and they have both developed it in their early 20's, it is a seriously misunderstood problem, but as long as they get plenty of rest and don't over do it they are fine. My sister has had 3 grand mal attacks all three incidents occurs while using a computer, is this common or was it just coincidence ??|
|Maria(IWN16150) Posted: 27/07/2004 15:37|
|I agree completely with the above. I myself developed Epilepsey (Grand Mal) at the age of 15. It did hold me back for quite a while, but then I realised that the only people without some type of illness are dead. I am now 52 working full time, married with 3 grown up children and I live a very full life. O.K. I can't drive but thats not everything. I do have two legs T.G. and I walk almost everywhere. There is life after/with Epilepsey.|
|liam(liamwalsh) Posted: 28/07/2004 09:16|
|maria, when you say you can't drive, is that due to having an attack in the recent past, that is preventing you legally from driving or is it a personal choice ? my sister would love to be able to drive|
|Maria(IWN16150) Posted: 28/07/2004 13:34|
|liam, it is really by choice, I do not receive any warning as to when I may have an attack and I just think it is safer for me and other road users. There are times when I would love to drive. Your sister should get in touch with the Irish Epilepsey Association. As far as I know if you have two years without having an attack you could drive, but I would imagine the insurance would be rather high.|
|liam(liamwalsh) Posted: 28/07/2004 14:33|
|do you still get attacks regularily ? can you see any pattern in your lifestyle that contributed to your attacks, like been over tired or computer usage etc.?|
|Vincent(votoole1) Posted: 22/08/2004 11:08|
|I have had a good few grand mal attacks, and it took a number of years to sort out my medication; now thankfully, I only seem to suffer with petit mals, (absences or partial seizures). These seem to increase when I am v. tired, hungry or suffering with a lot of stress. Also I have noticed that they increase when I am on a diet! I choose not to drive most of the time, although I am over two years without a grand mal attack. Helen.|
|simon(DOT19850) Posted: 03/11/2004 18:17|
|I have suffer from grand mal epilepsey since I was four years old and since pass April last year to may this year i had 14 fits and the doctor put me on a new drug call kappra and i have not had a fit since i started to take the drug.I take 2900mg a day now and do you think this will work out for me.|
|John(OHL33440) Posted: 27/08/2005 14:01|
|The etiology of epilepsy: here is a working hypothesis for anyone with an interest in neuroscience. Proposition: Beginning in infancy tetanic stimulation of limbic system nuclei triggers an acute stress reaction - a frustration-rage reaction - accompanied by action potential overspill to widely diverging neurotransmitter systems. You can tell from the superficial signs that the frustration-rage is a stress reaction (you don't even need a stethoscope!) - raised arterial pressure, increased heart rate, skeletal muscle tonus, and an affective explosion. The immature central nervous system is plastic to an extreme degree. A variety of neuromodulatory mechanisms begin to adapt the functioning of the immature brain to to the stress reaction. The oftener the acute stress reaction occurs, the more the acute stress shades into the chronic condition. Entire neuronal networks now fire action potentials in response to inputs that normally would be no more than subthreshold action potentials, culminatint in a variety of appettive, motivational, affective, and motor disturbances. Epilepsy is one of these.|
|John(OHL33440) Posted: 29/08/2005 10:39|
|Ed - can you change "subthreshold action potentials" to read "subthreshold synaptic potentials". Third line from bottom. John Doheny|
|John(OHL33440) Posted: 07/09/2005 14:51|
|The frustration rages of infancy ARE major seizures! The greater the number of frustration-rages, the more extreme the seizure becomes as neuronal pathways become fine-tuned by repitition. The major difference between the enraged seizures of infancy and the grand mal seizures of later life is this: seizures triggered in adulthood are silent - silent rages, if you like. The affective reaction - the enraged explosion -is the only component of the stress reaction subject to voluntary control. People who suffer from grand mal tend to be over-controlled; overcontrol is the price paid for self-control. People who 'act out' their suppressed rage tend to be deficient in self-control. Some have major seizures, most do not.|
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