its a total disgrace! i wasn't even aware of the problem until someone i know had an accident and he has been told that he will have to wait four to six months for an appointment with a neurologist privately. this is a young man with three small children and a mortgage. his brain injury should have been dealt with before he was discharged from hospital. only for the support of his family where would he be its unbelievable it makes me so angry!

To be told by a third neuro 'that i am a complicated' case and many people will never know why they have neurological disorders and that investigations would not discover much and to be sent home with pain control of neurontin is not what i would call a scientific answer to very difficult problems.

A motorised scooter user who has been through hell and back with neurologist in ireland I have been going to london.  At least they they are not rude, arrogant and cruel, all of which the irish ones have been to me.

I have been told "you dont have Parkinsons disease, you just want it"  "we know you have a muscle wasting disorder, go home and see how it develops' is not scientific either.

To be told you have a generalised dystonia but they dont know why and wont find out why.

they just want to close my case because complicated cases are not economically viable.

so i have to do without physiotherapy, I cannot even access an adapted spoon.

I have been driven to dispair and back and languish in a land of not knowing what will happen me in Ireland with an identical twin with PD too, who wants to come home.

with autoimmune diseases mounting like a stamp collection and money dwindling fast from paying consultants in London, just one off visits to move things on a bit is killing me.  

I cannot do it anymore.

No services offered here.  Nothing here.

A twin who wants to come home but finds what i have been through doesnt bare thinking about.

with all that is wrong with me three consultants of different disciplines have sent me to psychiatrists before seeing to my physical demise.  All assessments on that level normal.

Yet i cannot find a neurologist here in my own country who will be kind, honest, helpful, caring.

They are arrogant, overworked, overpaid, and to get out of a tight budgetry spot shoot the messanger.

Even if they felt they couldnt help can they not say so with the truth, sorry, we simply do not have the expertise, the money, the time or whatever, not call me names, send me to shrinks, make me cry and weep and collapse in utter despair, when you have lost your working life, your independence, your ability to have a life, and all the time the worry of what will happen, what IS happening, i am in awful pain, i cannot walk, i cannot watch tv, read, deal with sensory overload, i drop things, no memory.

so if you are complicated they shut the book and give you pain killers.

i am driven to the edge of utter and total despair, not knowing who to turn to or where to go.

I am broken, utterly broken