The Irish Raynaud’s and Scleroderma Society, an organisation aimed at improving the quality of life of people with these conditions, will hold its annual patient conference next month.
Raynaud’s is a common circulation condition that is not threatening if sufferers learn methods to control it. However, in 2% of cases, Raynaud’s is the precursor of scleroderma, a rare, critical disease.
At least 350,000 Irish people have Raynaud’s, a debilitating disease that causes the fingers or toes to become white and numb in an excessive response to cold or stress. This is usually the first noticeable symptom of scleroderma, an incurable and potentially fatal disease of the immune system, blood vessels and connective tissue. Scleroderma can impact all major organs of the body and affects about one in 10,000 people in Ireland
Some of the top rheumatologists in Europe will speak at the conference and will address the symptoms and treatments of both diseases and the deadly connection between them, as well as discussing the latest research into the causes of Raynaud’s and scleroderma.
According to the Irish Raynaud’s and Scleroderma Society, it is vital that patients with Raynaud’s and their GPs are made aware of potential complications and are educated to seek help for new symptoms.
“We want to ensure more people are aware of the symptoms of these illnesses and consult their doctors earlier. We would like to see GPs better informed so they can make a quick and accurate diagnosis, and refer on to a relevant specialist,” explained Ann Tyrrell Kennedy, CEO of the Irish Raynaud’s & Scleroderma Society.
The conference will also include presentations on how to modify lifestyles so as to live comfortably with the conditions, advise regarding proper nutrition and how to obtain welfare benefits.
Hand and foot massages will be provided at the event, along with information and samples. Hand warmers and other heating aids and supplies will be available for view and sale.
The conference will take place at the Stillorgan Park Hotel, Dublin, on Saturday, April 25 2009 from 10am to 4.15pm. Entrance is free, but booking is required. A hot lunch is available for €20.
For reservations or further information, please contact info@irishraynauds.com or phone Mary McDaid at 01 2020184 or 01 2148950.
